URGENT HELP Surgery due and Pregnant help think I'm Flaring

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Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/15/2008 1:41 AM (GMT -7)   
Went for my pre op appointment yesterday had bloods done and the surgery explained I'm having a Hemi-Colectomy and lap next Tues 22nd 7 days.
While I was there I got them to check if I was Pregnant been trying for six years but have had two miscarriages so thought it was slim and I'm only a week late,
 
Nearly died when the nurse rang and said the test was positive. I know for sure my baby was concieved on 28 March cause we were trying to be careful knowing the surgery was coming up. Took my last dose of Prednisolone 29 March.
 
So my delema is surgeon and specialist are still wanting to go ahead with the surgury and no meds till after surgery is finished but I think I'm starting to Flare now haven't felt good last three or four days but yesterday and today I've had the D's not so much pain just D's and thats what happened last two times I miscarried.
 
So anyone got any natural ways to temp control Flare. Or any other suggestions PLEASE HELP I cant lose this baby too

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 4/15/2008 2:46 AM (GMT -7)   
You poor woman....I can only imagine how frantic you must feel. My only suggestion for you, is to try and get as much rest as possible right now....maybe go to a complete liquid diet....boost, ensure etc....
What do your doctors say are your chances for this baby? Is there any way to postpone the surgery until after you've had the baby. Many moms here have had healthy babies while on CD medications. I flared terribly through my 2 pregnancies, took no meds, but was bedridden because of toxemia(high blood pressure leading to eclampsia). I 'm happy to say that my prayers were answered and I now have 2 beautiful daughters ages 18 and 19. Don't despair. My prayers are with you.
Keep us posted ok.
Love and prayers for you and your little one,
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/15/2008 3:12 AM (GMT -7)   
Thank Marie-Claire
What is the Liquid Diet boost you mentioed ???
I was dx with Crohn's in Jan this year but been sick about 8-10 years
they say they cant postpone op cause I've been distentered since Jan with partial blockage really look six months pregnant not 3 weeks
Dx Crohn's 17/1/08
Endometrosis 2002
Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
   
 
 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/15/2008 4:17 AM (GMT -7)   
Hello Christiny,

I am so sorry to hear about your situation! Sounds like you need the surgery. I'm praying for your baby's health and yours too!

The Boost and Ensure that Marie-Claire mentioned are products you buy in cans or bottles. They are designed to supplement your food but are also good by themselves when you can't tolerate solid food. They are like a milkshake and come in several flavors.

I've read many posts on this Forum from women who have had children while on Crohn's medication. Just make sure all your Doctors know you are pregnant so they can give you the best medications.

Please let us know how you are doing!

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/15/2008 4:44 AM (GMT -7)   
Christiny, I was at a CCFA seminar recently and someone told me that her son has done real well on an elemental diet, using a product called AbsorbPlus. It is only sold in Canada and is purchased on line. You mix it with flaxseed oil. It was developed by a woman with Crohn's Disease. The downside of this product is that it's expensive. I bought one tub and with shipping, it came to about $65. One tub = 10 servings. I'm also having surgery April 22nd and I'm going to try the AbsorbPlus tonight for the first time. I want my guts to be calm before surgery. I wish you good health.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira and Entocort.


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 4/15/2008 6:36 AM (GMT -7)   

Wow,that's alot on your plate.I know what it feels like to wait so long for a baby,and suffer from miscarriages,it's very stressful.  Just make sure you verbalize all your fears about you and the baby to BOTH doctors,they do tend to put Mom's health first.I have seen,as a nurse, pregnant women go through successful surgeries and pregnancies,normally in the second-third trimesters,I think I had one lady a few years ago that was 14 weeks,and had her gallbladder out.

Please keep us posted,and best of luck.

 

Hugs


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 4/15/2008 8:37 AM (GMT -7)   
Start the Specific Carbohydrate Diet immediately.  I have done the diet a few times, quite successfully.  In fact, the first time I did the diet my major symptoms disappeared within a week to 10 days.  Three months into the diet I got pregnant (2 prior miscarriages) and I STAYED pregnant. Three months into being pregnant I went into remission and stopped the diet.
 
