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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/5/2008 3:49 PM (GMT -7)   
Just wanted to let you know I tried your saltines with a little margarine on it.  It worked!  Just sent hubby to the store to get me more crackers.  I am starting to feel a little better, but still have that yucky gut when I first wake up, so I will try eating some of the crackers first.  Good idea!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/6/2008 5:57 AM (GMT -7)   
I have no idea why it works. Its what my mom would give me when I was a little kid. Sometimes she would float the crackers in my chicken soup. But, just a couple with a little smear seem to settle things down. Maybe something in the fat from the butter/marg has a reaction with the acids in the stomach? More a question for the medical/science board members

Just glad it worked for you. I hope you are feeling better. I am gradually feeling better too. I spoke to my doctor late Friday, and now after re-looking at all the tests, he's not sure what was happening again. I thought we had it figured out. But we are back to square one. There doesn't seem to be an adhesion blocking it, it didn't seem to be folded over on itself, but basically my bowel had gone to sleep. The question is why and how to fix it.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2008 9:32 AM (GMT -7)   
Zanne you have had 3 resections and I have had 2 myself, along with a bunch of other types of surgeries. Just curious before all these obstructive episodes what is your daily life with Crohns like? We kinda have similar issues and my GI says most of my problems are due to "mechanical" issues from the resections. I think I too live with alot of Gastritis type issues more than Crohns type now. It seems as everyday whether its a minor way or more, I am constantly aware I have Crohns. I have changed my diet drastically, live on low residue diet, take Probiotics, etc. Just curious, what your normal days are like. Do you still work outside the home or are you on disability. I have been off work the past 2 weeks becuz of my knee surg, and have another week to go, but just can't imagine having to get back up in the morning and back to work. I am just starting to really get sick of this sh**.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 4/7/2008 10:31 AM (GMT -7)   
Hi Zanne,

I'm glad you wrote to let us know how you are doing and that you are not in the hospital with a gastric tube and other wonderful things. It is good that your GI is putting the puzzle together now instead of the ER doctors you were contending with. Do you take imodium for your D? I just wondered because I do and have been told that it can paralys the bowel. Are you having bowel sound, etc.? Keep me posted, as we have both had 3 resections and a lifetime of pred. etc.. Take care!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/7/2008 3:42 PM (GMT -7)   
I am doing OK for now. BUT, I am really taking it day by day right now, and I HATE that. I don't like that one minute I'm fine (by my standards) and the next, I'm literally sick enough to be admitted to the hospital. I have spoken with my doctor at length in the last few days, and for the time being, he is as stumped as me. It doesn't appear to be adhesions which is what we thought. It doesn't appear to be my intestine folded over, which was what came out of the ER visit. Now, he isn't sure what is happening, but that for whatever reason, my bowel just decides to go to sleep. It may be that exploratory lap surgery may be in my near future. If these episodes keep happening then we will have to consider surgery.

Julia, I do take Immodium, but not when this is going on. I also take Bentyl, but not when this is going on. My doctor had me take the bentyl once while I was obstructed to see if it would relieve some of the pressure, but all it did was make it last longer.

Nanners, As far as my day to day, when this isn't happening: I work part-time, and have a husband and 2 daughters. 1 in college, who lives at home, and 1 who is a senior in high school. Both will be living away next year, but still pretty locally, not out of state. I work 1 day a week in the wholesale industry and then if there is more work that needs to be done, I will either go in another day or bring it home with me. And then I babysit for a friends 5 month old 2 days a week. So I keep pretty busy between my doctors appointments, work, and family. I have changed my diet drastically to what I would say is more no residue. I eat basically no fruit or vegetables on a regular basis. Occassionally I can get away with a bite or two of something, but not much. Potatoes, bananas, sweet potato and thats about it. I am aware everyday that I have CD, but I refuse to let it control me. Since there is a strong family component for me, I really need to set a good example for my daughters. I don't want them to see this as a horrible thing. (Eventhough at times it certainly is) I need them to see it as something that can be dealt with and that you can still have a good life, but you may have to make accomodations. I've never worked fulltime since my diagnosis. I know my body can't take it. I can babysit for my friend, because when the baby sleeps, so do I. My house isn't nearly as clean as I would like it, but who cares. There are days when getting up and getting going is just really hard, but on those days most of the time I can taper back what I have scheduled and take it easier.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2008 5:06 PM (GMT -7)   
Thanks Zanne for that info. I work full time for a major Wall Street firm assistanting 5 stockbrokers. I know it sounds high stress, but it really isn't that bad. Once in awhile it can be more stressful, but most days are manageable. I work from 5:30 AM to 2:00 PM. My bosses and family are totally supportive of me and my Crohns disease. But somedays, like this past week, I wonder if I can continue doing this. I had to get my knee surgery disability extended becuz I have been so sick from the stupid Pain meds I still haven't made it to physical therapy. Will start that next Monday, I really feel I need it, becuz my knee still feels kinda wobbly and unstable. You should see me go upstairs, I have to go up one step at a time like a little kid. Go downstairs is even worse.

