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Regular Member

Date Joined Oct 2006
Total Posts : 87
   Posted 4/15/2008 9:38 PM (GMT -6)   
well i am due for my remicade treatment this coming friday and all hell has broken loose.I do Home health and was driving down the road when i got the urge.I pulled into the first place i found and made a mad dash to the restroom and didn't make it.I had to dispose of my undergarments and clean myself up.On my drive home my nurse called to see how i was doing.I just dont know how much more i can take of this.I understand what the others say about the restroom experiences.When I was in the restroom some ladies came in and they were talking all about what was going on in there.They don't understand that we can't help it.
dx in oct 2006
entocort ec 9mg 1xday
remicade 10mg per kilo every 6-8 weeks
phenagren every 8 hours
dycyclomine 20mg 3xday
iron 325mg 2xday
calcium supplement
hydrocodone/apap 5mg/500mg 1-2 tabs every 4-6 hours
hydroxyzine 25 mg 1 tab every 4-6 hours
glycopyrrolate 2 mg every 8-12 hours

Veteran Member

Date Joined Apr 2007
Total Posts : 531
   Posted 4/15/2008 9:55 PM (GMT -6)   
Hey mom, most of us can relate to this and I bet even "normal" people have had this happen when they get a "bug". I have used containers in my car for this very emergency, and have had to toss the undies many a time. Usually I can relate my accidents to foods I shouldn't really eat, like wine or strong veggies. Don't despair, you are not alone. I even carry perfume samples with me to freshen the air, lol.
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 4/16/2008 3:26 AM (GMT -6)   
Not alone,,,you bet..In fact that is one of the many, You may be a crohnie ,IF, statements. I think its number 12 in the handbook. Yep, #12, if you have ever had to throw your drawers away in the dippy dumpster behind Whally World, you may be a crohnie. The old strike a match trick works well for odor control and maybe Tinglebell's perfume samples. The main thing is , dont get down on yourself, its not your fault. You are doing the best that you can, and YOU WILL GET BETTER. I hope its soon too. Take care and big ((((Hugs))))...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/16/2008 4:02 AM (GMT -6)   
I want to assure you that it is perfectly normal for someone especially with our disease to have this happen. In fact lets see I think I have throw away at least 8 pairs in an accident situation and I have been dx for 3 years come June.
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 4/16/2008 3:08:35 AM (GMT-6)

Regular Member

Date Joined Feb 2008
Total Posts : 31
   Posted 4/16/2008 6:35 AM (GMT -6)   
Thought I would chime in...Have been in that situation so many times I would hate to guess!  I have thorwn away so many undies I couldn't count.  This has happen while out somewhere and it happens at home a few times a week!  One plus is I never have old, worn out undies; they usually get thrown away before they reach that point. Hope you are better today!

Diagnosed 1972 with UC (12 years old); many flares over the years
1994 had my son and became very ill; took 4 years to get the correct diagnosis.
PCP diagnosed with IBS and was down 70lbs. by the time I insisted on seeing a specialist.
1997 Diagnosed  with Fistulizing Crohn's
1998 had 1ft. of small intestine removed including terminal illieum, have had constant diarrhea since.
Currently taking imuran, prilosec, synthroid, zoloft, xanax & B12

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 4/16/2008 8:45 AM (GMT -6)   
(((((HUGS))))) You need some hugs. Yes, indeed, we have all been there - many times. I learned the hard way. It never even ocurred to me that I could carry spare undies, wipes, a roll of t.p. and a change of clothes in my car. Now I "never leave home without it". Don't be discouraged. And don't worry about what other people say about the bathroom. In my less-mature days I made a comment about the smell of a bathroom once and a very wise-beyond-her-years friend looked at me with disdain and said, "It's a bathroom! It's SUPPOSED to smell in here." Shut me right up. And taught me a huge lesson. Keep your chin up Mom.
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