Urgh! NOT One of My Better Mornings !!

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CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/6/2008 3:38 AM (GMT -7)   
I'm so darn tired this AM! Plus my tummy area is on fire for some reason. I'm so out of touch w/the forum I'm not even finding many threads to respond to that I can offer any advice or share an experience with. And I'm sorry for that. 8 more days 'til I see Dr Tremaine at Mayo. Whachya wanna bet I'll feel fine that day and the next? Then be miserable the entire drive home? Ach! Such a negative attitude!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/6/2008 3:56 AM (GMT -7)   
Hi,
Hang in there as best as you can..8 days can seem like an eternity when you dont feel good. Take it easy and rest when you need to, or can.
Take Care
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/6/2008 6:49 AM (GMT -7)   
Thanks, PomMom. I've been reading thru the miles of posts I've missed due to not dropping in much lately. I'm feeling MUCH better now, thank you. Thank God I respond so well to Tylenol Rapid Release tabs!!!

Wow! You've been thru the wringer w/your Crohn's!! Makes me ashamed of my whining in my first post of this thread! My Crohn's symptoms began in mid 1975. Dx'd at Mayo in early 1976. Back to Mayo for an emergency resection for obstruction in early 1978. THEN "I" was BLESSED w/a 20 year remission of disease activity!!!! And even since the Crohn's returned in 1998 I've been blessed w/mostly symptomatic remission. Even now my symptoms are NO WHERE near so bad as they were at any time during those first 2 1/2 years. Yet look what all YOU have been thru!!! You gotta be one tough cookie, PomMom! (((hugs))) to you. And my utmost respect.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/6/2008 7:49 AM (GMT -7)   
Hello CrohnieToo,

Eight days is so long, can you call and see if there has been a cancelation so you can get in there sooner?? I too am usually in glowing health when I see the Dr. Rosey cheeks and bright eyes. I feel like an idiot! I suggest keeping a list of all you have experiened lately so you won't forget or freeze up. Take care!

Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/6/2008 7:53 AM (GMT -7)   
CrohnieToo,So glad to hear you are feeling better and tylenol worked for you. A 20 year remission,,,that is fantastic.Now to get the symptoms back under control, so you can go climb Mt. Everest.(just a attempt at humor) but seriously, controlling the symptoms is a major goal.awwwww, i aint that tough. Thank you for saying that. I do have some whiney days.and i am glad i like to stay home and sleep. i dont go out much.weather is getting Spring like. we have started our veg. garden. That is where I love to be. kinda takes my mind off the health problems for a little while. Take Care.
oh btw, i like your signature line. that's funny.
 
 
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.about 26 meds total.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/6/2008 8:06 AM (GMT -7)   
Hi PomMom,

Do they have toilets every hundred yards on the path up to the top of Mt. Everest??? ;-)

I agree about being outside. Soaking in the new life that is springing up all around is so encouraging to me. I'm too tied after working all day to do actual digging this year, so I am doing container gardening. I have a whole crop of bulbs coming up. I can't wait for the flowers! Take care.

Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/6/2008 8:29 AM (GMT -7)   

we sure would need a lot of potty breaks.heeehhee

I envy you with flowers. I cant do anything with flowers.We have potatoes, cabbage, squash and tomatoes planted. Still have a lot more vegs to plant.We always wind up with more  vegs than we need and end up giving a lot away. Have a super day.

 

 

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 4/6/2008 11:33 AM (GMT -7)   
I'm so sorry C2! I have been SO out of touch with you, and I apologize for that. Life has been crazy, and I'll have to fill you in soon. Be sure to let us know how your apt. goes at Mayo. What is the date?

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/6/2008 4:31 PM (GMT -7)   
Awww, you guys and your spring planting! Sheesh! Here in MI we are almost a month away from daring to start anything in a garden! My best plantings are trees. Hubby does well w/the tomatoes. Flowers ...... we don't get along so well. I just look at them after planting them and they wilt. My best Hens & Chicks had a great Rooster when I bought it and planted it. My other Hens and Chicks were just nice and just hens and chicks. Guess which one struggled along and then croaked?? *sigh* I didn't know ANYONE could kill Hens and Chicks!

CrohnieMomX2, You haven't been any more negligent than I have been about staying in contact! It sounds like you've been as distracted as I have been. I've neglected so many of my online friends. Keah may never forgive me!

My appointment at Mayo is the 14th, we leave next Saturday morning. Medley and I agreed to try the PCE but I flunked the Patency Capsule so hopefully Mayo can get some better pictures than the locals here can. Or at least we know the Mayo radiologists have a LOT more experience reading the radiology procedures than the local radiologists could ever possibly gain. I already know what Dr Tremaine is going to suggest - again - and I already know I'm not doing THAT badly - yet.

