It's truly amazing how we all find relief in discussing our very personal issues with each other!

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Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/9/2008 7:17 PM (GMT -7)   
I find it really amazing that one, we are able to talk about really personal issues with each other without feeling judged.  Two, it brings us such relief and that we are not alone.  3, we find help in dealing with these issues and how others have coped.  What a wonderful thing.  My grandmother had crohn's and died in a nursing home, I can only imagine how alone she must have felt in dealing with this disease alone and isolated.  KUDOS to everyone who posts, reads and responds.  We are making a difference and helping each other!

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/9/2008 8:45 PM (GMT -7)   
You made my day Crohn'snme! It is a post like yours that keeps me doing my job here...Again, thank you for writing down what so many of us feel about this forum!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/9/2008 8:56 PM (GMT -7)   
Thank you, Crohn'snme...sometimes I feel really jaded (as we all do) but you reiterated the importance of stressing how much we learn from each other, and how much we can help each other. I applaud you for your thoughtfulness :)
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/9/2008 9:10 PM (GMT -7)   
It's why I come to HW....I find it very therapeutic to offer advice and put out the experiances I have had to deal with for the last 17 yrs and counting (as until there's a cure, I'm sure I'll never reach full remission as I havn't yet) and you're right about your GMA, this disease can automatically make you feel isolated among many other negative things, and it's at least nice to have a great place like this to vent and get everything off your chest as well as to learn and have fun and support one another.

KUDOS to Peter and all of you here at HW!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/10/2008 3:24 AM (GMT -7)   
It is true, how important this board is for us. I always learn something new and find great support. Thank you all.
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more. 26 meds..oooooops, make that 27 now.

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 4/10/2008 4:27 AM (GMT -7)   
Ditto!
Diagnosed in October, 2004 at age 33.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/10/2008 6:02 AM (GMT -7)   
It really is wonderful! I read posts for over a year just finding comfort in others, then I finally had the courage to start posting. It's just so encouraging! KUDOS to everyone involved in making this happen!

Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9658
   Posted 4/10/2008 8:17 AM (GMT -7)   
Thanks for sharing Crohn'snme. That is why I started this site, because it has had a real impact on my life and so many others.

Peter
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/10/2008 8:35 AM (GMT -7)   
Yes it is so miserable to be miserable,,but more miserable to be miserable alone. When I was first DX with this @#%$$ disease I knew nothing about it. The doctors were little help as all they did was throw meds at me. My wife found this site and asked me to come here. This has been one of the best things I have every done. Thanks to all of the people here, the prayers , good vibes, great advise, compation and just plain willingness to share experience, I have benefited more than I can say. I also hope my own stange sense of humor has helped bring a smile to someone in need of one. Thanks again Admine and all the moderators and friends...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/10/2008 9:59 AM (GMT -7)   
Yes I love this site. I have learned more in the years I have been a member of this board about Crohns than in the many years before that that I suffered with the disease. My GI is very supportive of my participation on the board too. He's always telling me "make sure you tell the newer diagnosed to stay on their meds". One thing I have really learned, my meds are important. I love the humor some (Sniper, Snohare etc) come up with to at least help us laugh a little thru our misery. And the unconditional love and support I always receive here.

Thank you Peter and thank you mods for all your hard work. And a special thank you to my fellow Crohnies who help me to carry on.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/10/2008 10:42 AM (GMT -7)   
even though i am close with my family and have a wonderful, supportive group of friends, sometimes i feel this is the only place that understands me. i try to explain the pain, the fatigue, the anxiety, the lows but they can't possibly fully understand unless they experience what we go through. i don't hold that against them. it's just a good feeling i can always turn here, listen to others stories, ask questions and overall, just look for some support. i felt so lost after my diagnosis, finding this site has been one of the best therapies!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 4/10/2008 2:08 PM (GMT -7)   
it is hard to talk to anyone about your problems, even more if they involve very private things we all know that go with having Crohn's. Heck even going to the DR. is humiliating at times, I am so thankful I found this site it has been such a good source for (Real) information. Thanks everyone.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/10/2008 2:50 PM (GMT -7)   
Long Live the Internets! the beauty of this technology is that it allows us to come out of our shells and be genuine.....without the fear of being judged....

