Aches, Joint soreness

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Regular Member

Date Joined Sep 2007
Total Posts : 219
   Posted 4/6/2008 6:28 AM (GMT -6)   
I understand crohns is related to arthritis, but lately I feel like I am 90 years old.  I notice on the list some people hold jobs, work out, marathons ... Wow!!!  How do you all do this??  I am not on remicade or humira yet pending outcome of capsule.  Are there other meds that work against the body soreness!  Also energy level is awful.  B12 is in check just a bit anemic...nothing major.  Crohn's seems to be inactive for the I have to work on my body.  I would love to workout but am concerned about the body soreness and joint pain. 
I admire so many people on this site that can do it all...just hoping to get through the day here...

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 4/6/2008 12:13 PM (GMT -6)   
as for levels of activity, please remember there is a huge range of how crohnies feel. most of us were where you are at some point, and some of us are grateful to be feeling good and very active at the moment...we all have had tiimes of barely getting through the day.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 4/6/2008 4:44 PM (GMT -6)   
I am going to be 29 in a week and I feel like I am in a body of a much older person. I have no energy, cant stray too far from the bathroom ever I hope that it will get better soon I had C issues before all of this and my colorectal surgeon thinks it was due to the severity of the stricture I had in my ileum. My CD was limited as far as all my medical tests had shown prior to the surgeries now I have 1/4 of my colon and the CD is back.

I get severe joint pains that was my biggest complaint for many years. I noticed that around my period the pain and swelling of the joints intensified greatly. In my flares since 06 my joints acting up has preceeded the gut flaring. My GI says that joint inflamation and pain is typically assoc with colonic flaring but that isnt always the case.

I ended up on remicade and now humira instead which were both initially started for my joints. I had tried celebrex which helped my joints but made the gut flare. When I was out in CA for a year I had some great docs there too. I was introduced to Lidoderm patches. When my knees, or ankles hurt so badly that I am unable to sleep I will use half a patch on the joint hurting and within a few hrs the pain is relieved these have helped me more than oral pain meds ever have for the pain.

I have many days where I say tomorrow I am going to do this...this...this...and this. Somedays nothing gets done and food is reheating something or throwing a sandwich together if I am that low on energy or just feel like crud.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 4/6/2008 5:57 PM (GMT -6)   

I can relate to this!  Sometimes I will get awful aches and pains--more severe at times as opposed to others.  I have been prednisone for about a month  now and as I am slowly getting off of it, the pain is returning.  Sometimes it hurts to do even simple things, like driving, walking, or going up stairs.  I am 31 and when I get the pain and stiffness, I feel much older.

When I can get out and go for a walk, I feel so much better.  Of course, this all depends on how my knees are at the moment--I have days where I can do more than other days. 

Hang in there and I hope you start to feel better soon!



Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 4/7/2008 12:28 PM (GMT -6)   

Chris, I am 27 and also feel like I am 90.  Right now, the arthritis pain is my biggest complaint, although it is getting better now that it is getting warmer out.  I have found that working out actually helps tremendously, as long as I don't do squats or lunges, which my knees don't like.  I also take Ultracet for pain before workouts, so I can workout harder and longer.  Someday, it is hard to start working out, as moving certain parts may hurt and things pop and crack, but I always start feeling better during the workout and feel much better afterwards.  I've actually gotten addicted to working out, since it helps with the pain, stress, looking anorexic, and have found that when I concentrate hard on working out in a class, I don't focus on hurting and actually forget about the pain at times.  You will have to experiment to see what you can handle without pain and what you can't.  Start with something easy on the joints like pilates, yoga, the elliptical or bike and increase if your body is cooperating with those and you feel up for it.  Even if you can't increase, just doing something may help. 

...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4

Regular Member

Date Joined Jan 2008
Total Posts : 491
   Posted 4/7/2008 7:09 PM (GMT -6)   
I have a lot of hip/SI/low back/groin/pelvic pain, particularly on the right side. I also have a left side rib problem, I don't think is related, but maybe aggrevated by the IBD. I am so new to this I have no idea if my pain is related to this horrible disease or something else altogether.

I find that my daily yoga helps me immensely. I couldn't live without it. But since I have been sick, I don't have the energy for pilates like I used to, but find the yoga so relaxing & helps with my pain. But, unfortunately I have to rely on pain medications to make it through. It makes me feel weak. : (
Live for today, for tomorrow you might just get hit by a semi.

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 4/7/2008 7:41 PM (GMT -6)   
Don't feel alone. I may be one of the active ones right now ( Though I'm still scared to start running again, I'm bicycling like a maniac..) I've had plenty of THOSE days. Last Fall, there were times I had to leave work because my artthritis was so vicious (BTW, is there any such thing as MILD arthritis pain, those TV ads are bunk) I couldn't stand up or walk. Aside from my CD & its attendant arthritis I also have Osteo in my knees & in my spine. Its the spine that is my concern however, two disks have been slightly bulging. The knees I excercise.
As for how to get fit with all this? Start with baby steps. Walk to the end of your block or something.
Someday, if you are like most of us, your symptoms will decrease or even dissappear for awhile.


Regular Member

Date Joined Apr 2008
Total Posts : 38
   Posted 4/7/2008 9:13 PM (GMT -6)   
I am 28 years old and also feel like I am going on 90. I used to go to the gym twice a day and loved it until the Crohns hit and my biggest symptom was the arthritis. It was so bad I could not even walk, get out of bed, step into the shower, etc., etc. Not to mention how freaking tired I was. I could barely drive to work and had to pull over a couple of times and be picked up because I could just not keep my eyes open. My GI told me to gradually start with the gym again since I am constantly complaining how miserable I feel (partly because I have some depression since being diagnosed and partly because of my inactivity). When I started going again, I thought this is a piece of cake and will try to do a leisurely walk on the treadmill for about 30 minutes at a 5 incline....BIG MISTAKE! I almost fell off the treadmill since I was on the verge of passing out. I am starting off slower and it is ok but I can't wait until the day I can work out and actually build a killer sweat. All in due time I guess... though I know I will be there.....I hope. yeah
Love many, trust few, but always paddle your own canoe....

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 4/8/2008 8:30 PM (GMT -6)   
You'll get there, I can ALMOST promise you. Btw, I was around 30 when my illness got nasty, but I started about 25 for the first true IBD symptoms. Makes us sorta brothers in a way.


New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/8/2008 10:36 PM (GMT -6)   
I agree with so many. Some days you feel like you can conquer the world, then like the world has conquered you. I agree with everyone who said that individual experiences are so different. I am also amazed at what people are able to do. I think a lot of it has to do with attitude...Keep the faith and hope.
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