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dragonfly137927
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Date Joined Sep 2006
Total Posts : 2527
   Posted 4/12/2008 1:30 AM (GMT -7)   
I was wondering the different probiotics supplement you all take or tried? Also which probiotics are in your supplement? Do you find taking it at any 1 particular time of day or with certain foods makes a difference?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


maz
Regular Member


Date Joined Apr 2003
Total Posts : 34
   Posted 4/12/2008 2:24 AM (GMT -7)   
I take VSL#3. It makes a big difference. I take it once a day, with breakfast - mixed into natural yoghurt. Have tried it mixed into drinks, but it seems to work better with yoghurt.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/12/2008 3:41 AM (GMT -7)   
I have used align and another seperate pill with acidophilus. My GIgave me the align to try and help with the odor thinking maybe that would help since my surgeries. I am looking for more options now. That align had 2 probitoics in it and then the other 1 I have is in my fridge they were both in pill form. Where do you get VSL?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/12/2008 7:14 AM (GMT -7)   
i rotate between garden of life's primal defense ultra and Th1-s about every 3 months. i've heard a lot of good things about vsl-3.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/12/2008 9:24 AM (GMT -7)   
I take garden of life primal defense.

Crazy Harry, when you started the GOL dig. enzymes, did you notice any pain in upper tummy?

Since I started taking them, I've been getting pain in my upper right side. I'm not sure if it's because the stool might be slowing down a little and therefore more difficult to go through the stenosis, or if I'm having gall bladder problems or something.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/12/2008 10:32 AM (GMT -7)   
I have great success with primadophilus reuteri made by natures way...only one/day is needed, it has guaranteed intestinal release and aids with high cholesterol, lactose intolerance and vaginal health for women, of course it's perfectly fine for me to take too.

It's priced right too, in Canada I pay 29.00 for 90 caps and since only one/day is needed (many call for you to take up to 4 or more/day) it's very cost effective since for 30 bucks it lasts me 3 months basically.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 4/12/2008 5:13 PM (GMT -7)   
pb4 where do you buy your probiotics at in Canada? I would like to see if I can buy it at those prices! I paid $26 for 30 tablets?
 
 
p.s. Mine are the "pearls"  does that make a difference? are they more expensive?
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/12/2008 5:16 PM (GMT -7)   
A healthfood store called Sangsters, I'm pretty sure they are canada wide.

I don't know if pearls make a difference or not, I've never tried them and I'm not aware of their price for the pearls.

Good luck!
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/12/2008 7:34 PM (GMT -7)   
Most people around here can attest to the fact that I've tried practically everything under the sun to control my diarrhea...I have tried a TON of probiotics and then my GI recommended VSL#3...it has been a freakin' lifesaver! My bathroom trips have been cut in half.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 4/12/2008 8:04 PM (GMT -7)   
thanks pb4, I will check it out!
40 yr old wife and mom to two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Feb/2006
meds: pentasa 500mg 2 x 3day,probiotic,fibre supplement,mult-vit
Surgery-Feb11/08 (resection)
 


maz
Regular Member


Date Joined Apr 2003
Total Posts : 34
   Posted 4/12/2008 8:44 PM (GMT -7)   
dragonfly - you were asking about where to get VSL#3.... don't know how much help i'll be, because i'm in australia. we only have one distributer here, and so it's expensive (and not covered by our healthcare system). but i think if you type it into google the first site that comes up should be useful.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/12/2008 9:24 PM (GMT -7)   
Yes, VSL#3 has their own website. You can either order from there or you can do a search there of local pharmacies that carry it. My local Walgreens got it for us, though they took too many weeks to get it.

I believe VSL has something like 8 strains and 450 billion viable organisms. I have read here, though, that one should take the capsules rather than the powder pouches. I think it was corn starch or some other additive in the pouch version that folks said wasn't so good for Crohnies. The capsules have no corn starch. They ran about $45 for 60 capsules. The capsules are 1/2 the strength of the powder pouches--225 billion critters in each one. When my son took VSL he only took one capsule a day.

