Crohn's Disease and Arthritis

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Regular Member

Date Joined Apr 2008
Total Posts : 31
   Posted 4/11/2008 2:47 PM (GMT -6)   
Hi everyone,
I am new to the forum.  I was diagnosed with CD in 1972.  I have have 3 bowel resections.  I have taken everything there is to take for CD.  I am currently on Humeria injections 40mg. every other week. 
I have also been diagnosed with fibromyalgia and arthritis.  The doctors are not sure if it is RA or Crohn's Arthritis. 
My question is how many of you have CD and fibromyalgia and or arthritis and what is you current treatment?
Thank You.

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 4/11/2008 3:25 PM (GMT -6)   
Hi Maggie. I have RA and CD. I was dx'd with JRA at the age of 8, even though I'd had it since the age of 2. The CD didn't show up until I was 16. However, the docs said it was probably there "first" and not the arthritis. I disagree, but whatever. I'm on asacol, pred, and remicade for the CD. Haven't seen a rheumy since I started remicade 6 years ago because it keeps everything quiet on the RA front.


New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 4/11/2008 5:19 PM (GMT -6)   
Hi - I had been diagnosed w/ UC in 2004 and then last year my GI changed it to Crohn's, and just since January have been having joint pain and inflammation and have been diagnosed w/ RA. (I still wonder if it's the Remicade causing it or if it actually is RA though). I am currently on Remicade, MTX, folic acid, calcium and tapering prednisone. Good Luck, AKG
29 years old
Diagnosed w/ UC in 04' after 1st child; Diagnosed in 06' w/ Crohn's colitis; Diagnosed 2/08 w/ RA
Current meds for Crohn's: Remicade,
Current meds for RA: Prednisone 20/10mg alternate daily, meloxicam 15mg daily, MTX, Reliv' nutritional supplement daily

New Member

Date Joined Nov 2006
Total Posts : 16
   Posted 4/11/2008 7:33 PM (GMT -6)   
Hi I have taken Remicade in the past for crohns. I had to stop taking it after I had a reaction to it. about 2 months before I stopped taking Remicade is when my pain started and here I am still dealing with the pain almost daily for the last 2 years. I have had every test, xray, scans you could think of and they cant find anything, so then my GI sends me to the Rheumy and just more tests, referred to other MD's and nothing, finally on my last visit to the Rheumy I was put in a room to watch a video on Fibromyalgia, so I guess that is what he says I have but of course my GI doesnt agree, he believes it is Crohns arthritis. The weather will really make things bad with the aching. I work outside the home so I can only take minumum amounts of Advil(due to crohns) during the day and before bed I take a darvacet and a muscle relaxer just to get some sleep so I am able to go to work. I have also tried physical therapy which didnt really do much, so I started to do some exercises and it and it does seem to help a little bit. Well, I wish you the best and if you get any helpful info let me know.

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 4/11/2008 9:11 PM (GMT -6)   
Hi,Before I was diagnosed with Crohns I started having some real issues with my joints were killing me all of the time and it had seen they were getting worse by the day and no matter what I tried I could not get any relife.When I got real sick and found out what was wrong I told my GI about my joints and was told that a lot of people with Crohns suffer with joint pain and that was why my joints were hurting.My problem they were not getting any better infact worse and I started swelling in my joints and severe inflamation,so my GI sent me to see a Rhuemy and she did every test you could thank of a I was told that I had RA and OA I was shocked that all of this happen rather quickley and I was only 35.I still suffer with my arthritis.I agree with Crohnie when it is cold or rains it makes my joints hurt worse.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7055
   Posted 4/12/2008 12:55 AM (GMT -6)   
Welcome to Healing Well, MaggieLou! I have osteoarthritis [wear and tear type because I am older] and ankylosing spondylitis [AS]. My AS acts independently of my CD. At first it was thought that I had arthritis associated with CD. But then when my guts were in remission and my joints continued to have lots of problems, it was determined that I had AS. AS occurs in a small percentage of people that have CD. I was on Remicade, then Humira for my AS. I had reactions to both and am now trying to maintain joint function by periodic steroid injections to the problematic areas.

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 4/12/2008 4:07 AM (GMT -6)   
Hi and Welcome to HW, I have Crohn's , Osteoarthritis and Rheumatoid Arthritis. Both my Arthritis's are independent from my CD.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Regular Member

Date Joined Jun 2005
Total Posts : 87
   Posted 4/13/2008 7:47 PM (GMT -6)   
I also have been told that I have crohns induced arthritis, I just don't understand how it all intertwines.  does anyone else understand this?

Veteran Member

Date Joined Apr 2007
Total Posts : 531
   Posted 4/14/2008 12:12 AM (GMT -6)   
Welcome. I also have the same things you have except fibromyalgia plus psoriasis HX and am currently on humira and pred (down to 5mg) but sitting on the edge, probably needing a sl higher dose. I am switching GI doc's currently and he will probably put me on asacol or entocort (but even with co-pay it is $75.00 a month).
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 4/14/2008 9:24 AM (GMT -6)   
MaggieLou, I have Crohn's and what the GI and rhemy call "Crohn's Related Arthritis." Most of the time now, the arthritis is my biggest complaint. Remicade did help some, until I had to stop taking it due to allergic reactions. I am now on a clinical trial for Cimzia, which is similar to Humira. That helps with the joint pain, but I still have to take Ultracet daily in order to be able to do the things I want to do. Exercise seems to help a great deal.

amyapo, I've heard of a couple different reasons. One is that if you have inflammation in your intestines, colon, wherever, you can also have it in other parts of the body. Just your body's messed up response. I've also heard that Crohn's treatments, such as Remicade, can cause lupus. My rheumy did blood work to check for "medication induced lupus," as I started having joint pain three days after a Remicade treatment. Mine came back negative, so they are just calling it "Crohn's Related Arthritis."
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4

Regular Member

Date Joined Aug 2004
Total Posts : 334
   Posted 4/14/2008 9:15 PM (GMT -6)   
I have Crohn's and Fibromyalgia. Just recently was diagnosed with ' AnkySpond '. I am still waiting to get an appointment with a local Rheumy. For now, my family doctor has me on Oxycocet for the back pain. Seems like everytime I get diagnosed with something new, I am always told that this new thing is "crohn's realted" I am getting pretty sick of that description!!

Regular Member

Date Joined Feb 2007
Total Posts : 123
   Posted 4/14/2008 9:38 PM (GMT -6)   
Unfortunately, autoimmune disease doesn't just affect one part of the body.  I had  arthristis before the onset of Crohn's.  When I was in my teens, my knees would swell up and have to be drained every year or two.  Some days I couldn't walk down stairs for the pain in my knees and hip.  After many many years of pain and no help from rheumy's other than NSAIDS that my stomach couldn't tolerate, I went to a new doctor and asked him to please put a name to the arthritis - and he did - inflamatory arthristis associated with Crohn's.  The good news was that it was not crippling, just painful.  I exercise for at least 20 minutes most mornings to keep my muscles toned.  My pain is in the muscles surrounding the joints, even surrounding my ribs.  During the past 33 years, I have also developed episcleritis in one eye, oteopenia from steriods and not being able to tolerate calcium supplements or anything with lactose.  I guess a yogurt a day wasn't enough. 
To all of you that have been diagnosed the past few years-  you are lucky that so much has been learned about this disease.  Back in the '70's, so little was known and few drugs were available to treat Crohns.  Keep supporting the Crohns & Colitis Foundation so research can continue.  I'm praying for some major breakthrough while I'm still kickin'!
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