you sound just like me ! So similar - dx over 25 years ago ...now 51
I also had a ft of sml intestines removed - a few flare ups over the years but mostly remission -
however, when I did flare a few years ago it hit like a brick ; with no warning - as I think back over my past I realize that most of my flares were like that for the most part except for early on -
I had been on Remicade after my last flare ( in 2004 ) but went off after a year ; as well as quit the asacol ( which made me hurt more ) I felt better with no meds during this time then I did w/meds...
Had my 2 year colonosocopy a few weeks ago which showed active disease and 2 fistuals - so now I am having to go back on the cade - Like you , I feel really good - it is very hard to have to go on such "big guns" as my gi calls it when I dont feel sick -
BUT - if you are like me , the disease seems to hide, staying quiet until it attacks with all its weapons ! Then as most on here will attest to as well as the docs - it is a REALLY good idea to get going on the meds -
I don't regret stopping them , because during the time I was on it all - honestly I felt worse then I have for the last 2 years -For 2 years I have felt really good ! However, maybe I could have avoided the fistuals coming back ( ?? ) who knows? They can still come back if the meds stop working right ?
I am loving my doc right now ( we have had some not so good times : ) , but he knows me now ...and even though he wanted me on the prednisone he knows how much I hate it ...so, he is willing to wait for me to start the cade !
Keep in touch and let me know how you are doing and what you decide - also what are your symptoms like when they do happen ??
Dx with Crohns 23 years ago
1 surgery ; 15 years ago ...
Cervical DDD and restless leg syndrome
Currently on ; Requip , Diovan ( for high bp )