HELP! I SCREWED UP MY FIRST HUMIRA INJECTION

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Crohn'snme
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Date Joined Feb 2007
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   Posted 4/5/2008 12:07 PM (GMT -7)   
I have been very sick.  I had my colonoscopy on Tuesday and my doctor wrote my script for Humira, Remicade stopped working. Problem is I screwed up my first injection so my husband did the other four and they hurt like a dickens.  Anyway, any thoughts on how to replace the one dose I lost and am going to need in 15 days?  I can't be the only one who has ever done this?? Right?

Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 4/5/2008 12:21 PM (GMT -7)   
I did my first injections in the hospital so a nurse could show me how to do it since I've never done it before.  The very first one out of the four I screwed up big time!  I went on with the other three initial shots.  I asked if I needed to replace the one that I screwed up on and the nurse told me no since they other three were sucessful.  Two weeks later I did my other two injections.  Also my GI said it can up to three months to feel any affects of the Humira so patience is the key.  Good luck and hang in there!

April
 
If God brings you to it, He will bring you through it


FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 4/5/2008 12:25 PM (GMT -7)   
Hello Crohn'snme,

Please call your pharmacy or Abbott -- the Humira company, especially if you use their insurance program. I am sure they have dealt with situatiions such as this before. And maybe they will replace it for free!!

I am very sorry you are feeling so poorly. I hope the Humira will make you 'right as rain' very shortly!!

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 4/5/2008 12:26 PM (GMT -7)   
Thank-You so much for responding. How long have you been on Humira? Has it helped at all? Any information you can share would be appreciated. Janice

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/5/2008 1:13 PM (GMT -7)   
I would contact your GI. My GI only had me do 2 injections as my loading dose; he said he and the other GIs in their practice had just attended a seminar on Humira and that was being recommended now - but others have had to do 4 doses intially.

For the record, the 2 doses worked great for me and I was symptom free within a week of them. Last month was a year on Humira for me and it's still working great.

All that to say - your GI may decide that since you got the other 4 doses, that that was enough for now.

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 4/5/2008 1:26 PM (GMT -7)   
Thank-You for responding. I'm so glad to hear you received some relief. I thought I would call my GI on monday and see what he says. I'm praying for the same outcome that you received. He did write the script for the initial 4 doses and then 2 doses 15 days later, just now I only have 1 dose to give myself. I'm used to the injectables and I was even giving myself shots of Methotrexate, but this shot came out so fast that it threw me back and I totally screwed up. Thanks again for sharing. Enjoy your weekend. Janice-Oregon

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/5/2008 7:59 PM (GMT -7)   
Sorry, Janice, I don't quite understand what happened. Were you trying to get the air bubbles out of the syringe and the Humira gushed out too?

I.
Co-Moderator Crohn's Forum.


Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 4/5/2008 9:17 PM (GMT -7)   
No, I jumped when I injected the first one and the medicine squirted in the air.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/6/2008 12:52 PM (GMT -7)   
Oh, were you using the pens? I have heard of people accidently engaging the medicine or jolting and it spraying everywhere and the people who make Humira (whoever they are?) have sent a replacement for free to them.

Call your GI, double check that they want you to take 2 next time. If they do, I'd call Humira and tell them what happened. I bet they send you another one.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/6/2008 1:45 PM (GMT -7)   

I had the first 4 injections done at my GI office one of the nurses did 2 of them and I did the other 2.  After the burning pain of the 1st one we iced my legs ( I dont have enough scar free, stretch mark free fatty area skin on my belly they even told me just use my legs or if someone else gives me the shot it can go SQ in the arm).  The ice still didnt help the burning and I felt that I wanted to rip the pen away from my leg to stop the pain. 

My refills are only the syringes, I still ice my leg ***Make sure the alcohol swab dries completelly before injection since the alcohol in a cut burns it too can make this more painful***

I still have a burning feeling when I inject but at least with the syringes I can control the speed at which the humira goes in.  The pharmacy screwed up and gave me the pens last month, I was off them for almost 2 months from a surgical wound infection so I will use them at the last possible chance. 

I have found that the humira helps so much and I dont get the side effects that I use to get from the remicade.  I still get headaches from it and I do the shot 1 every week the normal dose isnt enough for me.  The headaches dont last for as many days as my ones from the remicade did plus rather than excedrine tension headache (which is just tylenol and caffeine)  or my migraine meds for remicade headaches the humira ones I typically can take just tylenol


Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 4/6/2008 8:44 PM (GMT -7)   
When I first began taking Humira 2 years ago, I was started on only one shot. I have taken one shot every two weeks since then (with a few exceptions for illness or surgery) and have had great success. It did take me about three months to get into a complete remission though. Good luck.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/6/2008 9:21 PM (GMT -7)   
Hi Guys,  Thank-You sooooooooooooooooo much for your responses.  I just woke up and I plan on contacting the makers of Humira to see if they will give me a replacement.  Keep your fingers crossed for me.  I would rather have a syringe that I can inject myself, but whatever.  My husband is willing ot inject the pens. I think they hurt alot more.  Also, the burning sensation is really wierd.  I will try ice though.   Thanks for telling me about your headache.  I had such a bad headache yesterday after the injections and I don't get headaches.  I didn't get really sick till this afternoon so maybe there's hope for Humira.  I have a positive outlook and hope for the best.  Your stories of Humira working really help!  Thanks so much, you guys are the best!

