New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/3/2008 12:32 PM (GMT -7)   
Hello to all!  I have been going through a very long process of having every test under the sun done on me only to be told that I'm "normal" nothing is wrong.  I went to an awesome doctor yesterday who has ordered a blood test to make sure it's not Chron's disease but he feels that's the likelyhood.  I have a cousin who has it and my daughter has struggled with intestinal problems from about age 3.  After talking to the cousin today that has Chron's I feel pretty sure as well that this is the cause of my horrid abdominal pain.  I can't wait to get to know you and have some kind of support for the pain I feel.  No one in the medical world seems to believe that my pain is real, but believe me, IT IS!  I am 26 yrs old with two small children.  I've been married for 7 years and am delighted to have found this forum.
 
Have a wonderful day!
Samantha cool

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 4/3/2008 1:34 PM (GMT -7)   
Have you had a Small Bowel Follow Through or CT done yet? These were the two determining factors in my diagnosis. Hang in there.

Jason
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 180lbs). On prednisone and will be starting Tysabri Soon.
============================================


nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/3/2008 1:58 PM (GMT -7)   
I had an endoscopy, CT, Ultrasound, and HIDA scan (for gallbladder function) and all were normal.  However, I'm getting ready to have another type of CT done where they expand the bowels?  Also, they are doing a certain type of blood test and doing a lower scope as well as colonoscopy.  I'm hanging! lol

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2008 2:27 PM (GMT -7)   
Welcome and I am sorry you are going thru this. Unfortunately what you are going thru is the roughest part the dx delay. The only way to be for sure about crohn's is a colonscopy, but you can do other tests. I prefer a small bowel follow thru xray, but that was just because I was dx that way.
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
____________________________________
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/3/2008 2:29 PM (GMT -7)   
whats the small bowel folloe thru xray? isit that were u drink that liquid and they watch it travel thru ur body?

Mac_Gyver
Regular Member


Date Joined Aug 2007
Total Posts : 350
   Posted 4/3/2008 2:46 PM (GMT -7)   
The small bowel follow through is where you drink barium and then they proceed to take x rays every 15 minutes as it goes through.
Symptoms Of Crohn's June of '06 (21 years old 285lbs). Colonoscopy in Jan '07 no sign of Crohn's.
Surgery for a Fistula in April '07, diagnosed suggestive Crohn's in May '07. August '07 small bowel follow
through, diagnosed with Crohn's (23 years old 180lbs). On prednisone and will be starting Tysabri Soon.
============================================


Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/3/2008 2:49 PM (GMT -7)   
oh yh it is, i had all these when i was young, back then i didnt no the names of anything, i just used to scream and demand they wernt doing it, but they always did. I remember it tasting like licorice.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2008 3:19 PM (GMT -7)   
This stuff tastes like chalk and makes you poop white, and crohns may have not been bad enough to register in the xrays then....

Plus you would still likely need to have colonscopy.
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
____________________________________
All suggestions/options/opinions are caveated with please consult with your local health care provider...


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/3/2008 3:32 PM (GMT -7)   

I'd like to extend a warm welcome to you on your first visit to Healing Well! To help you get the most out of the Crohn's  Forum please take the time to browse our threads and post wherever your comfortable.

The members are a wealth of information and you will soon  know a lot about CD. 

I am looking forward to getting to know you better.
Hugs to you
Kitt



 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/3/2008 3:37 PM (GMT -7)   
Welcome Samantha to Healingwell. As you can see there are alot of kind and supportive people on this board who DO understand everything you too are going thru. Look forward to hearing more from you soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/3/2008 5:35 PM (GMT -7)   
Hi Just wanted to add my welcome and say that this is a great place for help and info. Yes the colonscope test should help with diagnoses. I have crohn's and was glad to find this place to. lol gail

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 4/4/2008 3:49 AM (GMT -7)   
Hi and Welcome to Healing Well. This is an outstanding place for info or if you need to vent.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/4/2008 12:28 PM (GMT -7)   
Thank you all *SO* much for your warm welcome.  They have me scheduled for the Lower GI and Colonoscopy on May 8th, hopefully they'll get answers then.  It's nice to know you're not alone and going crazy.  It's frustrating when they keep doing tests and everything comes back normal.  Not that I want something to be wrong, but I'm sure you all understand =)
 
Thank you again and I'll keep you updated!
*hugs*
Samantha tongue

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/4/2008 1:02 PM (GMT -7)   
Hi Samantha and Welcome! I was diagnosed with a Colonoscopy, although I went through the other tests too. I just had a Colonoscopy and they gave me OSMO Prep pills instead of the drink. It was much easier going down although it had a delayed reaction. I hope they get to the bottom of this for you. This is a wealth of information for you. Take care of youself! Janice

It's in the bag
Regular Member


Date Joined Aug 2007
Total Posts : 122
   Posted 4/4/2008 3:39 PM (GMT -7)   
nsgrimm welcome to the forum :) Everyoe here is very cool about letting you complain and vent and full of helpful tips and information. It's awful not knowing what's wrong...I totally understand that you'd rather hear what you're sick with rather then "I don't know what's wrong with you." Whatever it is though it'll get better and you'll be able to get through. We all do even though sometimes it sucks and can seem overwhelming. Welcome again... :)
Asacol 400mg x 8 dly , 50 mg Mercaptapurine x 1 dly , 40 mg Omeprazole x1 dly , Remicade every 2 months , Multivitamin , Fish Oil ,

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:59 AM (GMT -7)
There are a total of 2,735,216 posts in 301,284 threads.
View Active Threads


Who's Online
This forum has 151388 registered members. Please welcome our newest member, ebinease.
205 Guest(s), 1 Registered Member(s) are currently online.  Details
NiceCupOfTea


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer