Vit B 12 problems

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/2/2008 7:12 AM (GMT -7)   
Hi everyone, I don't know if anyone can help me with some answers, but I've tried to research, but keep drawing blanks.

I've been having B 12 shots bi- weekly now for about 2 years. Now my specialist is telling me my values are still too low

Does any of you know why this is happening, and what can be done about it. I already suffer with neuropathy, I just don't
want to start getting into the more serious neurological problems. Thanks in advance.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/2/2008 3:13 PM (GMT -7)   
bump
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Mark Mac
Regular Member


Date Joined Mar 2008
Total Posts : 41
   Posted 4/2/2008 4:41 PM (GMT -7)   
Where is your inflammation? If it is where mine is, the terminal ileum, then that is were our bodies absorb all of their b vitamins. I too have chronically low b levels, and take a nasal spray, but am waiting on my most recent blood results to see if that has helped at all. I have not had any resections so even with all god's glory I am still unable to absorb the good stuff. See if your doc will give you a try on the nasal. Hope you feel better.

Mark Mac
28, male, diagnosed CD in 93'. Currently taking Humira, and darvoset for pain. Also getting acupuncture and chinese herbs as well as a massage when I can afford it. 107 lb

"I'm not a doctor, but I play one on TV"


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/2/2008 5:07 PM (GMT -7)   
They should be able to help you with this, they might give you more injections or have you take pills along with the injections.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/2/2008 8:42 PM (GMT -7)   
Mark my disease is mostly in the ileum, and I also have pancreatitis so yes absorption is a major problem for me.

I haven't really worried too much about my B12 as I knew I was getting the shots, but when the specialist said he was
puzzled as to why there's no real increase, that's when I got concerned.

I was just interested as to why, when I am being supplemented, according to them with maximum dosing. Surely it should
be helping now, as it hasn't got to go through the gut...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/2/2008 9:28 PM (GMT -7)   
Well for some reason you're not absorbing enough so you'll definitely have to see them about this.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 4/2/2008 9:44 PM (GMT -7)   
They need to try you on a different form of injectable Vitamin B12. Hydroxocobolamine is easier for the body to use than cyanocobolamine. The body is supposed to convert cyano to hydroxo to methyl B12, but sometimes there is an error or deficiency somewhere in this process and the conversion doesn't happen so you just wind up losing the B12 without much benefit. Another possibility is that you're Vitamin B12 dependent. The Merck Manual says this is rare but possible, and requires daily B12 shots.

I like the methyl B12 because I don't get side-effects from it like I do from the cyano and hydroxo B12. Good luck,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/2/2008 9:50 PM (GMT -7)   

You should check out this link...

 

http://content.nejm.org/cgi/content/short/358/14/1454?query=TOC

 

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/3/2008 12:07 PM (GMT -7)   
Razzle & pb, thanks for the info. See this is what amazes me, you guys can come up with a reasonable explanation, but
my GI/ assistant professor and a specialist in the Crohns field is puzzled....

Surely I cant go marching into his office, spewing forth with this information...How does a lay person/patient handle this,
without stepping on toes.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/3/2008 1:46 PM (GMT -7)   
We come up with reasonable explanations because most of the GI's/specialists seem to always have their heads up someone's butt! LOL!

For myself, I would have no problems marching in and stepping on toes, good grief I think it's a lesson a GI/specialist deserves if his patient is more informed than the so called "specialists"...what the heck are they getting paid for really?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/3/2008 3:51 PM (GMT -7)   
You go girl....

I will try and take a leaf out of your book....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/3/2008 4:17 PM (GMT -7)   
****! PB - you crack me up!

"We come up with reasonable explanations because most of the GI's/specialists seem to always have their heads up someone's butt! LOL!"
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...nap anyone?
 
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007.  Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring non-stop, but trying to avoid steriods, argh. 
 
 
 
 
 
 
 


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/3/2008 4:19 PM (GMT -7)   
Okay...that wasn't an expletive I just used, I promise - just the acronym for Laughing My Butt (well, that was an expletive) Off. I guess I can't use that, oops.
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...nap anyone?
 
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007.  Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring non-stop, but trying to avoid steriods, argh. 
 
 
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/3/2008 5:27 PM (GMT -7)   
I "crack" you up...as in butt crack????

LOL!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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