My neighbor also has to return to Mayo so we were able to schedule our starting appointments the same day and barring any surprises should be done w/testing and results and recommendations the same day or w/in 1-2 days of each other. She likes the casinos and I don't so I stopped in to Barnes & Noble and bought 4 thick books of fiction. She can do the casinos and I can get in some good reads.

We'll have to get together at First Wok and bring each other up to date on what's been going on with us and our families. Just call or e-mail, both are still the same, since you are the one busiest w/family and teaching. I"m either home or on the run.

Its my own fault anyway. I quit taking the Pentasa. Its been a wonderful 12 month or so vacation from those 16 capsules a day - but - time to grow up and take my meds. Obviously, my Crohn's needs both the Imuran AND those 16 Pentasa capsules a day to be kept happy and quiet. *sigh* It was SOOOO nice just taking those 2 Imuran tabs a day .... ah well. 16 capsules beats a resection!!! Hopefully.
 
By the way, FallColors, I LOVE your sense of humor!!! And it so happens Fall has usually been my favorite time of year and definitely the fall color spectrum is my favorite color range. Earth tones and fall colors .... yeah!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 4/6/2008 5:35:38 PM (GMT-6)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/6/2008 4:35 PM (GMT -7)   
Hey, whats up with all these negative waves ? Dont make me come up there.....Sorry you feel so bad C2,,hope you get to feeling better,,but only after you go to Mayo,,hows that??
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/6/2008 4:37 PM (GMT -7)   
Hey, hey, Sniper!!! How are YOU doing? And Camilla? Thanks for the empathy and the good wishes!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2008 8:20 AM (GMT -7)   
Hey C2 longtime no see. I sure do miss so many of the oldies. Really do miss all you guys humor and knowledge. I had my knee scoped a couple of weeks ago and the pain meds tore my ol guts up BAD! I am doing a little better, but every morning that nagging ol nausea is creeping back. I have been using Zofran 8 mg. every am for about a year now, but they don't seem to be helpig as much. As much as I am hating it I think I too will be heading back to the doc. Your so lucky you live in the midwest and have Mayo to go to. I hope you get your much needed answers. As for the Pentasa, I learned the hardway with my Asacol. After my last resection my now fired GI told me you don't need the Asacol anymore you can stop, well I took his advice and started getting sick again. Ended up getting a new GI and back on the Asacol and things got back to the way the were. Hope all goes well, and look forward to hearing the reports on your Mayo visit.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/7/2008 9:01 AM (GMT -7)   
Hi Just wanted to say hope your Mayo visit goes good. Lots of books do pass the time .I'am on the yard clean up thing and ceiling painting. First day off the pred. in 17 months go me. Doesn't take long to catch up on things here were forever good ,bad, or coping . Feel better soon. lol gail

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/7/2008 11:57 AM (GMT -7)   
I know, Nanners, I miss many of the "oldies" too. Many of us don't seem to be posting like we did. I always hope that means its because we are doing so good. But, sadly, that isn't always the case. *sigh*

Yep, I am ever so grateful our insurance allows us the option of going to Mayo!!! Its a 12 hour drive but well worth it! We have two choices, the "quickie" way thru the west side of Chicago (or right time of the day, right up thru the middle of it) or the more leisurely, beautiful, scenic route thru Michigan's UP.

We'll probably run thru Chicago on the way there and home via the UP (and all the UP casinos *sigh*). Ah, well, its neat to be able to split expenses rather than foot the entire bill for the trip. Besides my neighbor prefers to drive so its her car and body that takes the beating. And I'm there as an emergency driver if needed. If one has to stay longer than the other, that one pays the entire hotel bill for the extra nights. Same thing if we stay overnight at a casino or casinos on the way home. I sure can't kick on that! AND, she'll be happier than a pig in a pile of dung if I'm the one who has to stay longer as there are a couple of casinos not far from Mayo. A win-win situation for both of us and no hubbies to cramp our style!!!!

Gachrons, I'm "almost" getting the yard cleaning "bug". Almost but not quite. By afternoon when it gets decently warm here so far I am too too tuckered. Was just switched from straight CPAP to a bi-level which should have been done long ago but it is taking some adjusting to the new mask as well. As far as painting ... wicked grin .... I pick out the paint, hubby usually does the painting. He's neater at it than I am. I get to shop to pick out the curtains or spreads or whatever to go w/the new paint job.

Nanners .... am really sorry to hear about the nausea. That really is the thing I dread most. Even more than the pain. I have yet to find a script oral pain med that I can tolerate. Fortunately, I respond well to Tylenol. But when it isn't enough .... I'm in a mell of a hess and a world of hurt. Even IV morphine I HAVE to have phenergan or equivalent administered AT THE SAME TIME or slightly before or it is upchuck city instantaneously. I hope your knee is doing good since the surgery. I had a tough ole friend who had both of hers done at the same time. Gutsy ole gal, but she said life was too short wasting it recouperating twice.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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