migraines and crohns?

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MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 4/17/2008 7:57 PM (GMT -7)   
Anybody else have them...seen any research about this?
Crohn's Co-moderator

We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
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nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/17/2008 8:15 PM (GMT -7)   
I have migranes but a lot of ppl in my family do.  It would be an interesting study to see if there's a link somehow.

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 4/17/2008 8:53 PM (GMT -7)   
Interestingly, after having a history of migraines from childhood on up, they stopped almost entirely after my crohn's/colitis diagnosis. Now I only get maybe one per year.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Entocort, and Remicade
On Humira since 1/08 with promising results, but can't get below 5mg Prednisone
Take Tylenol #3 as needed when not in close proximity to a bathroom.
Currently on 40mg Prednisone again since mid-March flare, ack
4/9/08 Humira dose increased to 40mg/week, Start slow Pred taper


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 4/17/2008 10:17 PM (GMT -7)   
I had them before my Dx and have them now from the Imuran. Usually take it at night so I can advert this. It used to be I was just light sensitive, couldn't handle certain perfumes and car exhaust were my triggers. Now, within the last couple of months my migraines have changed to cluster migraines. Those are freaky cause they will flare up for a few days and I get a headache exactly at 5:00pm every time it happens. (?)
I also get hormonal migraines 3 days prior to the week from H#@L!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Marie-Claire
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Date Joined Mar 2007
Total Posts : 900
   Posted 4/17/2008 11:18 PM (GMT -7)   
I've had migraines from the age of about 6 to present day....I'm 51 now. Like Broomhilda, mine came in clusters, lasting days on end. When I was pregnant for my first child at 31, they were absolutely unrelenting..I would lie on my bed with cold packs on my head and cry..(didn't take anything for them while pregnant). I was diagnosed with CD around the same time as I had my first baby,but my GI believes I'd already had CD for at least 10 years by then.As a child, I remember always having a lot of nausea and vomiting, and constant tummy aches along with the migraines.
The migraines eased a bit for about a period of 5 years or so, coincidently so did the CD....but now everything is back with a vengeance. I'd love to know if there is a connection.!
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 4/18/2008 12:14 AM (GMT -7)   
Migraines are my nightmare.....  I suffer very often with migraines, and they last 2-3 days.  Sometimes I can handle them, sometimes I have to lie on my bed, no lights, no sounds, no voices, and try to sleep.  When this gets out of control, I give in and take an NSAID pill (called Mesulid here in Greece), which I know is bad for my gut, but it's the only medicine that can ease my pain.
 
For me my migraines are much more debilitating than my Crohns, because at least when I have a Crohns flare up, I can work!!  When I have a migraine I can't do anything.
 
What I found out that helps me is the following:
 
1) The key is to "catch" it before it gets worse, meaning when I wake up in the morning with a headache, I know I have to take something before the symptoms get out of control.
 
2) Sleeping is a great medicine, at least for me, it eases the symptoms.
 
4) Hot shower / bath. It relaxes all the muscles, including your head.
 
3) Massage.  When having a migraine or a headache, ask somebody to give you a massage around the shoulders or your neck, it eases the symptoms, because it's like you "draw" blood in another area than your head, giving your head a chance to relax from the pressure.
 
The combination that works for me is: first I take a warm shower.  Then I take an NSAID pill, and go to sleep.
 
Maybe my english is not so good, but I really hope you understood what I meant!
 
Christina

Christiny
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 4/18/2008 3:27 AM (GMT -7)   
I too have always had them
Dx Crohn's 17/1/08
Dx Endometrosis 2002
Dx Lupus Anti Coagulant 2004
Prednisolone 30mg lowing dose 5mg per week
No meds til after Surgery
4 Weeks Pregnant
 
 


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 4/18/2008 6:56 AM (GMT -7)   
I just started getting migraines the last couple months. I was kinda told it was stress from being sick.... I take my pill for it & it helps right away. I couldn't imagine 2-3 days!
Live for today, for tomorrow you might just get hit by a semi.


mel05
Regular Member


Date Joined Jan 2008
Total Posts : 87
   Posted 4/18/2008 3:29 PM (GMT -7)   
My migraines started right around the same time my crohns symptoms started or maybe a bit before.  However, I was diagnosed with chronic daily headache syndrome or something like that.  I was diagnosed with that and have had that under control...I do wonder if they are related and plan to ask my neurologist if I can be taken off my meds...afterall I will have to go off of it when I want to get pregnant.

