Anyone not have success on the Makers Dietor similar diets?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bowlies
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 4/7/2008 1:35 PM (GMT -7)   
I am just curious to know if anyone has not had success on the Makers Diet or other similar diets. My now 18 year old son was diagnosed with Crohns in August of 2006 and he is still not in remission. He is on Remicade and previously on Imuran and now on Methotrexate. I have not yet pushed the diet alternative but I am wondering about it. We seem to only hear from people for whom this diet has worked and I am wondering if it works for everyone who puts in the effort or we are only hearing from those individuals for whom it had worked. I would love to hear from both sides of this therapy.Thanks in advance!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/7/2008 1:41 PM (GMT -7)   
I have not tried it but I have seen a few posts from members who reported minimal results. I think it's like any other medical or dietary treatment for Crohns . . . it has good results in some, less impressive results for others and no real impact on a few. Overall, it has always made sense to eat a balanced, sensible diet with this disease and to take the medications that work for you. It's just such an individual disease that I am very skeptical with any claims that "this is the one answer." With diets in particular, all you can do is try them and see what happens . . . and then realize that even if you see good results, it could simply be that your flare was ending at the same time. With dietary treatment, only time will tell and there is no assurance that diet alone is going to have a truly pronounced impact on the course of the disease. My personal take is that no diet will stop an inflammatory procress; it can only, in the best of circumstances, help alleviate some of the damage and the severity of flares that might have been made worse by eating a bowl of hot sauce.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2008 5:17 PM (GMT -7)   
I am with MikeB on this. I personally have had a couple resections already and could not eat many of the items on those diets. But as MikeB said Crohns is very individual as is our diets. I believe many of the newer diagnosed folks have better success with the diets, than those like myself and MikeB who have Crohns for a longer time.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 4/7/2008 7:52 PM (GMT -7)   
The key to assessing the value of these diets lies in the individual. You have to figure out what is working for you and you need to be really honest and stay rooted in your reality. The problem with is that many people who try these alternative therapies develop a huge investment in them working. I tried alternative therapies, including dietary therapy at the beginning of my journey with this disease and in the midst of them, I believed it was helping. In reality though, they just fed my denial. I wanted so badly to be "in control" of this disease that I willed myself to be well. Which really just means that I accepted more and more serious symptoms as "normal". I under-reported symptoms to my physicians, not willfully, but because I didn't want to give in to the disease and I thought it was just a matter of being strong enough to cope. Because I under-reported I was under-treated medically. That allowed the disease to do damage that can't be undone. So anyone seeking alternative treatments, needs to be really rooted in their reality, not governed by their anxiety or their hopes.

There are also many individuals who have been able to dramatically reduce symptoms through a very controlled and restrictive dietary regime. So it is important to explore the options out there. Of all the dietary prescriptions I think the specific carbohydrate diet has been around the longest, has a proven track record (for some) and can be followed for the price of Elaine Gottchall's (sp) book. I would be wary of anything being promoted as proprietal (you have to purchase products) or that claims to cure.
Belleenstein:

30+ years living with Crohn's.


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/7/2008 8:16 PM (GMT -7)   
I did the diet very strictly for months. Now, I use this diet in moderation, sometimes more strictly, and I've seen some improvements, including not going to the bathroom 30 times EVERY day.

The only time I've heard anyone say this diet didn't work is if they had partial obstructions, because some of the food in this diet is very fibrous.
I always recommend ppl with obstruction problems puree their veggies and don't eat nuts and seeds etc. or in gradual amounts. Also chewing food until it is complete mush is extremely important.

Also, the first month can actually cause more diarrhea because of the detoxification effects. Many ppl give up before the 40 day challenge, claiming it wasn't working. They should try it for the 40 days or longer, as suggested.

The diet is meant to reduce inflammation, control blood sugar levels, and detoxify. It should be tried strictly for at least the 40 days.

bowlies
Regular Member


Date Joined May 2007
Total Posts : 69
   Posted 4/7/2008 8:23 PM (GMT -7)   
Thanks so much to those of you who have written in. It is so helpful to hear and learn from your personal experiences and insights. Your responses have been so balanced and rational and I appreciate the sharing of your years of trial and error and your ability to help those newer to this chronic condition such as my son. Your understanding of the use of denial and the need for contol in a difficult to control situation is so helpful to all of us. I think it is particularly important for you guys who have lived with this for years to keep commenting whether in agreement or not as your insight is so valuable. Thanks again, from me and my son.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/8/2008 6:30 AM (GMT -7)   
I would like to add that the long term effects of following these diets exclusively are yet to be determined. I have to be upfront and say I didn't follow any of these diets, but I did adjust and alter my diet in a similar manner when I first suspected I had CD. I then went 10 years untreated and undiagnosed except for my dietary changes. When the S*&T finally hit the fan I was in pretty bad shape. I ended up with 3 resections in 6 years. How much of that can be attributed to having no maintenance drugs, I will never know. But I am very leary of ANYONE who has been diagnosed for a short period of time, starts one of these diets and then stops all meds because it has CURED them. The microscopic disease process may very well still be wreaking havok within their body and only years will tell. Some aspects of these diets make wonderful sense. Eat as close to nature as possible, Eat organic, good quality food. But for some of us, the prospect of eating that much fiber is basically a recipe for disaster.

