Fluid retention from Remicade?

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 4/12/2008 4:58 AM (GMT -7)   
Hello everyone!  I was wondering if anyone ever feels "puffy" after their Remicade infusions.  I always feel like my hands and feet are swollen, and I get a puffy feeling in my face.  Occasionally, a little short of breath a few days after.  I've had blood tests and It says I'm NOT developing Remicade antibodies.  My lungs are always clear.  Does anyone get fluid retention?  If so, do you do anything about it?  It's so uncomfortable....  Julie
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 50mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 4/12/2008 11:50 AM (GMT -7)   
You could possibly have fluid retention. They give me at least half of a bag of fluids with mine, so if you are normally well hydrated and then get the extra fluids on top, I would think it is possible. I guess I have never paid much attention to it. When I eat alot of salty foods, I'll notice my hands are puffy, but I have never paid attention to see if it goes with my remicade infusions or not. Maybe I'm baming the food, and it's not the food. I'll definitely be paying attention now!

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 4/12/2008 2:03 PM (GMT -7)   
Thanks, Chroniemomx2! I don't eat much salt, but I'll watch out for it.
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 75mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 4/12/2008 5:58 PM (GMT -7)   
Yes, I know the puffiness you are talking about. I did the same thing on Remicade. My gi just kept a watch on me because I was already on diurectics. Susie


Hokie
New Member


Date Joined Apr 2008
Total Posts : 2
   Posted 4/13/2008 6:19 PM (GMT -7)   
I am new to Remicade, just had my 3rd infusion. However, I have noticed the puffiness. More in my hands, fingers and feet. I have also noticed that I have gained some weight, not greatly, but enough that I can really tell - 7-10 pounds. Have you had that as well?

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 4/14/2008 2:21 AM (GMT -7)   
Hokie, I've gained about 20 pounds in one year since being on Remicade.

Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12.5mg a day
Imuran just increased to 75mg
Acidophilus daily
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 4/14/2008 3:42 AM (GMT -7)   
I guess I was one of the lucky ones, I did not gain weight, I lost weight. I was on Remicade about 3 1/2yrs every 4 wks. Susie

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