Diagnosed with crohn's in January 2008! 
Pentasa 1000 mg 4 times a day
On Topamax twice daily for migraines
On nexium - continuing for a month or so...the pred upset my tummy pretty bad. :-(
 
I am 27 years old and have been married for 2 years.  I cannot wait to try to have children so I want to get this under control!!


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/18/2008 4:22 PM (GMT -7)   
Hi Navy, I've always had migraines. The horrible throwing up every 5 minute ones. They started when I was about 16, time I reached
40, they started to subside. BUT, every time I get near a hospital & IV meds, they comeback. I don't go in hospital now without my
Imitrex pen. That stuff is a miracle.......
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/18/2008 7:24 PM (GMT -7)   
Mel05-Cronic daily migraines? I refer to that as "work". I have a high stress job and I'm afraid to leave it as I work a flex schedule which is great for my CD. Most likely why I've developed the 5pm cluster migraine to :)
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/18/2008 8:19 PM (GMT -7)   
i have them too and they run in the family. mine tend to be more common around myperiod. In the pas cpl years I can only recall 1 so bad that I wasnt able to function. My neuro doc did send me for a MRI of my brain to r/o them being caused by the CD. I found since being off of ASA and remicade that i get fewer migraines and was able to lower my elavil from 100mg to 25mg. I dont get the headache/migraine issues from humira
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987
 
 
 


mel05
Regular Member


Date Joined Jan 2008
Total Posts : 87
   Posted 4/19/2008 9:14 AM (GMT -7)   
broomhilda-I am a kindergarten teacher...I do believe some of it was stress.  I also believe it is triggered by the lights in my school.   because it's not as bad at home or in the summer but the meds help tremendously.  I'm a little nervous about what will happen when I go off to get pregnant, but then again the hormones for  my period won't play into that either because it gets really bad then, too.  We'll see...have to wait for docs approval to get pregnant...will see him in May.

Diagnosed with crohn's in January 2008! 
Pentasa 1000 mg 4 times a day
On Topamax twice daily for migraines
On nexium - continuing for a month or so...the pred upset my tummy pretty bad. :-(
 
I am 27 years old and have been married for 2 years.  I cannot wait to try to have children so I want to get this under control!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/19/2008 10:51 AM (GMT -7)   
No migraines thank goodness...it's bad enough when sometimes I'm pushing hard to get a bm through I get a dull headache and usually a stuffy nose (I have some mild sinus issues).

I feel for you guys that suffer with migraines, having a regular headache is bad enough, I couldn't even (nor do I want to) imagine what a migraine would be like...I'm such a baby though, so I likely wouldn't live through one if I ever had one.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 4/19/2008 5:36 PM (GMT -7)   
I get them and have since I was about 10.  I get them twice a month, every month.  The worst one is when I get my period and the other one is when I am ovulating.  They last about 4 or 5 days each.  Those "tryptan" meds do not work for me.  Mine got better  when I was pregnant. 

Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 4/19/2008 7:31 PM (GMT -7)   
Hi,
I also suffer from migraines.  I've had them since around age 6, and they're still going strong.  One very important thing I learned from my neurologist, is that chronic migraines can transform into chronic daily headaches that are actually "rebound headaches".  Taking frequent pain medication can cause this horrible and vicious cycle.


53 year old female;
 
Have had Crohn's of terminal ileum for 8 yrs, but finally accepted diagnosis when it was confirmed Feb. 2008.
 
Allergic to Pentasa and Entocort.  Will go on 6-MP in a few months.

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