Does the doc talk to you right after the colonoscopy?

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softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 4/11/2008 5:09 AM (GMT -7)   
My son, 16, is having a colonoscopy and endoscopy on Tuesday.  Will the doctor talk to us after the proceedure to let us know what she saw or is this something that usually takes time and we shouldn't expect to hear any "results" on the day of the proceedure?
 
Thanks
Katherine

MikeB
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Date Joined Mar 2006
Total Posts : 1169
   Posted 4/11/2008 5:14 AM (GMT -7)   
Almost always they come to recovery and brief you on initial findings,  but remember it also takes reports on the biopsies to clarify the picture and those won't be available for a few days. All he can tell you on that day is what he saw, not what the microscopic results are.

EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 4/11/2008 5:20 AM (GMT -7)   
Our pediatric GI talked to my son right after the procedure. Too bad. He had barely wakened. I don't think he remembered a thing or even truly comprehended at the time.

The doc told us (while my son was still in recovery) that the patchiness of the inflammation was classic CD, so they were quite comfortable making the diagnosis without waiting on the biopsy results. sad
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Kittikatt
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Date Joined Jul 2004
Total Posts : 422
   Posted 4/11/2008 5:27 AM (GMT -7)   
Yep, mine comes in soon after, too. Just to say what he saw. My Mom has taken notes about what he says because I'm usually so still out of it from the medication I'm saying stupid things that don't even go along with what the doc is saying and then I don't even remember not only what HE said but what I said to him! Hehe - mine just comes in to say what he saw on the colonoscopy screen (ulcers, whatever) and says if he took any biopsies. He'll also say his thoughts on what to expect over the coming year, if I need new meds or whatever.
Diagnosed in October, 2004 at age 33.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 4/11/2008 5:27 AM (GMT -7)   

Emom,

You mention the doc told you about patchiness, is that what they look for and base treatment on?  The doc told us depending on what she saw, would determine the treatment plan.  Why are some on oral med and some on remicade?


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 4/11/2008 6:04 AM (GMT -7)   
softballfan said...
Emom, You mention the doc told you about patchiness, is that what they look for and base treatment on? The doc told us depending on what she saw, would determine the treatment plan. Why are some on oral med and some on remicade?


I don't know that I would say the patchiness is what they base treatment on, but I guess there are certain things they can conclude from the patchiness--like 95% sure it IS Crohn's. I believe they have to wait on the biopsies for further info. Maybe someone will jump in here with more knowledge on the subject than me as to what *exactly* the biopsies tell the doctors....

I was surprised that my son's biopsies did not check for E. coli infection. If anyone has the answer to that, I'd love some insight. I have read multiple studies that implicate a possible E. coli infection in CD (along with MAP, which I understand is extremely difficult to test for).

As for treatment, this seems to vary from doctor to doctor and individual case to case. Our doctor definitely takes the "bottom/up" approach, while I've read here that others take the "top/down" approach to treatment. By this, I mean our doc starts with "entry level" drugs (like Asacol) and if he doesn't get results, moves on to the more powerful ones (Imuran, Humira, Remicade, etc.) (That said, my son did initially take an 8 week course of prednisone. Some doctors choose not to use this drug, but nearly all admit it usually does the trick.) I would think, though, that doctors also take into consideration how severe the current symptoms are, and that may dictate where they start with treatment.

I am thankful our doctor chooses to use the bottom/up approach because I definitely did not want to jump to the big guns at the start, and thankfully things have been under control with the least aggressive drug. That said, we did make drastic dietary changes and added supplements (something our doctor did not encourage and nearly DIScouraged).

Not much help here... As you can see, we're still very new to this whole thing and I still have much to learn.... Best wishes to you and your son!
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Megera
Regular Member


Date Joined Feb 2008
Total Posts : 92
   Posted 4/11/2008 6:45 AM (GMT -7)   
The surgeon that did my scope typically does not talk to patients afterwards due to them being out of it after sedation. After my scope however I decided to go and talk to him - it would have driven my crazy not knowing what was going on (and even the nurses weren't 100% sure).
We had a quick chat about what he found and what medications he was going to put me on and then a week and a half later I went in for a follow-up appointment and got my biopsy results back.


EMom - Did your son have blood and stool tests before his scope? I was under the impression that the biopsies only looked at finding out if it's Crohn's or UC. I had blood and stool tests beforehand to rule out any sort of infection/bacteria/etc.
Current:
Dx: Crohn’s Ileitis as of 22/02/08
Rx: Salofalk 4g/day (26/02/08)
6mg Budesonide (for the next 6 weeks as of 04/04/08)

Discontinued meds:
Asacol 2.4g
Pentasa 4g


softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 4/11/2008 6:56 AM (GMT -7)   
Megera, thanks for the reply.  I hope the doctor will talk to us since the patient is my son, I agree with you, it will drive me nuts to walk out of the proceedure with no answers.  My son had the serology 7 test done which showed very positive for Crohns, so I think this proceedure is being done to confirm and see the extent of what is going on.  A few weeks ago he broke out in very bad mouth ulcers, they cleared up but last night he noticed another one breaking through...ugh. 
 
I think I will call the Ped GI's office today to ask what the doctor normally does after the proceedure, talk to the parents or not.
 
Thanks again
Katherine  

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/11/2008 7:05 AM (GMT -7)   
Megera said...
EMom - Did your son have blood and stool tests before his scope? I was under the impression that the biopsies only looked at finding out if it's Crohn's or UC. I had blood and stool tests beforehand to rule out any sort of infection/bacteria/etc.


Yes, my son had blood and stool tests prior to his scope. To my knowledge, though, they were simply checking for the presence of blood in the stool. Maybe they ran other tests, but if so, it was not conveyed to me.

His blood tests were being done quite regularly because he had been anemic for a year and a half and we were trying to figure out why. Again, I believe his blood tests were standard CBC blood tests, though. I don't think they were testing for anything else.
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/11/2008 10:10 AM (GMT -7)   
my doc talks to my husband (I get really sick and am of no use) AND gives a typed report that I can see when awake and done barfing!
I sure hope all goes well.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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