Chronic Fatigue & Crohn's

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Regular Member

Date Joined Mar 2008
Total Posts : 155
   Posted 4/1/2008 9:32 PM (GMT -6)   
my gosh, i stay so tired. Is it that way with ya'll? i could sleep all day. I saw a rheumatologist and was telling him all that was wrong. He said, the tiredness isnt something a nap will cure. It is way past that point, now. I just started a multivitamin the has some iron in it. How long does it take for that to kick in.? I make my appts. for the afternoon cuz I am too tired and sleepy to go in the  mornings.I do have sleep apnea and use a CPAP machine. I take a lot of meds. Would that be a part of the tiredness?
ya'll take care.Julie
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 4/1/2008 9:42 PM (GMT -6)   
Hi Pommom,

Unfortunatley, fatigue is a common problem with inflammatory diseases. Our bodies are very busy being inflammed and this takes energy. If only our bodies would just chill out!! I have read lots of post from folks who take vitamins, minerals, etc., which may help you out. I suggest you search previous posts. I just take a multi-vitamin and that helps give me more energy. Oh for the days when I don't feel like I have to force myself to move!!

Take care.

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 4/2/2008 6:38 AM (GMT -6)   
Do you know if your iron levels are LOW? If so, you're going to need more than a multivitamin with Iron in it to get your levels up.

I've been exceptionally fatigued lately. Some days I feel OK. Other days the fatigue knocks me over to the point I can't concentrate on anything.

My iron levels are very low - I just recently found that out so that COULD explain my fatigue. My GI put me on prescription iron supplements, 2 per day for the next 6 months. That's to go along with my multivitamin.
Diagnosed in October, 2004 at age 33.
Currently taking Colazal, Nexium, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A
Secondary conditions: mouth ulcers, joint pain, extreme fatigue

Melissa H
Regular Member

Date Joined Mar 2008
Total Posts : 85
   Posted 4/2/2008 11:59 AM (GMT -6)   
Oh my gosh, I am ALWAYS tired. Yesterday afternoon I was at my desk and my eyes were so heavy. I had to ask my boss if I could leave early for fear of falling asleep on my keyboard. Of course by the time I got kids picked up and made it home I needed to prepare much for a nap, haha! But what stinks about it is that I know that a nap wouldn't have really helped anyway.

I've had my iron level checked and it is okay - but I also have a thyroid disease which can cause fatigue. I think it is from the CD though because there are other signs that I'm not absorbing the nutrients I need, my eyesite has deteriorated, my skin is terribly dry and cracked, and I'm losing weight. And like FallColors said, our immune system is busy attacking us...which I'm sure uses a lot of energy.

I hope the multi-vitamin helps you soon! Have you thought of Vitamin B injections? I just had my first one on Monday and it seemed to help boost my energy (and my outlook!) least for the day :)

Blessings! Melissa
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...nap anyone?
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007.  Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring non-stop, but trying to avoid steriods, argh. 

Regular Member

Date Joined Mar 2008
Total Posts : 155
   Posted 4/2/2008 5:00 PM (GMT -6)   
Hello, the family doctor did check iron and b12. my iron is low. so I started the multivitamin. but maybe I need an iron tablet too. I will ask him on Tues. I thought I understood the nurse to say multivitamin with iron. so, maybe I just misunderstood what to take. I will get clarification on Tues.
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

Regular Member

Date Joined Apr 2007
Total Posts : 345
   Posted 4/3/2008 4:09 PM (GMT -6)   
vitamins usually work for me within a couple of hours. Not today - because I'm flaring pretty bad. I'm going home now to tak a percocet and get under the covers.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 

New Member

Date Joined Mar 2008
Total Posts : 4
   Posted 4/3/2008 7:28 PM (GMT -6)   
It may sound silly but exercise always boosts my energy level. Take it slow at the start, but you will start feeling great and have a lot more energy. I was always tired until I started sleeping at least 7 hours a night and exercising for 30 minutes on most days. Now I feel as good as I ever have. I always avoided exercise, but once I started I became addicted. Hope this helps.

Regular Member

Date Joined Jun 2006
Total Posts : 289
   Posted 4/4/2008 11:58 AM (GMT -6)   
I'm another member of the constantly tired group. I was also diagnosed with sleep apnea, but couldn't get used to the CPAP machine, which I don't use anymore as a result. I think my lack of energy is due to a variety of things: the CD, my job/work hours, high overall stress level, lack of regular exercise (except for the running around I do at work), trouble sleeping/staying asleep. I always wake up feeling as though I haven't slept at all. When spring comes, I want to get into some form of exercise and maybe that will help. I take multivitamins and get a B12 injection, but I don't think either really helps very much.
Current Medications:

Pentssa, 1000 mg qid
Vitamin B Complex
Trader Joe's Probiotic
Folic Acid
Remicade infusion; every 8 weeks
Ambien, PRN
Seasilver Whole Food Liquid Nutrition

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 4/4/2008 12:04 PM (GMT -6)   
Weird thing with me. I feel completely worn out, but I never can sleep. Not during the day anyway. I feel body tired, but not sleepy
tired, if that makes sense.

I always look forward to having my B12 shots, thinking it might help, but sadly never does, but that's another story...

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2008 5:58 PM (GMT -6)   
Yep, I agree with Meengayjj. Exercise helps, even if you can only manage a little. And it's supposed to help with inflammation levels too.

Co-Moderator Crohn's Forum.

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