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 4/6/2008 9:28 PM (GMT -7)   
P.S. YOU GUYS ARE THE BEST!!!

Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 111
   Posted 4/8/2008 8:06 PM (GMT -7)   

If you are using the Humira pens, then take it out of the fridge for a half an hour before you inject, so it's not so cold when you inject it. That helps very much with the pain.


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/8/2008 9:00 PM (GMT -7)   
My hubby won't even watch me inject, it terrifies him. When the pharmacy sent me pens instead of syringes, I freaked out and begged him to do it for me. He refused. I did it, and survived, thanks to the great tips people on here gave. you're very lucky to have someone willing to do it!

I hope they send you a replacement =) Good luck!

Macslady
Regular Member


Date Joined Oct 2004
Total Posts : 45
   Posted 4/9/2008 10:32 AM (GMT -7)   
Curious to know if you got a Humira replacement, I've wondered what I would do if that happened to me. 
 
I didn't do the loading dose because I'd been on Remicade for several years.  I had the first Humira shot in the Dr. office and it hurt so bad that I didn't think I could do it to myself.  I read the info and watched the cd and dreaded having to do it.  When the time came, I took the Humira out of the fridge and set the timer for 20 minutes.  I iced the area for just a couple of minutes.  I never felt it!  I believe it only hurt in the Dr. office because it was straight from the fridge and we didn't use any ice.  My sister, who gives herself insulin, told me that injections in the stomach hurt less than the thigh.  Now I believe her.
 
Jan

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 4/9/2008 4:40 PM (GMT -7)   
Hi Guys, I called on Monday and Humira said they would be happy to send one out. Only thing they had to send it to my Doctors. So my first day out of the house in 3 weeks besides going to the ER or Hospital. I went and got it. They actually sent me two extra pens. I was on Methotrexate and injected myself weekly, that didn't hurt nearly as much as these darn pens. Even my bee sting injection doesn't hurt like this. I have an amazing husband who will do anythig for me and am very thankful he's willing to take this challenge on. Knowing how it hurts, prevents me from being able to do it. I will try letting it get to room temp and icing, anything to help!!!!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/9/2008 4:57 PM (GMT -7)   
Yea!! Yea!!! I am so glad it worked out for you!! Just distract yourself during the injection -- hold your breath or count from one to 10 very loudly! You can make this happen! It is worth it!

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/9/2008 9:44 PM (GMT -7)   
I'm so glad!!

Yes, ice the heck out of that area prior and let it come to room temp.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/10/2008 6:58 AM (GMT -7)   
Thanks guys for your advice! I already feel a bit better this week so I know it's worth it. Seems crazy though that it has to hurt so much! No pain no Gain???

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/11/2008 10:54 PM (GMT -7)   
Hey, for those of you thinking about Humira. I have seen a big improvement on Humira versus Remicade. I thought Remicade was wonderful, wellhello!!! Humira is my new drug of choice. After a few days I saw improvement, amazing! For me, it was alot easier to get approved than Remicade. I could only hope that everyone has the same opportunity. I think its' all about insurance and money, sorry but true.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/16/2008 9:53 PM (GMT -7)   
Okay, ten days out on Humira feel sooooooooooooooooooooooooooooooooooooooooooo much better!!!! The pain is almost long existent and everything is getting better. Still tired and fatigued but had that with Remicade. So worth taking this, it has helped so much!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/17/2008 1:27 AM (GMT -7)   
That's brilliant! I'm so happy for you.
Co-Moderator Crohn's Forum.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/19/2008 6:41 PM (GMT -7)   
Hi Guys, Second dosing of Humira. I took the advice, iced and room temperature the injections. My husband gave them to me again. Still hurt but not nearly as bad. I am feeling so much better. Pain 1-3 instead of a 10. Bowel movements 1-3 instead of seriously 30. Eating food instead of liquid diet. Just generally feeling so much better and of course happier. If anyone is getting ready to take Humira, please use the advice they give of icing and room temp, it really helps. Oh and I pinched my skin too, or stomach fat! LOL

soccergirl
Veteran Member


Date Joined Mar 2003
Total Posts : 604
   Posted 4/20/2008 8:21 PM (GMT -7)   
I just read all the posts here and I'm so happy to read a good story with a good ending. It just proves how valuable this forum and the people here are. I just love everyone here!

Hey, Crohn'snme, I noticed that you signed one of your posts with "Oregon." Is that where you're from? I live in Oregon too. Maybe we can get together or at least talk on the phone? No pressure! I'm really glad you are going better.
Hugs,
Clara
 
Dx in 1984 with Crohn's Disease.  In 1988 my terminal Ileum was removed due to inflamation that caused it to rupture.  I had surgery in February 2007 to remove more of my intestines due to scar tissue.  I then developed a very bad abdominal infection and was on IV antibiotics until June 2007.  I had chronic URQ pain which has gotten better.  I'm now in the process of getting off of the pain patch.   

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