You sound something like me. I was origionally diagnosed with moderate protosigmoditis. Only I was a lot sicker than I should've been. This mistake was probably because I only had the Sigmoidscope done upon my initial dx. My next GI was more interetsed in my symptoms & my complete health history. ( a number of things sttod out there, late growth spurt 19 or 20 before I stopped being a runt, back problems, etc.). But that was 18 or more mont5hs after the UC dx. Its been CD ever since. One of the main things is my joint pain. As my Rheumy ( & at least one ER doc) pointed out, my joint pain is more in keeping with CD. It doesn't predict disease like it does in UC. In fact I get IBD arthritis attacks when I'm virtually in remission.
Still, its a shock I know to hear it. If you want to talk about those emotions, I'm here for you..