We have used Theralac for nearly a year now. It also has its own website and that's where I order it from--Therabiotics, in Victoria, MN. It has something like 6 strains and 20 billion CFUs (colony forming units) in an acid-proof formulation...or something like that. We used VSL in addition to Theralac a few months ago when my son had to take an antibiotic for a bronchial infection. We had good results with it, too.

Sarita mentioned her bathroom trips were cut in half with VSL. My son reported this, too, and he typically goes only about 3 times a day. He actually wasn't so sure he liked that number cut in half! Go figure! confused
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/12/2008 9:53 PM (GMT -7)   
VSL#3 is actually undergoing FDA testing to be considered as a formally approved treatment for ulcerative colitis and IBS. It has Bifidobacterium infantis, which has shown to be significantly more effective in relieving both diarrhea and constipation than placebo. You could probably get B. infantis on its own, I'm not sure how, but VSL#3 has 7 other strains of probiotics (1 streptococcus, 3 bifidobacteria, and 4 lactobacillus) and somehow they seem to be pretty helpful as a combo.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/12/2008 9:55 PM (GMT -7)   
P.S. VSL#3 is kind of expensive - $40 a month - and is not covered by insurance but it has ultimately saved me a lot more than that in terms of quality of life! I got it from the hospital where my GI practices (I think he requested they start carrying it) but recently ordered it from the website and it arrived within a few days in a styrafoam container with cold packs. I keep it in the fridge until I load up my pill case for the week...a few days of non-refrigeration won't hurt it, but just in case.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/12/2008 11:05 PM (GMT -7)   
roni -

no, i dont get any pain from taking the GOL digestive enzymes. in fact, imho, the whole reason to take digestive enzymes is so that you do NOT get stomach/abdominal pain. the only times i get those pains now is if i stray off the diet and eat something i shouldnt have or something questionable, which is most likely to happen if i eat out.

so all i can suggest is to think about what you ate when you got those pains as it may be the food that induced it, did you take enough digestive enzymes (like 3?), or perhaps try a different digestive enzyme all together.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/13/2008 10:58 AM (GMT -7)   
Does anybody take probiotics who tend toward constipation? I was taking VSL 3, but it seemed like I was getting even more contipated, but I'm not sure if that is the reason.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/13/2008 4:13 PM (GMT -7)   
I see my GI tomorrow and I will ask him about the VSL 3. The odor of my gas and feces post op is unbearable and it lingers forever. I tried acidopholis which I have been taking even before surgeries to help since when I was on imuran and remicade I was getting a vaginal yeast infection every other month. I tried the align but it didnt help. I may look at GNC in the states if I am near one before going online. As for them making a capsule that is a good thing the only powder mix I was ever able to tolerate was miralax...obviosly no need for that now. I am also looking for something to help my D from having 1.4 colon left in me since questran didnt help. I wonder if it will be painful though since if I eat and it sits in the area with the anastamosis I am in lots of pain and it can last for hours.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/13/2008 7:17 PM (GMT -7)   
I take Kyo-Dophilus, it's lactose intollerant friendly. 

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/17/2008 2:28 PM (GMT -7)   
There isn't necessarily any guarantee that taking probiotics will aid with "odor", although I still highly recommend everyone takes a good probiotic daily and indefinitely (flaring or not)...for "odor" issues try chlorophyll, it does wonders for that...it's suppose to be beneficial for the gut too, I took a large bottle over a couple of months but didn't find it benefited my IBD symptoms, just gave me green poop.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 4/18/2008 6:20 AM (GMT -7)   
Crohn'snme - that is what I swear by. Do you take the 3 strain or the 9. I think they just came out with another formula. I pick mine up at Whole foods or a local small herbal store. I like the fact they are shelf stable and do not have to go in the fridge. I think they were the first on the market that was. Now I see a couple more that say they are, but I figure why mess with a good thing.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 4/18/2008 7:08 AM (GMT -7)   
gumby44 said...
Does anybody take probiotics who tend toward constipation? I was taking VSL 3, but it seemed like I was getting even more contipated, but I'm not sure if that is the reason.

