PCOS and Crohn's

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dragongirl
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/15/2008 2:16 PM (GMT -7)   
I was diagnosed with PCOS a little over a year ago with Crohn's 5 years ago.  They have yet been able to help with the irregular bleeding and high testostorne level that comes with PCOS.  Recently (Past two months) whenever I am ovulating I will have irregular bleeding for 5-8 days toward the last few days of this I will get hit with a mini-flare up of the Crohn's.  Has anyone else experianced this?  My OB is telling me they can't find anything wrong with me.  Thanks.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/15/2008 2:52 PM (GMT -7)   
hi and welcome! how can your OB say there is nothing wrong if you have been diagnosed with two serious ailments? I am 48, had PCOS in my 20s and ultimately a hyserectomy at 29. I was diagnosed with crohns two years ago, so no connection between the two, but there are several members here with both issues. are you on meds? what are they doing for you?
keep asking questions; you have found a good place to be. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


dragongirl
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/16/2008 7:04 AM (GMT -7)   
Hello and thank you.  Currently for Crohn's I am on Asacol and for the PCOS they have been trying different birth control pills every three months.  In December they put me on Desegon, which made me VERY moody.  They put me on Zovia in January, I called the doctor again this morning because I started spotting again there response was that since they just changed my meds it's normal and if it continues next month to call them.  I'm just not sure what to ask or if I should go to another doctor. 

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 4/16/2008 8:46 AM (GMT -7)   
I can't speak to the PCOS, but I know that many of us experience an increase of Crohn's symptoms with our periods.  I believe birth control pills can make things worse, as well.  Have you talked to your GI about the meds your OB is prescribing?  Maybe if they worked together they could find something that helps your PCOS without aggrivating your Crohn's.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 4/16/2008 9:45 AM (GMT -7)   
I have not been diagnosed with PCOS, but I have had ovarian cysts & IBD. I just went through laproscopic surgery & hysteroscopy D&C to remove a large cyst (that ended up being gone when they did the surgery) & find the cause for my abnormal bleeding. The gyno found nothing wrong, says my girlie parts are fine. I am wondering if I don't have PCOS, myself. I am now just waiting to see if I continue to have bleeding after the D&C.

My IBD symptoms are worse during the bleeding as well.

I do wonder if there is a connection between IBD & menstral irregularities such as constant abnormal bleeding (I had my period for 6 weeks!).
Live for today, for tomorrow you might just get hit by a semi.


dragongirl
New Member


Date Joined Apr 2008
Total Posts : 3
   Posted 4/16/2008 12:22 PM (GMT -7)   
Thank you all sooo much!  I called my GI I will let ya know what he says tomorrow.
Thx, SW

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/16/2008 1:51 PM (GMT -7)   
I am 49. When I was in my mid-twenties and thirties, I was dx. with PCOS and went through infertility treatments (Clomid and Pergonal) After I had my second child, my PCOS seemed to have disappeared and my periods returned to normal..I guess this is unusual, but something about the pregnancy hormones seemed to regulate things. I didn't get diagnosed with Crohn's until last year, but I have always had IBS and diarrhea before my menses. My periods are now becoming very irregular; I'm assuming that it is peri-menopause, but the Crohn's certainly could be exacerbating it. Both PCOS and Crohn's are auto-immune disorders, so I think there could be a correlation. Hope you find helpful meds soon!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/16/2008 2:12 PM (GMT -7)   
ok, I am a dork, but in all these years I had no idea PCOD is an auto-immune disease! way back, 20 years ago, when I was dealing with it all I knew was it was a hormone imbalance.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/16/2008 2:18 PM (GMT -7)   
Maybe I'm wrong about PCOS being auto-immune, but I thought I read that somewhere! Now I have to go look it up!~
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/16/2008 2:34 PM (GMT -7)   
Yeah, I think I'm right...check out this website: http://www.thyroid-info.com/articles/autoimmune-checklist.htm
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 4/16/2008 2:41 PM (GMT -7)   
That was a list of symptoms you could have if you have auto-immune thyroid disease. Not all thyroid disease is auto-immune disease & not all those with thyroid problems have PCOS. I don't think that means that PCOS is an auto-immune disease. It would be like you have PCOS & have CD. CD is an auto-immune disease.

That's my understanding of it. And I have been looking up a lot of thyroid stuff lately due to I may have a thyroid issue causing my abnormal bleeding. (or PCOS).
Live for today, for tomorrow you might just get hit by a semi.

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