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MYP
Regular Member


Date Joined Apr 2007
Total Posts : 28
   Posted 4/11/2008 10:59 AM (GMT -7)   
I have been on humira for about 2 months.  i took a loading dose of 4 pens, then 2 pens two weeks later and then 1 pen every other week. I felt good after the loading dose but 1 pen every other week doesn't seem enough.  I am about to start weekly injections.  What dosage does everyone else take and how long did it take to see some good results?

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/11/2008 11:18 AM (GMT -7)   
i take two pens, once every two weeks......i don't know if it helps anymore, but I am not going to stop....because, then I would be on nothing at all except pain meds.
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/11/2008 11:22 AM (GMT -7)   
Yep I know that feeling Glad!!!

In fact I may not be able to take anymore, due to elevated liver enzymes. I wonder why some people just cant take these
drugs....I'm P*****
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 4/11/2008 11:58 AM (GMT -7)   
I take a shot every Wednesday sinc ethe 2 week schedule wasnt helping enough.
DX with UC 8 years ago/Re-Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Lialda(new) 2 per day
Rowasa / 1 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
Colazal/ 9 per day
Entocort/ 3 per day
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/11/2008 6:25 PM (GMT -7)   
I started out taking mine every other week but stoped working as well so I know take it evey week and since doing so I can tell a differents.
Curley
.........
 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/11/2008 8:52 PM (GMT -7)   
I'm at every other week still, and have only taken one in the middle of that 2 week period when I was getting stressed out and started to have signs of flare.

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/12/2008 12:29 AM (GMT -7)   
I started as you did with the humira in Sept. While I was waiting for it to be approvedthru my insurance my fistula appeared. I noticed 10 days after the injection my joint pain, abd pain and fistula drainage increased. In Nov my Gi staryed me on 1 shot every week. I had to have Sx to rid me of the fistula on 1-11-08. I had to skip a week in Dec since I had a sinus infection and my Cd knew it! My last dose of humira pre op was 1-4 Traditionally you must wait 1 to 2 weeks before using humira post op. Unfortunately I got yet another wound infection so I had to wait til the infection cleared. My GI had me start back on humira on 2-27. He had me.try every other week at 1st but my CD had already been acting up. As of 3-19 I was back on every week and I am still having issues but much more mild
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Jillybean1887
Regular Member


Date Joined Jan 2007
Total Posts : 56
   Posted 4/12/2008 8:26 AM (GMT -7)   
My doctor has changed me to every week as well and it seems to help.

Jill
Diagnosed with Crohn's Disease in 2000
Bowel Resections 6/05, 11/05 & 7/06 (removal of terminal ileum and appendix)
Humira 40mg. every week
Percocet 10/325mg
Codeine 30 mg.
Cymbalta 30 mg.
Xanax 0.50mg
Phenergan 25 mg.
Zofran 8mg.
Hydroxine 25mg.
B12 Injections monthly


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 4/12/2008 8:36 AM (GMT -7)   
I'm so glad to hear that people are seeing relief on the every week dosage. I can totally feel that the Humira was working for me, as I actually have formed stools, but I could tell that I needed more. My dr just increased my dose to weekly, after a flare when I finally got down below 5mg Prednisone. It's only been a week, so fingers crossed this will do it.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Currently on 40mg Prednisone again since mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week, Start slow Pred taper


MYP
Regular Member


Date Joined Apr 2007
Total Posts : 28
   Posted 4/12/2008 10:28 AM (GMT -7)   
thanks so much to everyone who posted, i'm glad to see that many others are also doing every week.  I am only the third patient my dr has put on humira so he is still fairly unfamiliar with the drug and dosage.  lets keep our fingers crossed that everyone feels great very soon.

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 4/13/2008 12:56 PM (GMT -7)   
My doc said I'm only the second person he's put on Humira, and he wants me to come off of it after the Azasan takes effect. Right now I'm taking Humira every other week, 100mg of Azasan daily, and 40 mg of pred. I had tapered down to 20 mg of pred, but had a bad flare last week. I'm really not sure Humira is doing much, if anything, however I would much rather up the Humira dosage to see if it works better than stay on the higher dose of pred.

Somehow, the pharmacy has completely screwed up my Humira prescription; they think a month's supply is four pens. So it would just be a matter of starting to take one weekly. I know I shouldn't do it without my doc's permission, but he really doesn't want me on the Humira to begin with. But I'm seriously thinking of going to every week just so I can see if I can get the pred down to 20 mg or less. I *hate* taking this much pred.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


pepperpina
New Member


Date Joined Apr 2008
Total Posts : 7
   Posted 4/17/2008 10:56 AM (GMT -7)   
i've just been approved for Humira and should be starting tomorrow. 4 injections, 2 injections in 2 weeks and 1 injection every other week following. Just asking about side effects. I have 2 fistulas that are constantly draining and haven't had pain in a while except that I have extreme bloating (feeling blocked) and lots of gas. My gastro has me on cipro, which has helped. Just feeling a little worried about possible side effects.
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