osteopenia ...anyone else?

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dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 4/9/2008 1:44 PM (GMT -7)   
i had a bone density test done yesterday and my gi just called to tell me i have osteopenia. i am currently taken 1400 calcium and 800 vitamin d daily. he said it's more than likely a cause of the steroids/6mp along with the disease itself. i sent a message to my pcp to bring him up to speed and see what we are going to do next. uhmm .... i am no spring chicken but aren't i too young for this ?! and i am still on the anemic side, taking 650 of iron a day. i read somewhere that iron can block the proper absorbtion of calcium so i take them at different times.

anyone have experience with this, comments, suggestions, new intestines, ...please reply! kthanks!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Post Edited (dustspeck) : 4/9/2008 3:18:27 PM (GMT-6)


yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 4/9/2008 1:53 PM (GMT -7)   
I have it, too, but at 48 it isn't so surprising. My naturopath had me have a bone scan when he found that I was gluten intolerant, as that often goes along with it. between having been on pred, being very tiny and very white, having osteoperosis in my family, I am a good candidate. one more reason why I do yoga daily.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 4/9/2008 2:00 PM (GMT -7)   
my mom was diagnosed with pre-osteoporosis at about 50 and all they told her was to chew some tums! i called to tell her the news and she is shocked that i will more than likely have to go on a script to try and correct the problem. my grandmother also has osteoporosis. i am also small (4' 11 1/2'' and 108lbs.) and like, beyond white hahaha. but i just got back into exercising, i walk about an hour 2-3 times a week, use light weights and a balance ball at home.

so besides the yoga, is there anything else you are doing to help the osteopenia? thanks for the reply :)
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Post Edited (dustspeck) : 4/9/2008 3:03:37 PM (GMT-6)


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/9/2008 2:29 PM (GMT -7)   
I am 26 years old and was also recently diagnosed with osteopenia (in February). I have been on and off of prednisone for the past two years and my doc believes that is what caused the osteopenia. He put me on Fosomax and I also take a calcium supplement. Frustrating yes, but the best thing we can do is take our calcium pills, get calcium via food, and do weight bearing exercises!
turboemma.blogspot.com/


Stef17
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Date Joined Feb 2003
Total Posts : 1811
   Posted 4/9/2008 2:34 PM (GMT -7)   
I have it too, for a while now (since mid 20's) and I'm only 35. I was on fosomax for a while and it had a GREAT effect on me, but I quit taking it so I could get pregnant and I need to get back on it. I've been on pred since I was 20 and I can't get off because of adrenal atrophy. Nice, huh? No suggestions except to take the fosomax and hope that it helps you!

dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 4/9/2008 2:44 PM (GMT -7)   
thanks ladies! i am curious to see if my pcp suggests fosomax for me then i am going to do a bit of research on it now. and stef, so sorry the evil pred took that much of a toll on you. will you be able to get off of it eventually? take care girls!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 4/9/2008 3:07 PM (GMT -7)   
I am also at osteopenia levels (-2.2) at age 38. (Haven't had a recent scan done, but I am due for another after another 7 months on steroids.) My doc says that Crohn's patients usually have less bone mass, as he says, "before even smelling a steroid." My Ob did not recommend the bone building meds at this point. (I am pre-menopausal.)
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/9/2008 3:27 PM (GMT -7)   
thanks sr. i am not sure what my levels are at. do you take any supplements at all? shouldn't my calcium and vitamin d (been taking those amounts since september) make a difference? thanks for the feedback :)
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/9/2008 3:36 PM (GMT -7)   
I had osteopenia diagnosed at least 7 years ago. Since then I had a different doc each time I had a new bone density done. When I was livivng in gilroy, ca the doc I had, had their own machine in the office. Not only did they do it on my hip, they also performed the test on my spine and arm. The arm showed osteopenia, the spine was normal, and the hip wasnt wonderful and was shown normal but bordering osteopenia. I am unsure of the actual values of my 1st or 3rd tests but the doc in CA sent me a color copy including pics of my bones. Whether there is a set diagnostic level or if diff docs consider a slight diff in values. I had one done in 07 and my GI said it was normal. I only take a prenatal vitamin and no calcium supplements outside of what is in that. I am not lactose intolerant so I tend to eat lots of cheese.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 4/9/2008 3:53 PM (GMT -7)   
hey steph, i am going to make a conscious effort to eat more calcium rich veggies and also, i tolerate most hard cheeses fairly well. they did a scan on my left arm (cause i am right handed?), my hip and my spine. he didn't specify if i had it in certain areas. i hope with the extra exercise, better diet and whatever they end up putting me on (if they do) will get this under control.
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/9/2008 4:52 PM (GMT -7)   
i developed osteoporosis after being on prednisone for like 3 years (i think i was 20 at the time). i was on it for a total of 6. to counter it, i went on fosamax for like 10 years. my last bone scan said i was in the normal range, so i quit the fosamax. this was in like august last year. you want to get at least 1000 mg of ELEMENTAL calcium. if the dosage does not specify elemental than you dont know how much you are actually getting. you also need to take magnesium with your calcium. i have read you want 2:1 ca to mg, but i've also read the opposite, even 3:1 mg to ca. i currently take peter gilhams natural calm plus calcium. i also take a cod liver oil for my vitamin D and omega 3 EFA.