gumby....I am CD/C and just started taking Align 3 days ago. So far I love it. I have a stricture and worried about it constipating me even  more and causing a blockage. I have felt really good during the day where ususally I tend to have some sort of discomfort with cramps, etc. It has almost had a slight stool softening effect on me so I am planning to stick with it through the rest of my 28 day samples and then order more. Go to their website for more info at www.aligngi.com. Good Luck!  Oh....align is lactose free!!! Yeah!


~Never officially diagnosed~
Appendectomy in 2001. Appendix perforated & gangrenous. Had pain off and on for 3 years prior. This is where all my trouble started.
Hospitalized in August 2005 with a bowel obstruction.
Colonoscopy showed definite colitis, SBFT showed narrowing of the Ileum and a possible fistula.
Both tests came back as consistent with CD.
2nd bowel obstruction February 2008. Got through it at home.
Currently not on CD meds. Following a low~residue diet and taking fish oil daily.

Post Edited (mom2carrington) : 4/18/2008 8:11:07 AM (GMT-6)


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/18/2008 1:34 PM (GMT -7)   
I forgot to ask my GI about it when I was there the other day he ran another sed rate and crp on me I called today looking for the results but he works a half day on Fridays. He mentioned bentyl to me and I also explained some of my more common issues since increasing the humira as far as symptoms. The humira has helped tremendously as far as CD symptoms but he feels I also am suffering from IBS and after reading symptoms I feel he is correct and I rather go with a more natural approach if possible but I do not like yogurt and the fruit ones are a no no for me since I am allergic to most fruits I couldnt stand vanilla flavored etc.

I talked to my godfathers wife who use to be an Ped ICU nurse until her med issues prevented her from working anymore and she has many more food allergies than I to see if she had heard of or tried VSL and she is going to look into it. She cannot even take regular meds her B12 is the refrigerated 1 without additives since even preservatives make her allergies act up badly
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 4/20/2008 7:35 PM (GMT -7)   
Two questions (to keep the discussion going)
1- What is the web site for the VSL#3?
2- A friend of mine is a dealer for Candida and she swears that it is the best ever and that the rest of it doesn't get absorbed and blah blah blah. I currently take Florastor. Does anyone have expereince w/ Candida as to whether it is a scam or not?

Thanks!

JD

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/21/2008 5:14 AM (GMT -7)   
jid said...
Two questions (to keep the discussion going)
1- What is the web site for the VSL#3?
2- A friend of mine is a dealer for Candida and she swears that it is the best ever and that the rest of it doesn't get absorbed and blah blah blah. I currently take Florastor. Does anyone have expereince w/ Candida as to whether it is a scam or not?

Thanks!

JD


Hi JD! Here is the VSL website:

http://www.vsl3.com/VSL3/default.asp

Also, I am only aware of Candida as a condition (systemic yeast overgrowth in the body). Is there more to the name of your friend's product?

How is Florastor working for you? It has just one strain of a yeast probiotic which Elaine Gottschall said is NOT beneficial for IBD folks (S. boulardii). That particular strain is not found in the probiotics most folks here take. Just curious....
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 4/21/2008 10:42 AM (GMT -7)   
Thanks for the website!

RE: Florastor - I've change sooooo many variables at one time that I have no idea if it is working or not.

RE: Candida - I went back to the marketing emails she sent me. The products are Candida-G and Flora-G. The only website I could find was http://road-to-health.com/better_than_antibiotics/ but it doesn't really say that much.

so I really don't have a clue. Which is why i was asking. I'll try almost-anything once... so i may just try it. but i'd love to hear if someone else has first.

J
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