I am steroid free!!!

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ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/14/2008 3:50 PM (GMT -7)   
I just had to share this; I'm so excited. I stopped steroids today! I've been stuck on high doses for five years straight, and can't believe I'm off them at last.

We just have to watch now to see if my adrenal glands can cope... Wish me luck...

What should I look out for? Excessive fatigue? Anything else?

I.
Co-Moderator Crohn's Forum.


oldcrohnie
Regular Member


Date Joined Feb 2007
Total Posts : 123
   Posted 4/14/2008 5:02 PM (GMT -7)   
Congratulations!  I hope you continue to do well without the pred. Can't help with the symptoms to watch for since I've not been on pred for more than a few months at a time.  I'm sure there's a lot of info on the net, though.  Are you on any maintenance drugs? 

mel05
Regular Member


Date Joined Jan 2008
Total Posts : 87
   Posted 4/14/2008 5:04 PM (GMT -7)   
way to go!  While you have been on much longer than I, I am happy to say I have made it almost a month steroid free.  Knock on wood. yeah   I have only been on it since I was diagnosed in January.  But congrats and I hope you continue to do well!
Diagnosed with crohn's in January 2008! 
Pentasa 1000 mg 4 times a day
On Topamax twice daily for migraines
On nexium - continuing for a month or so...the pred upset my tummy pretty bad. :-(
 
I am 27 years old and have been married for 2 years.  I cannot wait to try to have children so I want to get this under control!!


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/14/2008 5:10 PM (GMT -7)   
If the adreanals can't cope you will know, nausia, vomiting, flu like muscle pain... This would be a medical emergency so 911 if this happens to you.
Congratulations on getting off the steroids I hope you do well without them.
Sj

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/14/2008 6:15 PM (GMT -7)   
If you are succesful don't forget we must iniate you into the club! Anyone with FUN suggestions? <wink>

Sincerely,
Matthew

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/14/2008 6:28 PM (GMT -7)   
*wry smile* what about a sleepathon?

oldcrohnie, yes I am on maintenance drugs, including Humira - absolute wonder-drug, as far as I'm concerned. I'd be stuck on high doses of steroids otherwise. Have been for much of the last ten years - only had about two years off them before I was v sick and needing them again.

I.
Co-Moderator Crohn's Forum.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/14/2008 6:36 PM (GMT -7)   
Whooo whoo!! Congratulations. Five years can not have been fun. How long did the weaning process take? Hopefully you are done with them forever!!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/14/2008 6:55 PM (GMT -7)   
Way to go!!!!! I'm trying desperately to join your club. I'm down to 4mg and hoping to drop by 1 again soon. How slowly did you go? I've found that any faster than 1mg every 6 - 8 weeks and I can't take the side effects. So I'm going really slowly. But I'm so encouraged when I hear of others who have managed to get off the evil pred. yeah
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/14/2008 6:57 PM (GMT -7)   
about two months, believe it or not. Yes, I know that sounds fast; I think so too; but I do trust the drs.

I.
Co-Moderator Crohn's Forum.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/14/2008 6:57 PM (GMT -7)   
Zoooom, whssshh, screeeech....off steriods! I'm clickin' my heels for you!!!! Mmmm....for me, withdrawal meant joint pain...but I'd still take that over the steroids any day! Good Luck!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.

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