argh ! hallllpppp...I can't walk anymore?

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meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 4/3/2008 11:52 AM (GMT -7)   
 
Hello Everyone!
         Wow its been awhile since I've been on.My recent problems is that I am losing my mobility +++++I have Crohn's and celiac disease.For the past 9 years or so I've been put on frequent bed and bowel rest.I've recently noticed a decrease in my mobility and an increase in ''D'' when I do walk.Yes,the more I walk the more I go.
Does anybody else have that problem,do you have any suggestions.
                                   Awaiting your good suggestions as always Anne (meandmyhunny)
P.S. My hunny told me that I ''better get walking''....I guess he just doesn't get it!
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/3/2008 12:01 PM (GMT -7)   

Hey there, I am sorry you have run into this problem  How about physicial therapy working with you on muscle strengtening and range of motion so you don't lose your mobility?

AS far as the stooling, what does your GI say?

Hugs to you
Kitt

 


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/3/2008 8:03 PM (GMT -7)   
Need to figure out a way to keep those muscles workin'. Use it or lose it...I watched this happen to my mother over a mental illness that she had. In her mind she couldn't use it. In reality she could and lost it.

I empathize with you on the bowels & movement though. Anytime I do any lengthly walking or stenuous activity such as hand gardening and the like, I bet I stop and go I don't know how many times. Are you sure you are staying hydrated enough?
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/3/2008 8:14 PM (GMT -7)   
YES!! I have that problem too. And people tend not to understand and attribute it to laziness. Do you have an increase in pain and spasming if you move your body at all, too?

Mine used to get worse with any movement, including arms. However, if that's not a problem for you, might you be able to do some upper-body exercise, like lifting hand-weights in bed?

The other thing I noticed is that the problem seemed to be linked to severe disease in the lowest part of the bowel. Are you on any topical meds? They might help.

I.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/3/2008 8:17 PM (GMT -7)   
ps. I hate to suggest this, but my feeling is that if you're this sick, then your current medical treatment is inadequate. Have your doctors suggested surgery, or some new course of treatment?

I.
Co-Moderator Crohn's Forum.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/3/2008 8:19 PM (GMT -7)   
Oh the spasms will stop me dead in my tracks. A searing sort of pain, starting in the pelvic area and traveling up my torso into my chest. When the bowel has moved everything is wonderful again.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 4/4/2008 7:45 AM (GMT -7)   
When you lay in bed to leg slides. Thats keeping legs straight and flat on the bed slide one leg up till the knee points to the ceiling alternate legs till you get strong enough to do both legs at one time. You MUST move your legs your body is starting to atrophy and since you have diarrhea you are not feeding your muscles properly . Try to eat protein so you so not lose anymore muscle mass.
take care,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/4/2008 12:31 PM (GMT -7)   
I think you need a good medical evaluation by your GI and explain these new symptoms. Your not making it up, now are you lazy. It would be terrible if you needed something medically done other than excercise and just ignored it. Take charge and take care of yourself. I feel for you, it must be very hard. Hoping you get better soon! Janice

meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 4/4/2008 2:05 PM (GMT -7)   
Crohn'snme... ''Your not making it up, now are you lazy.''
uhm what does that mean?No I'm not lazy
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2008 3:40 PM (GMT -7)   
I think Crohn'sme is talking about something I said in an earlier post about my own problems - that people didn't understand, and thought I was just lazy.

We believe you - I don't think anybody here at HW is saying you're lazy.

I.
Co-Moderator Crohn's Forum.

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