strength/weight training will help cos muscle growth promotes bone growth, so if you dont go to the gym regularly, now is your chance to start (and summer is right around the corner!!!)
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/9/2008 5:30 PM (GMT -7)   
as far as cheeses I mainly eat xsharp cheddar Boars head brand (no preservatives). The 2nd most common one I eat is mozzerella...I love adding it tomake cheese bread rather than just garlic bread. The other one always in my fridge is american. I have read that aged cheddar typically will not bother those who are lactose intolerant
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 4/9/2008 5:35 PM (GMT -7)   
since doing this on my phone I cant edit that last post. I meant to add thatafter my 1st scan the RA doc that wrote for the test did not want me to use Fosomax since I knew someday I wanted to have kids. Whether it was due to it being a newer drug at the time or there is adverse troubles even if you stop fosomax prior to conceiving.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 4/9/2008 5:43 PM (GMT -7)   
They did two scans of my hip/lower spine, both from the same machine. (I guess that makes comparison reading more accurate.) I should be taking more calcium, but I take about 400mg and drink milk most days to make up the rest. (fortunate no lactose issues) Calcium is one of my own "I don't get it things"... (about my self, not about taking calcium)  I *know* I should take it, but for some reason I resist. I don't deny other things, so I don't get this one I just get sick of swallowing pills so I cut that one out. I should *not* do that! But, yes, 1000-1200mg of calcium per day with the minerals and D, like Crazy Harry said.


--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/9/2008 7:02 PM (GMT -7)   
You might want to ask for a referral to an Endocrinologist. I was Dx with Osteopenia I can't remember when, then I started having compression fractures and rib fractures, so I guess its Osteoporosis now because there are actual breaks. But, I've been seeing an Endo, we've tried a bunch of different meds, most of which I couldn't tolerate, all the Fosamax types. So now she has me taking Birth Control pills for the hormones so I can absorb more calcium, a prescription Vit D, 50,000 IU, tons of Calcium a day, and I was taking a nasal spray too, but I was really non-compliant with that. But her combo is working, each time I go for a bone scan, my levels have improved, and I'm 43, so to improve my levels is pretty great, or at least I think so. You just want to make sure that you stay on top of it.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


sickmomof2
New Member


Date Joined Apr 2008
Total Posts : 7
   Posted 4/9/2008 9:27 PM (GMT -7)   
Hi! I too have osteoporosis, I was diagnosed when I was 21. I can't take fosomax or any of the other medications, my disease is so severe every drug goes right through. I am now just debating on wether or not to start Remicade. Sorry I have no suggestions about what to take. I am glad that I found this site, I was wondering if I was the only one dealing with problems like this! Good luck, I hope all goes well for you!
28 Years old, DX at age 15, 2 bowel resections, 2 blood transfusions, hospitalization atleast 3 times a year.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/10/2008 9:23 AM (GMT -7)   
wooo weee! thank you everyone for the feedback. seems pretty common for us crohnies. my boss suggested i might want to start taking liquid vitamins for better absorption so i might look into that. i am not the biggest fan of exercising but a friend of mine used to be a personal trainer and she's working on a exercise plan for me. with the warm weather here i am going to try and stay fairly active on a daily basis. i am by no means lazy, i just get bored of routine. tomorrow i am going to have more blood work done through my pcp (vitamin d, pth & serum calcium levels) and he will make recommendations after he gets my results.

thanks again everyone! if i learn anything compelling in the the next few days in regards to this osteopenia i will be sure to share :) take care all!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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