so glad to find you

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Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 4/15/2008 12:26 PM (GMT -7)   
I've been reading all your posts I finely feel like I'm not alone. I've had 2 years of no ansures and making doctors up set with me. Because I haven't lost to much weight, the doctors didn't think I had CD. I have been told I needed to see a therapist, and all I had was IBS. They have changed their minds so many times so many test. I lost my job. I've taken so many drug on again off again.I don't understand what is going on .I go to the internet and read. My doctors I feel don't want to treat me. I'm going to try a new doctor, or doctors. Thank god I have my husbands insurance,because I passed my cap so, everything was covered. I've been in the hospital once for dhydration was 6 day, once reaction to a drug spent 3 days in ICU then sent to heart hospital had a cardiac catherization, found out my heart is fine. after third colonoscpy I was told I had CD. I hear you all talk about flair-up I don't think I've stopped. It all depends on the day as to how I feel and I always have pain. My adrinal gland is not working because of the entocort, but doctor said it didn't matter. But I'm so glad I found here, THANK YOU Ne Ne



49 female
June 07 diagnosed CD Drugs on: asacol 2x3 day, entocort 1x3 day, lotrel for high BP, omeprazole for stomach, potaseum, one a day crohn's & colitis therapy, calcium & vit D, lomotil for lose stools, tramadol for pain, and I started humira in Feb 08

Post Edited (Ne Ne) : 4/15/2008 1:44:57 PM (GMT-6)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 4/15/2008 12:44 PM (GMT -7)   
Welcome ne ne. You've passed the highest hurdle -- getting diagnosed. Sometimes it takes a long time. The process can make you feel beaten by the system. Now that you have a diagnosis, I hope you can develop a trust relationship with a health care team that specializes in crohn's and colitis.

Things will settle down once you have the right combination of medications and therapies and after you have grieved and accepted the reality of living with a chronic illness.
Belleenstein:

30+ years living with Crohn's.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/15/2008 1:31 PM (GMT -7)   
Hi Ne Ne !!! I guess you did make a new topic!! God for you!! I'm new to Crohns as well. I've posted for years in the Lupus forum, but new to Crohns . . . so nice to meet you!

I'm sorry you are still having difficult issues. I hope your doc can help sort things out with you. I'm sorry I don't know enough about crohns to make any suggestions.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Crohns, Diverticulosis, Sjogrens

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/16/2008 5:13 PM (GMT -7)   
Hi Welcome to HW and hope you find it as helpful as I have. It is a great place for info. Someone is always here to help and it is great to give some. Hope you find a good GI and get some care now. lol gail

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/16/2008 5:39 PM (GMT -7)   
Greetings, Ne Ne, and welcome. :-)

You have found the right place for information, inspiration and isolation resolution. CD takes a toll on us all mentally and physically. I would highly recommend that you do two things:
1 - Start and keep a log for food and health conditions, sypmtoms, etc. This will assist you during your visits to doctors.
2 - Obtain a copy of all medical records from doctors and tests/scans, etc. This will assist you during your search for a good CD doctor.

When you are feeling down and out and when you are having the all-too-familiar "bad days," come here and vent, post questions and/or read. IT HELPS!! This forum has been my saving grace.

Good luck to you!

-Leslie


yeah

Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 4/17/2008 5:18 AM (GMT -7)   
I want yo THANK all for your comments I thought I was going crazy till I found here. I read what others write and its me. I have a great family but they don't get it. I get so tired I used to be a stocker in a store moving rack & fictuers all day,to now I get tired to sweep the floor,to do laundry takes the day and every thing I have. To me this is crazy. In my mind I want it fixed so I can go on with my life. I hate doctors and the ones I have I don't trust, and I'm scared to find another one!!!!! But again THANKS to all.


Ne Ne

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/17/2008 5:29 AM (GMT -7)   
Ne ne
Welcome to HW
I am glad you found us too
Look back on older threads and I am sure there are posts that may answer some of your questions as well
The members here are very giving and caring and I am sure glad you now know you are not alone in this so many have this DD
STAY with us plz

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 4/17/2008 8:36 AM (GMT -7)   
So glad you are here....
isn't this place great?

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/17/2008 6:40 PM (GMT -7)   
NeNe, Wished you could find a good doctor in your area. It really helps. I take Probiotics, Humira, Asacal, Asacal Enema's, Nexium, Cymbalta. The Humira is new for me and is helping. When I first was diagnosed I felt overwhelmed to say the least. Try keeping track of how you feel and what you ate, maybe rate your days and how many bowel movements you have. Talke this with you to the doctors. They will realize you are serious about getting well!! I find that nurses are good in referring good doctors. If you know someone, ask. I'm glad you found this forum, it's helpful and reassuring, we are not ALONE!!!!!!!!!!!!!!!!!!!!!!!!!! Take care of yourself, no question is stupid so ask away. Janice

Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 4/21/2008 8:22 AM (GMT -7)   
You all have been such a help. I don't think anyone understands really what weer going through, but someone who has the same thing....When my doctor told me I had crohn's I ask him what I had to do he put me on asacol,& entocort, and told me to come back in 6 months. My other doctor and I had a falling out. Because I had a reaction to a drug for high blood preasure, witch I never had until all the other started, so if I called for information he would tell me to go to the GI doctor, in turn the GI doctor got upset because of all the questions. I read a lot of comments and its me. I don't fell so alone anymore. I'm looking for another doctor but, I live in a small area, and they have their clicks. I want someone close but I think I might not get one at least not for awhile. My family don't understand understand how scared I am. I go to my GI doctor tomorrow and I'm going with a lot of question, if I don't get any answers I'm going to change him too. I'm so sick of the feeling that know one really cares what is going on with me.....



Ne Ne

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/21/2008 1:01 PM (GMT -7)   
Ne Ne
I do hope you will find a good doc and also that you get all the answers from the GI tomorrow

Keep us posted plz

Take care

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/21/2008 1:03 PM (GMT -7)   
Rosie/ Sis
I am sorry you have to be on this forum too but as you know the ppl are great with support and answering all your questions

Take care sis

God Bless
Lyn
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
 
   
 
                   
 

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