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elroque
Regular Member


Date Joined Apr 2008
Total Posts : 38
   Posted 4/4/2008 7:25 PM (GMT -7)   
I was diagnosed with Crohns back in September 2007 (though it seems like a lifetime ago). My biggest symptoms other than the diarrhea are arthritis, mouth sores and lethargy. I have been on Prednisone (60-40 mg) since July 07 and have been on Imuran, Ultracet and Celebrex since October 2007. The symptoms listed above are still a bit out of control and the diarrhea.....well I think I have just come to the conclusion that it will always be there waiting to jump out at the most inopportune time. My GI is putting me on Humira along with the Imuran, Prednisone, Celebrex and Ultracet (without this I would never get any sleep since the pain is pretty killer) but of course my insurance is being hesitant to approve paying for it until they deem it is a "total necessity"-right like I would like to inject that just for kicks. Anyway I just wanted to come here to connect with others who are dealing with this stuff and get information, advise from anyone having to deal with Crohns. Best of luck and warmest of wishes.

Rock
 
Love many, trust few, but always paddle your own canoe....


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 4/4/2008 7:41 PM (GMT -7)   
Welcome,

I'm sure you will find this site very informative. The people are very friendly and always willing to help and share their experiences. I hope your insurance company approves your Humira. Maybe that will give you some relief. I am trying humira myself next week. I to am on prednisone, it has been my saviour many times over the last 27 years. Have you talked with your Dr. about imodium to help with the diarrhea? If I didn't take 2 imodium every morning, I wouldn't be able to leave the house. Keep us posted on your progress.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2008 7:42 PM (GMT -7)   
Hi there elroque,

I just started a whole new thread to welcome you. I'll go and delete it :-)

It's great to meat you, and I hope you find a lot of support and friendship here.

Ivy.
Co-Moderator Crohn's Forum.


ALI9
Regular Member


Date Joined Jan 2008
Total Posts : 95
   Posted 4/4/2008 9:00 PM (GMT -7)   

Welcome,

       You will find his site very helpful in many ways,dealing with Insurance companys can be so frustrating. I had a hard time a few years ago with them paying for remicade, I ended up having a resection instead. about a year and a half later my crohns came back and my GI went to bat agian and finally got it approved, but it took alot of work on his part. I havent had any problems with them since with any of my treatments including humria so good luck to you. I also agree about talking to your doc about lomotil it is worth asking for.


Dx: Crohns 1987 probually had since 1982 resections in 1992 an 2002
Gallbladder removed in 1986 The list can go on and on (if you know whatI mean)
Married 25 yr with a 17yr old son


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/4/2008 9:07 PM (GMT -7)   
Hello Elroque,

Glad you found this forum. It has been very helpful to me and the folks are very friendly. I suggest you search through past threads because there is tons of great stuff! Don't be ashamed of asking any type of question -- as you will see no one is bashful here!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 4/5/2008 3:03 AM (GMT -7)   
Hi Elroque,
Welcome to Healing Well.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/5/2008 3:40 PM (GMT -7)   
Hi Elroque, Welcome! I just took my first dose of Humira today. I called my insurance Thursday and didn't get a good answer and asked for a supervisor after being persistant to say the least it was delivered the next day. I am finding that I am my own advocate and being pushy isn't such a bad thing. Best of luck with everything and take care. Janice Oregon!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/5/2008 3:45 PM (GMT -7)   
Welcome Elroque to Healingwell. Hopefully the insurance will go thru and you will get some relief. I look forward to hearing more from you.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/5/2008 5:49 PM (GMT -7)   
Hi and welcome to Healing Well it is a good place foe all kinds of support and glad you are with us Sure helps me and it has loads of info and great variety . lol gail

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/5/2008 7:49 PM (GMT -7)   
Welcome to HealingWell Rock, sorry you must be here.
You will find that with time, ( & a good GI) that the right combo of meds & dosing will put you into remission. In other words, you won't be worrying about the big D all the time.
Remember also, when you are diagnosed with a chronic & serious illness, your mind & body actually go into the grieving procees. Just like losing a loved one.

Sincerely,
Matthew.

elroque
Regular Member


Date Joined Apr 2008
Total Posts : 38
   Posted 4/7/2008 7:30 PM (GMT -7)   
Wow! Thank you all so much for the kind words! You don't know how awesome it is to finally be able to correspond with others who actually know EXACTLY what I feel/am going through.
 
In regards to the Humira, the insurance does not want to pay up. Amazing, with what I pay them this should be pocket change for them...But do not fret I am NOT going to give up. There has to be some light at the end of this tunnel for me and I will be d*mned if I allow some insurance company to tell me what I can/cannot take because they refuse to pay. I found links to programs that may assist in getting the Humira paid for on this site. Again many thanks to all of you!!
Rock
 
Love many, trust few, but always paddle your own canoe....


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/7/2008 7:37 PM (GMT -7)   
Fight it, When I first went on Remicade I had to fight tooth and nail. I literally threatened a lawyer. Now on Humira, it took less than 12 hours. I am very persistant in what I want and don't take no for an answer. You arer your best ally. Push, push push for what you need!!! Best wishes, Janice

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 4/7/2008 8:25 PM (GMT -7)   
Yes, put up the fight for it! Maybe your GI can give them a ring?

My med regime is almost identical to yours: Pred, Imuran (Azasan), Celebrex, Ultracet, then I also take Pentasa, Humira, and Entocort. This little cocktail currently has me in almost complete remission.

Oh, and you may want to ask your Doc about taking a soluble fiber supplement. Three tablespoons of the sugar sweetened Metamucil is an amazing help for us Crohnnies. I took it for three years prior to any meds. I can honestly say that aside from Prednisone, Metamucil has helped more than anything else.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


elroque
Regular Member


Date Joined Apr 2008
Total Posts : 38
   Posted 4/10/2008 5:40 PM (GMT -7)   
Just an FYI my insurance is finally paying for my Humira and I only have to pay the $25 monthly co-pay. I am doing my first four injections tonight. Though I am a bit ansy about poking myself four times I am excited to hopefully feel/see some results. YAY!!!

Rock
 
Love many, trust few, but always paddle your own canoe....


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/10/2008 6:08 PM (GMT -7)   
Hey Rock! Was your mom a member of this forum awhile back? There was a lady that posted on her often about her young daughter w/ crohns. Her name was Rock. I figure it is a unique name and there could be a connection! Either way, welcome!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


elroque
Regular Member


Date Joined Apr 2008
Total Posts : 38
   Posted 4/11/2008 2:22 PM (GMT -7)   
Whoa!! What a coincidence but no that is not my mom. I am the first in my family (immediate and extended) to be diagnosed with Crohns but that is pretty funny!

Rock
 
Love many, trust few, but always paddle your own canoe....

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