The reason I asked all that was because I will go 6-9 weeks feeling pretty good and then one of the nausea bouts hits and I am down for almost a week. Its getting me really down having these bouts always come and go. So it sounds like although I do work part time our Crohns life is pretty similar.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/7/2008 7:34 PM (GMT -7)   
When I was going through the constant gastritis, I was in and out of the hospital. Eventually I just stopped going because I knew what the treatment was, clear liquids. But each episode took about 10 days to clear up, until I started catching on to the first signs of it and going to clear liquids right away. Then I was able to get it down to maybe 4 or 5 days. But I was out of work during each of those. At the time, I was only working one job, the one in wholesale, I'm a showroom manager, so basically if it has to be done, I did it. Customer Service, Sales, Display, opening Boxes, Packing Boxes, Taking the Trash Out, Paying the Commissions, You Name it I Did it. I was also working 3 days a week, and taking work home. But the New England market moved and our expenses went up dramatically so my boss needed to cut back on my hours. Its all part of my mantra that things happen for a reason. I never would quit my job, no matter how sick I got, but both my boss and I realized that we needed to make changes and it benefited both of us. So he does more, and I do less. Watching the baby isn't really a job, its just for a few more months until he's a little older. My friend doesn't want to put him in Daycare until he's about 1, and I love babies. Plus, If I don't feel well, we just sit and snuggle. If I do feel good, we run my errands. So its win/win.

I don't know how you work full time. Especially so early! That's my worst time of the day. But we CDers always find a way to do what needs to be done! Make sure you get to PT though. I've heard horror stories of people who didn't do their PT, and you have enough other stuff to deal with.

What do you eat for your low residue diet? I always wonder what others eat. Some people wonder how I can survive eating the way I do. So I wonder if I'm just really off base, or if other CDers eat the same way.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/8/2008 10:11 AM (GMT -7)   
My low res diet consists of alot of chicken, fish and turkey. Funny thing is I am married to a mexican and some of the food really agrees with me. Mexican food (not the taco shop kind) is usually cooked in a very natural way. For example my husband makes me these breakfast burritos. They consist of scrambled eggs with ham and chopped potatoes that have first been boiled then lightly browned in a pan with the ham and then we put whole cooked beans in them. The beans are not the typical pinto beans, they are a bean from Peru, similar to pinto beans but better for you. And I wrap all that up in a homemade flour tortilla that we get from a place near the house. He also makes this mexican style oatmeal for me. Its more like a liquid you drink than something you eat with a spoon and is sweetened with a little cinnamon. I also eat alot of rice and potatoes. So basically one of the meats mentioned above with rice and beans or potatoes (not fried) is a usual meal. I eat alot of the same foods all the time. Its not super healthy to tell you the truth, but its what my body tolerates. So I do what I can do. Hope that helps.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/8/2008 1:59 PM (GMT -7)   
So I guess we are a lot alike. I also tend to eat the same things over and over again. I find things that agree with me and stick with it. It gets hard to cook for the rest of the family, but I manage to find interesting things for them and keep my things rather bland. Now that my girls are often working or out at dinner time, I'm cooking a lot more fish and that is really working for me. I always cook extra for the next day. Usually when I go to the fish market I get tuna steaks, very pricey, but they have never upset my tummy and they satisfy my meat cravings without killing me. I cook them up and keep them in the fridge for lunches, or for dinner when everyone else is having steak.

But, I've never been able to eat beans. I wish I could, but so far I haven't found any that don't just ruin me. Rice though is one of my staples.

Take care and I hope you made it to PT today! :-)
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/9/2008 9:44 AM (GMT -7)   
Nope no PT yet. The first appt I could get is for Monday, April 14th. So my ortho has extended my leave for another week. I and hubby have been going out walking everyday for the past few days trying to get the knee a little stronger. I still have a little limp and some pain if I move it the wrong way. I wish they would have at least showed me some exercises to do at home. I could have been doing more at home. Oh well.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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