God bless the administrators and moderators! Peace and love to all the posters too! whether you are a veteran, regular, or just a noob!

Peter, you sure did it right with this site.....i know of a few other medical support sites/communities....but none that are as compelling as HealingWell.

Your site always seems to function pretty well, and there are many regular members.....
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 4/10/2008 3:20 PM (GMT -7)   
yeah
CD dx @ 13 (1987)
Prednisone 15mg every other day
Imuran 100mg day
Celexa 20mg day
Pain Meds
Vitamins + B12 Injections Once Per Week


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/10/2008 5:14 PM (GMT -7)   
You all took the words out of my mouth, er, hands!

Matthew

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/10/2008 6:30 PM (GMT -7)   
I found this site shortly after being diagnosed and it truly was a godsend. I can't imagine how I would have coped without all of you wonderful, supportive people out there. I loved it when I was on high doses of prednisone, and couldn't sleep in the middle of the night; I loved it when I was in terrible pain, and had somewhere to turn for advice. I loved not having to worry that I was whining too much or bothering anyone ( which is how I sometimes feel with family and friends) I am feeling better these days, and I love trying to help others on the site. Thank you everyone sooo much!!!! Sometimes, I daydream about having a big party and meeting everyone in person....what a party it would be!!!! But then again, maybe the anonymity is part of the reason why we share so much!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 4/10/2008 6:35 PM (GMT -7)   
Yes, I find this site very helpful and informative, and it's sure nice to talk to people who live with this disease and understand. Everyone has been so wonderful whenever I have questions, and I love reading the posts to get information.
This site allows me to go into my doctors appointments feeling empowered - I can ask questions that I have with greater understanding of the replies back. Knowing other options and being able to discuss their pros and cons with my doctor sure has been helpfut too.
Many of the unexpected side-effects and symptoms that have been raised in this forum that I didn't realize were associated with CD before coming here, I've been able to rectify by bringing them to my doctor's attention.

Thanks Everyone!!!!!!!!!!

Bev

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/10/2008 9:40 PM (GMT -7)   
This site has been here for me (and all its members) from the time I was trying to figure out what could possibly be wrong with me through diagnosis and a more or less remission....
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/10/2008 11:47 PM (GMT -7)   
It's been about three years since I first posted and I still don't have a diagnosis...but now I'm a medical student and a moderator! And I couldn't have done it without you guys!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/11/2008 9:45 PM (GMT -7)   
Hey there.. Isn't it wonderful, information, help, unbiased opinions. This site is wonderful!!! Kudos

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 4/12/2008 2:05 PM (GMT -7)   

I agree this place is great!!!

I found this site about 30 minutes after I was told I have CD over the phone while I was at work. I was so frightened then I jumped in and made a post. Right away I had people giving me kind words and encouragement. Now it is 1 year later and I feel I can deal with this disease and when I have bad days I have everyone here to support me!

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/17/2008 6:54 PM (GMT -7)   
I have even ran into others having treatments when I was getting my Remicade and I told them this website is a must for support in dealing with this disease. I went so far as having my nurse email the link to my doctor, so he would realize this forum is out here!

JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 4/17/2008 7:02 PM (GMT -7)   
This is a great place!  It's nice to have some else know what it feels like to have Crohn's. I don't feel so alone.  My husband and family are wonderful supporters, but they just don't quite understand how miserable things can get.  Thanks to all!

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 4/17/2008 9:52 PM (GMT -7)   
Crohns'nme thank you for starting this thread. First of all, I want to tell you how sorry I felt to hear that your grandaughter struggled with this DD, and died in a nursing home. How difficult this must have been for you. Thank you for sharing.It does bring us all closer together when we are willing to reveal personal and painful moments in our lives with each other. It not only makes us stronger for having survived it...but gives hope to others who may be experiencing something similar. It is this vulnerability and openess that makes us trust each other enough to share.
Thank you to all mod. and to Peter for this excellent " sanctuary". Since I have found this site, I come to it almost every day even though I may not post each time. I feel an amazing connection to and affection for people I've never met and I feel truly Blessed for it.!
Love and prayers
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/20/2008 8:18 PM (GMT -7)   
Yeah, when we are feeling well, we can bring each other up, when we are down we can seek solace. We all benefit one way or another!
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