queston for ladies

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New Member

Date Joined Apr 2008
Total Posts : 13
   Posted 4/4/2008 4:37 AM (GMT -6)   
Hi Was wondering if any of you have  Vulvar Crohn's disease as I have recently been diagnosied with it and I don't know what will happen to my vagina sad
I Am SO Surprised!!!
I do'n know what could be the next gift that crohn will give me!!

New Member

Date Joined Apr 2008
Total Posts : 13
   Posted 4/4/2008 4:39 AM (GMT -6)   
27 year's old female, Diagnosed with Crohn's disease 5 years ago,perianal fissure,Currently on Pentasa tablet 6 pills/3x day and PENTASA Suppositories 1g.Vitamins + B12 Injections

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2008 4:43 AM (GMT -6)   
Hello Nina, and welcome to HW. I hope you find a lot of support here, as well as all the answers you need.

I've never heard of vulvar Crohn's disease. Do you mean fistulas, or are you having other problems too?

Co-Moderator Crohn's Forum.

New Member

Date Joined Apr 2008
Total Posts : 13
   Posted 4/5/2008 4:30 AM (GMT -6)   
Crohn's disease of the vulva is a rare disease.I am the unluckiest person in the world.
also you can find some information about it in pubmed and also here

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 4/5/2008 2:14 PM (GMT -6)   
Wow, I've never heard of this before. I am so sorry you're facing it...

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 4/5/2008 9:04 PM (GMT -6)   
nina-b, welcome to Healing Well! I am so sorry that you have developed this. From what I had read before, this can be quite uncomfortable, if not downright painful. As you know, this is a quite rare extraintestinal manifestation [EIM] of Crohn's. I have my share of the wierd EIMs also. Thankfully none involve the "girly" parts. Can you tell us how your doctor plans to treat your problem? I am quite curious.

Glad you joined us! ~~ Ides
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 4/6/2008 4:51 PM (GMT -6)   
yes--I'm with you. I didn't know we had an official diagnosis. Years ago my gyn sent out samples of my blisters to make sure it wasn't herpes or the like. My own GI thought my disfigured female area and the blisters might be something scary but alas, it's just the crohn's. I have several types of symptoms, the biggest being little blisters, little pimple-looking things, and a few stallagtites! I can't tolerate metronidazole. When on prednisone, they all seemed to shrink. With lots of D, it all gets worse.

My gyn says it like this: lots of women have cauliflower looking terrible infections and warts. I just have a few extra Georgia O'Keefe wrinkles and additions.

Keeping the area dry really seems to help. Popping the blisters doesn't--makes me more uncomfortable. Please keep us updated. I'd love to know if there's more treatment out there!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa

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