It's flare time

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General Colon Bowel
Regular Member


Date Joined Nov 2003
Total Posts : 282
   Posted 4/13/2008 11:14 AM (GMT -7)   
So............
A year after two successful 'cade infusions, I am flaring........I know I'm flaring.....my wife knows I am flaring.....but is that good enough for the Doc? No......
 
So, before we procede with "possible unneccessary treatment options" he is putting me back on Hyoscyamine
 
this time, double strength....and if, after a week or so, I dont get any relief, we will go on to the next step.....
 
Because, as he said, I might not have chrons right now.................... eyes
 
General Colon Bowel
 

Lynn
Regular Member


Date Joined Jan 2003
Total Posts : 492
   Posted 4/13/2008 12:21 PM (GMT -7)   
Wowwee.... isn't it funny how us patients who have lived for so many years with this disease have absolutely no clue when our illness is active? NOT!!!! I feel for you. I really hope he doesn't take his time coming to the conclusion that you just might be in a flare again.
Hoping you feel better very much sooner than later...
Dx'd with crohn's 1983, resections 83,85 and 89 Double Strictureplasty 2005, Dx'd COPD 2000, Psoriasis 2002 and Fibromyalgia 2005.
Currently takeing Humira, Pentasa, Lomotil, Elavil, Sinemet, Skelaxin, Advair, Abuterol, Oxycodone and Xanax as needed

Post Edited (Lynn) : 4/13/2008 3:53:58 PM (GMT-6)


Sharann
Veteran Member


Date Joined Sep 2005
Total Posts : 778
   Posted 4/13/2008 12:33 PM (GMT -7)   
Yeah, and "you don't LOOK sick either!!!!" HA hahaha
This is what drives me berzerkers with these folks. When will they
realize that the patient knows, they know. When you say you are flaring
you might actually have a clue.
Hope your flare is short lived.
I am a Certified Doxie Lover(Weinerdogs)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/13/2008 1:39 PM (GMT -7)   
So.... Crohn's really isn't a chronic disease?!? It comes and goes??? I think this is a major medical revelation. Or maybe, just maybe, your Dr. doesn't know what he is talking about.

Wish mine would go and not come back.

I wonder if this Doc is competent to treat you....

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 4/13/2008 3:49 PM (GMT -7)   

I am so sorry you are flaring again... I started up recently as well. My Doc requested I make an apt before he would refill my imuran (azropthrine sp?) so he has perfect timing.

I am lucky my Doc keeps trying to get me into remission and is sympathetic. I hope yours realizes you can probably tell a flare is coming even before it starts. Heck I can and I have only known about this disease for a year now.

good luck!
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/13/2008 4:05 PM (GMT -7)   
I know how you feel.  I started to flare back in august 06 and had been in remission for a year before that thanks to remicade.  Even with a CT and a CTE showing active CD he still and I quote "patient still claims to be flaring" I only know that because I had to get a copy of my PPD test to my new doc prior to humira can you believe that and 1 of those tests was done 1-8-07 and I was hospitalized for a perforated ilium on 2-11-07

Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/13/2008 4:23 PM (GMT -7)   
Hi Hope you feel better soon and things get better with the meds. lol gail

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/13/2008 4:43 PM (GMT -7)   
I feel for you general. It's so amazing that a flare can sometimes be irritated bowel!!!!!

I just wonder that after we usually prove them wrong, we never get a I"m sorry.......
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 4/14/2008 12:49 AM (GMT -7)   
hey general, long time no read. too bad its for this reason huh? have you ever thought of changing services? if you havew to have another scope, it would be cool to be a "rear admiral" dont cha think?
randynoguts 



     http://www.geocities.com/randynogutsweb/


General Colon Bowel
Regular Member


Date Joined Nov 2003
Total Posts : 282
   Posted 4/15/2008 4:08 PM (GMT -7)   
randynoguts said...
hey general, long time no read. too bad its for this reason huh? have you ever thought of changing services? if you havew to have another scope, it would be cool to be a "rear admiral" dont cha think?

ZING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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