Oral Crohn's anyone?

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Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 4/8/2008 2:43 PM (GMT -7)   
Hi everyone,
 
I used to have Oral Crohn's until it spread into the normal kind. I had an ostomy and now it's come back in my mouth, with really sore dry patches at the corners of my mouth. I've tried steroids, numerous creams and potions, pills, and laser surgery.. has anyone out there found anything that has worked for them?
 
Mary x x x
Never Give Up, Never Surrender!
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007 ..
.. Meds? Tried 'em all! ..
.. Time between diagnosis and operation - one year ..
.. Trying to find anything happy in life ..


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/8/2008 2:59 PM (GMT -7)   
Mary, I have the same problem. I use Dr. Poppavich's solution for inside my mouth, but like you nothing seem to work on
corners. However I've been told that problem was more likely to be caused by my vit B12 deficiency.

Just a thought.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Stoma Girl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 4/8/2008 3:05 PM (GMT -7)   
Vicky,

Thanks for the advice, if its get bad inside I'll check that out. I've been tested for B12 and the levels are normal, is just an anomaly. Though I just heard about this stuff called Bio Oil which I might check out.. anyone heard of that?
Never Give Up, Never Surrender!
 
.. Stoma Girl ..
.. Ileostomy following Crohn's Disease, 2007 ..
.. Meds? Tried 'em all! ..
.. Time between diagnosis and operation - one year ..
.. Trying to find anything happy in life ..


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/8/2008 5:09 PM (GMT -7)   
Probiotics daily and indefinitely have cleared up my mouth sores and kept them at bay.

Havn't had a single one since I started taking probiotics daily.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/8/2008 5:57 PM (GMT -7)   
I haven't had them since I went off Methotrexate and Doxcycline

ALI9
Regular Member


Date Joined Jan 2008
Total Posts : 95
   Posted 4/8/2008 6:03 PM (GMT -7)   
I have been told by a cancer survior that you swish around malox in your mouth it will help with the sores, kinda like swish and swallow
Dx: Crohns 1987 probually had since 1982 resections in 1992 an 2002
Gallbladder removed in 1986 The list can go on and on (if you know whatI mean)
Married 25 yr with a 17yr old son

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