But most of all, check with your son's doctor. If he is to be on a low residue diet, or any other type of restriction, you need to make sure that you are following all medical advice.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 4/8/2008 8:15 AM (GMT -7)   
I've tried all of them. And yes, I tried them long enough to see if they would work. When you're desperate to get relief from Crohn's, you'll try anything for as long as they tell you to. No help for me, at all. Zip.

Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/8/2008 1:09 PM (GMT -7)   
Wow, I have been looking into this diet and another and all of your words speak of all the things I haven't thought of. Thank-you for being so candid,

Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 4/8/2008 1:23 PM (GMT -7)   
misread your post. Haven't tried maker's diet. Interesting  to hear that for some it doesn't work.

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 4/8/2008 4:29 PM (GMT -7)   
I have been eating the Blood Type Diet and I think I can tell a difference.  You can google EAT RIGHT FOR YOUR BLOOD TYPE and see how it works.  It does have a few of the same characteristics of the MAKERS DIET. 

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/8/2008 5:15 PM (GMT -7)   
i agree with zanne. just cos you feel good doesnt mean you are doing well. no matter how well you feel, i think it is a good idea to go through the alien abduction examination like every 2-3 years just to see what is going on inside. plus we are supposed to have a higher risk for colon cancer so that alone makes it a good idea...

i dont think you are ever cured of this disease. i see diet as another way to help manage it and minimize symptoms. in some people they get fantastic results from eating a restricted special diet such as makers or scd. in others it may not help very much. meds are the same way. gotta keep trying things until you find something that works for you.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/8/2008 8:56 PM (GMT -7)   
I agree with crazyharry. The best thing to do is to keep searching for something that will help get the disease under control.

Aside from my own diet changes, I keep pushing my doc to speak with researchers about getting an intestinal worm therapy trial started in canada.

They've shown some positive outcomes with that therapy as well. I hear they have a hookworm study in the UK, and pig whipworm studies in the US now for MS patients too.

Someone here recently mentioned going to mexico to buy the hookworm therapy which can induce remission in about 45 weeks.
We all know how desperation feels... don't give up! :-)

Best wishes.

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/9/2008 2:33 PM (GMT -7)   
I tried the Maker's Diet and it did NOT work for me. It was quite a disappointment as I was desperate and just wanted anything that would keep me in remission. For me it has really been trial and error to see what works and what doesn't work. A few things that definitely don't work for me are caffeine, red meat, cow milk (I drink goat milk), raw lettuce, and mexican food. Just like anything, what works for one doesn't necessarily work for others.
turboemma.blogspot.com/


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/9/2008 5:41 PM (GMT -7)   
liturbo,

There were a few aspects about the maker's diet that I couldn't do, like eat a lot of eggs, nuts, etc. Aside from my crohn's I have food allergies to contend with. I also had a lot of obstructions when I did the maker's diet strictly at the beginning so I had to modify it or avoid a few aspects of it.

I'm curious to know if while doing the maker's diet you had obstructions. Also, how long did you do the diet and did you try it strictly?
 
The one thing that the book didn't seem to go into was obstructions in CD (at least I don't recall that).

Post Edited (Roni) : 4/9/2008 6:44:38 PM (GMT-6)


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/9/2008 5:55 PM (GMT -7)   
Hey Roni!

I have never had any obstructions and I followed the diet very very strictly! I was SO FRUSTRATED because I was sure it would work for me, but it didn't really work. I also picked up his other book, "Restoring your Digestive Health" which is more so for people with CD and UC and tried that very strictly (I was desperate, just wanted to remain in remission) and unfortunately that did not work for me either.

I am able to eat eggs but cannot do nuts or raw fruits/veggies (especially lettuce)! I also stay away from red meat b/c it makes me so sick! I was on the MD for a little over a month and was on the "guts and glory program" (from the book "Restoring your Digestive Health") for about three weeks. Believe me, I was incredibly frustrated as I bought all of the suggested supplements just to have none of them work! If you haven't read the book "Restoring Your Digestive Health" I recommend reading it just b/c it does a great job explaining different food groups etc.

Take Care!!
turboemma.blogspot.com/


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/9/2008 8:43 PM (GMT -7)   
I haven't found much change in my flares traced back to food, except when things block. Eating various things don't stop or start a flare for me.

I was down to chicken broth only for a couple of months last year and my intestines were still quite ticked off. Humira was the only thing we got them calmed down with. For me, I don't think eating these items would miraculously cause me to stop flaring? But maybe so. At that point, anything solid caused extreme pain and an acute blockage so I didn't dare attempt it.

For others, maybe food is their major trigger and eating certain things does make a big difference?
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 7:08 PM (GMT -7)
There are a total of 2,735,101 posts in 301,275 threads.
View Active Threads


Who's Online
This forum has 151370 registered members. Please welcome our newest member, calvin1242.
368 Guest(s), 11 Registered Member(s) are currently online.  Details
81GyGuy, JNF, Girlie, LG13, NiceCupOfTea, DennisinNY, Gabzz, platinumpixie, bdavis, straydog, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer