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pepperpina
New Member


Date Joined Apr 2008
Total Posts : 7
   Posted 4/17/2008 10:57 AM (GMT -7)   
 
 
Has anyone who's been on Humira have had any side effects?
 

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 4/17/2008 11:12 AM (GMT -7)   
I have a rash on my face that I don't know how to get rid of, other than that, no.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/17/2008 5:19 PM (GMT -7)   
I just started about 10 days ago. Feels better than Remicade did, however, I have notices the sweats. What side effects are you having?

LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 4/17/2008 5:46 PM (GMT -7)   
I also get a rash,sometimes,I now take Benedryl 20-30minutes prior to the shot,which does help.

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 4/18/2008 9:49 AM (GMT -7)   
I have been on Humira since October '07 and the only side effect I have ever gotten from it is random days of itching all over my body, usually once or twice a month. But I just take Benadryl and it goes away.

"Difficult things take a long time,
impossible things a little longer. " ~Author Unknown
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 2x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
 


Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 4/18/2008 9:51 AM (GMT -7)   
I have side effects. Headaches, and a rash is one, but the most annoying and common is the injection site welt I get (puffy, red, about the size of my hand, hard as a rock and painfully itchy) I get it whether I inject in my belly of my leg.

But its better than Crohns
DX with UC 8 years ago/Re-Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Lialda(new) 2 per day
Rowasa / 1 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
Colazal/ 9 per day
Entocort/ 3 per day
 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/18/2008 12:10 PM (GMT -7)   
I had a powerful reaction to Humira after 2.5 months. My GI and rheumy disagree as to the cause of the reaction. My GI said it was classic serum sickness. My rheumy feels I had a lupus reaction. At the time of the reaction the tests to determine if it was a lupus reaction were not drawn. Therefore the cause will likely never be determined. It appears my body has built a strong detest of foreign proteins in the biologics. So sad because I got great relief from Remicade for 2 1/2 years.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 4/18/2008 4:57 PM (GMT -7)   
I don't have the site welts bigger than a pencil eraser..but I can't sleep well. I have been having strange dreams and vivid nightmares that keep me tossing and turning all night. I am soooo tired in the morning..i feel like I haven't slept at all!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD.


Faizi
Regular Member


Date Joined Oct 2006
Total Posts : 451
   Posted 4/18/2008 8:28 PM (GMT -7)   
My daughter has been on Humira for about one year. No side effects at all.

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 4/18/2008 8:35 PM (GMT -7)   
My neuropathy/concentration is getting worse which coincides with a lower B12 level. It happened on remicade also, but I am reluctant to go off because of fear that arthritis and crohn's sx will come back.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 


curley
Veteran Member


Date Joined Mar 2005
Total Posts : 4305
   Posted 4/18/2008 9:09 PM (GMT -7)   
I have been on Humira for awhile and I have no side effects other that it gets a little red arounf the enjection site but it only last for a few secounds and then it's gone.I have has better results on Humira than I did on Remicade.
Curley
.........
 


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/19/2008 8:11 AM (GMT -7)   
Quick question: When you all say that the CD was improved when you got on this medicine, what symptoms, if any, do you still have from CD?

I ask because I want to try something other than Entcort, Prednisone Asacol or Pentasa (goofing spelling!). I am developing very bad arthritis in all my joints now, along with full flare up symptoms for over four weeks. CD symptoms of stabbing pain, nausea and the bad D never go away. Will this medicine make all this stop??

PS: I have been arguing with my CD doc about his lack of attempts to try me on Humira or Remicade. He's just determined to cut me open and take a look without fully exploring my options here. Just wondering. I read all these posts about how these medications are helping folks and the side affects from them but wonder what CD symptoms remain when on them. Like all of you who go through this, I am worn out and just want it all to stop. I know I need to get another doctor, but do not want to go through the new doctor process any more - contrast scans, colonoscopy, etc. They will all show the same - inflamation and fluid build up in the area of my pain, ya can't get to the location via the rear and I have diverticulum throughout my small bowel so I cannot swallow one of those scope pills and I don't want a tube through my stomach down to the location!!

Thanks all!!

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/19/2008 5:09 PM (GMT -7)   
My bowel movements or the big D went from 30 times a day to 1-3. The pain almost completely went from 10 to a 1-3 occasionally. Still tired, but the fatigue isn't nearly as bad as it was. Eating regular foods now instead of liquid diet. Great improvement. Is your doctor progressive?? Meaning is he into the new therapies or very old school??

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/19/2008 6:04 PM (GMT -7)   
Crohn'snme -

Wow! That sounds wonderful! I want to feel that good so very badly. The thought of not being in pain... well, it seems so out of reach now. Hoping a doctor change will get me better care and feeling better.

pepperpina
New Member


Date Joined Apr 2008
Total Posts : 7
   Posted 4/29/2008 8:15 PM (GMT -7)   
 
 
Thank you all for your replies. 
It is good to know that there aren't many side effects. 
I only began Humira last week and so far no reaction.  I've been having lots of headaches, also experiencing some low grade fevers.(I don't know if this is related to the Humira) And at times I have some nausea.  Still have diarreah though.   And also getting bloating which is due to the inflammation in my small intestine.  I've had crohn's now for 28 years.  I've had 2 surgeries, 2 draining fistulas and have been on Remicaid, Entocort, Prednisone, Imuran.  Lately have been experiencing some blockage and doctor has finally decided I try Humira.  If this doesn't work for me, I will probably be requiring surgery.  I hope it helps.

pepperpina
New Member


Date Joined Apr 2008
Total Posts : 7
   Posted 4/29/2008 8:16 PM (GMT -7)   
By the way, yes my doctor is very progressive. He is very much involved in research.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/29/2008 9:07 PM (GMT -7)   
I did get welts from my last injection about the size of 50 cent pieces.  Still there?  They don't hurt, just noticeable.  Still feeling much better but great fatigue. 

MBJOH
Regular Member


Date Joined Mar 2007
Total Posts : 257
   Posted 4/30/2008 6:31 AM (GMT -7)   
I think I have had an increased number of headaches. And far worse headaches than I ever had in the past. Kind of strange - I'm not sure why Humira would cause headaches.

wanthealth
Regular Member


Date Joined Feb 2008
Total Posts : 78
   Posted 4/30/2008 11:18 AM (GMT -7)   
I started Humira Oct '07 and developed psoriasis on my arms and legs within a month. Stopped Humira March 20 and still dealing with the psoriasis.
Moodindigo

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 4/30/2008 9:18 PM (GMT -7)   
I just found out that my rash is actually rosacea, which I was a candidate for anyway as my mother has it. Also, I notice I get a lot more headaches too.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 5/7/2008 5:52 AM (GMT -7)   
I have been on Humira 6 weeks, and my last injection made me nauseated and headache, I too have been on everything known to the Gastroenology world and 2 surgeries. I am due for my next shot this Friday, but reluctant to take it as my crohn's is getting worse. The only thing that usually helps is Cipro and Flagyl but not now. Kinda scared to take the next shot, as Remicade gave me highly allergic reactions by the 3 rd shot. No other side effects, just feel like it is not working. Has anyone ever felt like it got worse before it got better>??? Need to know, thanks.

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 5/20/2008 2:27 PM (GMT -7)   
I have had my 6th shot last Friday on Humira, and about 95% fully symptomatic free.  I have no side effects and wonderful responses to this site.  I have tried to research but no answers to this question: Do you have to do your stomach and just do legs, why or why not?  I am not squeamish, and it doesnt bother me, just the one Humira shot I did in the right side of my staomach made it worse for 2 weeks, but I also had a major stress factor at the same time.  Does anyone just do their legs for the injections?
 
Penny

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 5/20/2008 3:19 PM (GMT -7)   
Crohns 4 Ever - I started with my legs, since I was very thin when I started and didn't have a lot of flubber in the tummy area to inject into. Now that I'm practically symptom free thanks to Humira, and eating again, I have excess flubber in my tummy =)

When they sent me a pen last month, I opted to try my tummy since there was no muscle to speak of. It didn't hurt too bad so I tried my next syringe there and it really did hurt.

So I'm back to my leg.

I really think it's personal preference. The leg is a little easier for me to do than a tummy. I don't think the medication works any better in either location so your symptoms were likely coincidental with your injection site.

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 5/20/2008 5:50 PM (GMT -7)   
Every shot varies for me. It doesn't matter which site I pick. Maybe last time I used my leg and it didn't hurt but this time in my leg it really hurt! Same goes for the belly. I really don't understand it. I always leave the pen out for an hour before the shot.

Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 5/21/2008 7:53 AM (GMT -7)   
Thank you for your responses as to where the shot it best.  I was skinny long time ago, I have had this disease for quite some time and I am not skinny now, but I have some blubber on my stomach, I just wonder if maybe I hit a vein.  I too leave out the syringe, out for a bit, but it just feels like a bee sting for a min, and goes away, cant even see where I actually put in the needle.  I am so grateful this drug, Humira is working, after every drug known to man, this is working.  Remicade didnt work either and had a terrible side effect.  Yes, I know the risks of all these drugs, but I made up my mind, I wanted a fuller and painfree (even if only 80%) life, so I chose to have a shorter less painful journey than a long and miserable and painful life.  Needles never bothered me just IV's, because it is the only place I dont have any fat or hardly any veins, that is excruciating, and I tell the nurses, you get one shot, you dont make it, get another nurse LOL....
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