Setons coming soon!

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Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/2/2008 5:15 PM (GMT -7)   
well folks, wish me luck, I go in tomorrow morning to have my very talented colo-rectal surgeon work his magic on my bum, placing some more setons in my ever-persistent fistulas!

funny thing is when I went to see my primary for my pre-op, he had no idea what a "seton" was....but was willing to give me some Ativan to deal with the anxiety that would accompany such a procedure.....what a good guy, huh?

I will report back after I come back from the dark side.......

gladbag - aka Nat
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 4/2/2008 5:28 PM (GMT -7)   
All the best tomorrow, I hope everything goes well for you. Keep us posted on your progress.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 4/2/2008 5:52 PM (GMT -7)   

setons are a breeze...i have 6 now lol and believe it or not, i've met with GI's, emergency room nurses etc that didnt know what they were. I hope they bring u relief.

 

So I guess even having the bag isnt helping with your fistulas? the hope was that mine would help with healing....


25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


It's in the bag
Regular Member


Date Joined Aug 2007
Total Posts : 122
   Posted 4/2/2008 6:08 PM (GMT -7)   
I'm in the confused group on this one....what's a seton?
Asacol 400mg x 8 dly , 50 mg Mercaptapurine x 1 dly , 40 mg Omeprazole x1 dly , Remicade every 2 months , Multivitamin , Fish Oil ,


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/2/2008 8:00 PM (GMT -7)   
I had the head Dr/Director of an ER here in D.C. ask me what a seton was. He then went away for a few minutes and when he returned, he said he had looked it up on the web. I guess he didn't believe me. (And they are unbeleivable things, aren't they! Nasty little things but a real blesing at the same time! Just keep drain'n is what I say!!) But as soon as it was clear he didn't know what one was, I knew I wasn't going to let him anywhere near me!! Only folks who know CD, thank you very much. And he agreed -- he literally said he wouldn't touch me -- that I needed to see my Dr the next day. I admire his willingness to admit he was out of his league, but I found it funny to be refused by the ER!! ;-)

Firemedic -- in short, setons are threaded through fistulas to keep them open and draining. There have been several very recent posts on fistulas if you want more information.

Praying4healing -- 6 setons?! Wow! I only have two and that is plenty, thank you! I hope yours heal very soon!

Glad Bag -- I am so glad you have a knowledgeable surgeon! Take comfort thta you are in expereinced hands. I'm praying that it all goes very well and easy, with a very minimal amount of discomfort, anxiety, or stress! And tell me what color seton you get! I still think they should offer more fashionable colors than white, blue, and red.

It's in the bag
Regular Member


Date Joined Aug 2007
Total Posts : 122
   Posted 4/2/2008 8:37 PM (GMT -7)   
Hmm..well that does certainly sound like it sucks . Thanks for the info. I've had the joy of two fistulas so far. One of which became enormous and had to be cut and drained. it sucked also ..alot but the relief was instant and glorious lol. Can't say I like the sound of a seton to much at all though. But I guess when you're in our unique position you gotta do what you gotta do. Thanks for the info. :)
Asacol 400mg x 8 dly , 50 mg Mercaptapurine x 1 dly , 40 mg Omeprazole x1 dly , Remicade every 2 months , Multivitamin , Fish Oil ,


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/2/2008 9:46 PM (GMT -7)   
My surgeon called them pull-tabs. I had to laugh at that one!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


It's in the bag
Regular Member


Date Joined Aug 2007
Total Posts : 122
   Posted 4/3/2008 12:08 AM (GMT -7)   
lol that's just awful...funny but awful . :)
Asacol 400mg x 8 dly , 50 mg Mercaptapurine x 1 dly , 40 mg Omeprazole x1 dly , Remicade every 2 months , Multivitamin , Fish Oil ,


cd2
Regular Member


Date Joined Feb 2003
Total Posts : 43
   Posted 4/3/2008 12:25 AM (GMT -7)   
Glad Bag: Hope things went well today. Waiting to hear. Hope you find relief.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 4/3/2008 3:46 AM (GMT -7)   
Glad Bag, I hope things went good for you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 4/3/2008 5:10 AM (GMT -7)   
Glad....hope you have as good results form your seton that I had form mine. And no...no medical person knew what a seton was unless they were my surgeon or GI. My current GI looks at them as an archaic treatment but I loved the ease of the treatment and no major meds!!!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 4/3/2008 7:29 AM (GMT -7)   
Nat,

Best of luck to you!
You know that I will be thinking about you all day,don't forget to let me know how you are doing ;)

yours truly,
jen
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/3/2008 8:46 AM (GMT -7)   
Hi Nat wishing you a speedy recovery and hoping all goes well. How long does it take to recuperate from a seton? Keep in touch and let us know how you are.lol gail

dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/3/2008 3:30 PM (GMT -7)   
hey nat! i hope your procedure went ok today. i have been feeling like garbage lately. i am going to see my gi tomorrow ...whatever good that is going to accomplish!

but i do hope you are well ...talk soon! *hugs*
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/3/2008 3:37 PM (GMT -7)   

Nat,

I hope your procedure went smoothly and will be awaiting your report.

Take care and Hugs to ya
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/3/2008 3:40 PM (GMT -7)   
Hey Gladbag hope your procedure went well and you are home resting as comfortably as possible. Let us know how you are doing.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 4/3/2008 3:44 PM (GMT -7)   
Hey Glad Bag, I hope everything went well today.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/6/2008 11:45 AM (GMT -7)   
thanks everyone for the well wishes!

the procedure went fine, i am not sure how many i have down there now, but there are some red, and some blue, now i just need some white ones, and i will be fully patriotic..haha

hope you all have a nice Sunday, it is beautiful out here in Califonia this morning.

Nat
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/6/2008 11:51 AM (GMT -7)   
haha, you so funny :) glad to hear you did ok.

i slept until 11am today, it's so gloomy here i thought it was like 6am :/ i am pretty sure the sun isn't coming back to us ::sniffkles:: so yeah, when you are done with it ...would be so kind to send it directions to massachusetts! cricky!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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