This link will tell you more about the book and the diet.
 
ALSO - you could be flaring BECAUSE you are newly pregnant. The shift in hormones can really wreck you. BUT, it probably won't last very long (fingers crossed).  You also might want to consider meds. I know it's not the "best" option, but it is possible. I have 2 healthy kids and took all of my meds while pregnant.  You CAN postpone the surgery if you want to, don't let them bully you into it. If YOU feel you really need it, then ok, but don't let them push you into something you don't want to do.  Waiting a week or two isn't going to make a huge difference to the surgeon, so you do what's best for you!
 
Keep us posted and don't panic - there IS a solution!
 
Stef

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/15/2008 2:51 PM (GMT -7)   
Thanks to all of you
I spoke yesterday with my Crohn's specialist I asked her for meds she disaggreed wants me to talk with the surgeon tomorrow when his back from east Temor but she reckons he'll go ahead that I wont last another 40 weeks, to make me feel more uneasy my ob is on holidays til monday and my general doc gets back today thank god cause I've had some silly rash for about 2weeks he told me to take telfast which is fexofenadine hydrochloride read back of box this morning and says consult doctor if pregnant or becoming pregnant. what a mess spoke with hubby last night his worried liquid diet may starve baby of needed nut cause we dont have boost or ensure here in australia but I'm sure we must have something like it.
Dx Crohn's 17/1/08
Endometrosis 2002
Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
   
 
 


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 4/15/2008 3:40 PM (GMT -7)   
Christiny, I am so sorry to hear of your situation. I am always drinking Ensure because it has several vitamins and minerals that your body needs, and when I'm flaring I just don't absorb everything I need from food. Certainly talk to a doctor, but I wouldn't worry about starving the baby by going on a liquid diet - as long as you are very careful to choose the things that will provide adequate nutrition. Even if you were drinking the Ensure, you'd still need to include more than that to your diet. I tried to find a product similar to Ensure or Boost that is sold in Australia, but couldn't find anything...although I'm sure it exists there! They sell Ensure and Boost at most grocery stores here in the US, they are a nutritional supplement drink (and they are quite tasty too).

The other thing you could do is search online for good smoothie recipes. During a flare, I do try to avoid fruits because of the sugar content (encourages D), but you can do a good smoothie with the fruits you like, but include things like tofu (for protein) and flax seed oil (which helps the inflammation) and even add fish oil. Smoothies are a great way to pack in all those essential nutrients your body needs and they would be easy on your digestive system.

I hope that you are able to speak with your doc soon and they can give you some reassurance. Remember to REST and RELAX as much as possible. Right now there are several things happening to you all at once, and it is likely that this is not helping your Crohn's! So, as much as possible, try to trust that things will be okay. ((((hugs))))

My prayers are with you, your hubby, and your sweet little bump,
Melissa
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...nap anyone?
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007.  Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring off and on and trying to avoid steriods.  Visited a naturopath (aka angel), got a vitamin B injection and have started taking NF Formula's "RF Plus" with every meal.  Seems to be helping.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/15/2008 5:51 PM (GMT -7)   
Condulations on your preg. haven't much advice other then prenatal vitties. I hope things go good for you and try not to stress yourself out . Keep in touch. lol gail

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/15/2008 6:11 PM (GMT -7)   
Ive never been pregnant (nor wish to be lol) but I have always felt full when I do liquid diets. But it all depends on what you drink/eat. You have to make sure you get enough calories, fat, protein, sugar, and vitamens a day. I make my own smoothies and add slim fast meal replacement power, protein powder, soy milk, yogurt, bananna, etc. I drink broth like soups, eat apple sauce and jello, popscicles, etc. Next I graduate to a little rice and bread. Really bland, easy to digest. On the liquid diet you could also eat baby food!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/17/2008 9:38 AM (GMT -7)   
Hi Just wandering how things are going for you and if there has been any news on your possible operation. lol gail

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/17/2008 10:20 AM (GMT -7)   
just posted update preg and surgery been lurking again
thanks gail
Dx Crohn's 17/1/08
Dx Endometrosis 2002
Dx Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
No meds til after Surgery
4 Weeks Pregnant
 
 

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