As most of you know I have endured a lot since Feb 07 as far as my CD. I have been on so many pain meds that the only things that worked for me were the fentanyl patch and I had dilaudid for breakthrough pain since oxycontin tablet literally went through me whole the writing was still readable ...I noticed that with my temp ostomy otherwise I wouldnt have gotten that close to my poop.
I went off the patch at the end of august and still was on the dilaudid prn and was taking 1 or 2 a day then a fistula came through on my stomach and I began taking them more frequently. I was hospitalized and put on the patch again I weened myself off in 1 week as to return to my new job just to get a call the next day that I no longer had a job there. I was on TPN as of 11-2 then on 11-19 I was brought back into the ER the pain had increased again to the point where I placed another patch on and I spiked a fever. I had picc line sepsis I had been on the patch until this past Wednesday night. Usually for some odd reason pain meds give me energy, and I am not one of those that things that typically has opposite effects with thisngs such as sudafed that doesnt make me tired or wired either.
Since stopping the patch I have been having increased diarrhea so much that I was up til 2 am 2 nights in a row running to have D every 10 minutes. Yesterday I went 1 time in the morning and anothr after eating lunch but didnt go anymore that night. I was unable to fall asleep until 4am. Some of my joint pain was bothering me but I had taken 2 tylenol pm and 2 benadryl (I typically take that) and my 2 zanaflex (muscle relaxer) with my other meds 1 being elavil 25mg for migraine prevention. I have always had troubles sleeping but recently I am exhausted I try not to take the dilaudid at night fearing it will keep me up. When I was on 100mg of elavil I was out in a cpl hours. I only weigh 90 pounds I am totally functional on all of these meds I tried watching TV, reading laying in the dark etc. it was awful. I am so drained during the day if I dont take the pain meds which I try not to take unless I must for its purpose (only 1 today after a cpl bouts of D...CD remanifested already and hoping HUmira will bring it back under control since I never did a 2nd loading dose or anything after being off of it for 2 months after my Sx and wound infections).
Can anyone help me? I see my colorectal surgeon for a follow up the 9th (this thursday) and I see my GI on the 14th.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987