Tysabri Response Time?

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sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/6/2008 8:39 AM (GMT -7)   
I think there are only a few people on here who have used Tysabri, but for those who did, I am wondering what the response time was?  Dave123 -- you said several weeks.  Do you mean after the second infusion?  3 weeks?  hspencer, how quickly did you respond?  Jid -- have you had any sign of response yet?  Just curious because I am two weeks into it.  Sometimes I think it's helping a litle and sometimes I feel the same.  Last night and the night before I had a horrid pain (different from my regular one) but now that's gone.  Since I've been off antibiotics (Cipro 1000/mg day) my temp has gone back up to over 100 at times.  But daytimes I still feel better.  It's very strange.  Anyway, I am just wondering what the experience from others has been on the time to feel a solid response.
 
Thanks!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


Dave123
Regular Member


Date Joined Feb 2005
Total Posts : 223
   Posted 4/6/2008 8:44 AM (GMT -7)   
It was after the 2nd infusion for me

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/6/2008 11:30 AM (GMT -7)   
Thanks, Dave... That gives me hope. I do feel a little response, but barely. Enough to feel like I am processing it, but need more. April 18th is infusion #2. I will keep myself optimistic! Last night was better and today is alright. (of course, temp was still over 100 last night, but pain and mucus less)

Thanks SO much to everyone on this board... Sometimes it's so hard to keep it all together and stay positive. When I feel that way I read posts and it reminds me that I am not alone. And, that I have support and people who understand. What a difference it makes!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl

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