Best CD Doctors/Hospitals in Dallas area??

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Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/19/2008 11:25 AM (GMT -7)   
Greetings one and all.

I am seeking information on the best doctors in Dallas and even Fort Worth if necessary in the field of CD. After a heated argument on treatment options and medications he will allow me to explore from my current doctor, it is time to find a new doctor. It got pretty ugly over the phone yesterday. I realized that he is more interested in billable hours than in my well-being.

If surgery is required, which it probably will be, I am also interested in information on the best surgeons and hospitals for this.

Seeking a caring, informational doctor. My current doctor hasn't given me any information. I have found all my information from this forum.

Thanks in advance!! Any/all information is much needed. I will also begin doing research as well.

-Leslie

Diagnosed in Jan of 2007 in top part of small bowl (right side near belly button), found diverticulum throughout my small bowel during small bowel barium test (they look like the little squezy dolls where the ears and nose pop out!) and now I appear to be developing rheumatoid arthritis to the point where it hurts to walk and grip anything (ankles, knees, elbows, wrists and fingers)
Been to ER four times and hospitalized once since diagnosis - try and stay away from hospitals at all costs and usually walk before they try to admit me (yes, I know this isn't good but I do not like hospitals and my insurance isn't great)

Currently Taking:
Prednisone (again) - 4 pills a day that will taper off over the course of four weeks
Pentasa 2 capsules x 3 a day
Phenegren - every 4 hours (always nauseated)
hydrocodone 7.5 - 2 every 2 - 4 hours depending on pain level (which is very bad right now because of current flare up)
Leviquin - x 1 a day (first bout of divertulitis last week)
a immuno surpressent (can't think of name) - x 3 a day
some kind of sedative to keep me from panicking (CD symptoms are starting to frighten me!!!!!)
Wish there was something I could take to help with the bowl movements @ 4 - 15 times a day
B12 x 2 a day
Omega 3 - x 1 a day
Acidopholis - X 1 a day
mulit-vitiman

Just got of Entocort - turned me into the anti-Christ!

Tried Asacol - didn't help x 3 a day

Ava Marie
New Member


Date Joined Apr 2008
Total Posts : 9
   Posted 4/19/2008 4:18 PM (GMT -7)   
I was diagnosed in March 2006 by Dr. Adnan Badr in Plano. He is a great doctor and always showed himself to be an overall good person.  He has an accent but I never had any trouble understanding him.  I would highly recommend him to anyone in the Dallas area.  He is with the "Digestive Heath Associates of Texas."  All his info is in the link below:
 
 
 

keri1125
New Member


Date Joined Jun 2006
Total Posts : 3
   Posted 4/19/2008 5:54 PM (GMT -7)   
Dr. Katrina Bassel is my physician.  I think she is very good. You can find more info at www.ddadoctors.com
 
Dr. Grace Vanesko is very good as well.  She is very busy though.  She is with Texas Digestive Diseases Consultants.  More info at   www.tddctx.com
 
Good luck,
 
Keri
 

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/19/2008 5:57 PM (GMT -7)   
Ava -

Thank you for replying. I really appreciate the referral. I cringed when I saw Digestive Health Associates because Dr. -- will leave him unknamed so as not to smear his name -- is affiliated with this group. I looked at the address for each and they are at different offices.

Looking for someone that knows this disease inside and out and is looking to help, not looking to bill.

Kind regards,

-Leslie

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 4/19/2008 7:00 PM (GMT -7)   

Hi Fellow Texan,  I've been going to Dr Neville Fernandes at TDDC located in Las Colinas.  He's been okay but I've been in clinical remission since I started to go to him after my last doctor left the practice and I haven't had many problems.  I too learn most of my information from this web site but I am quite knowledgeable about the disease because my daughter also has Crohn's and I learned quite a bit of the technical stuff when she was diagnosed.  It is different when it is your own body in rebellion though. 

My surgeon for my emegency resection was Dr Stadler and he was awesome.

www.tddctx.com

If you need to contact me you can e-mail. 
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/19/2008 7:51 PM (GMT -7)   
Thank you for your reply, Vicky.

I am sorry to hear about your daughter. I too have a daughter that is age 11. I am very worried that she may end up with CD.

Kind regards,


Leslie

pattytx
Regular Member


Date Joined Jun 2006
Total Posts : 139
   Posted 4/20/2008 12:12 PM (GMT -7)   
I see Dr. Kimberly Persley in Dallas (Dallas Presbyterian) and she is awesome!  She specializes in Crohn's.  I was referred to her by my regular GI who felt I needed someone with more expertise in Crohn's.  She is active in CCFA and really knows her stuff.  She is not in my direct network for insurance and I have to pay more to see her, but she is SO worth it.  She handles a lot of things for me by phone (rather than to come in and see her) and always calls back personally.  There is probably at least a month wait to get in, but you can always try to see if there is an opening. 
 
I ended up with a resection in June (at Dallas Presby).  She referred me to a great colo-rectal surgeon (Dr. J. Hurley).  They work well together. 
 
Good luck!

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/20/2008 1:35 PM (GMT -7)   
Thanks, Patty.

From what I have been reading Presby Dallas appears to have the best CD care in the DFW Metroplex. Apparently they are starting to use a less invasive surgery procedure that should reduce recovery time... we shall see about that.

In addition to finding a great doctor, I think I am going to visit with an apothecary who is a family friend and a Chinese herbalist. I want to learn about natural anti-inflammatory and alternative medications as well. I am bound and determined to look at every option before succumbing to surgery.


Something has gotta give here. CD has really beaten me down, like everyone else. Most of the time now I just go into a fetal position and cry. sad (when my daughter is not around, of course). I don't see how all these folks here have lived so long with this disease. I keep telling myself that I need to accept I will never be the same. If I could just get the symptoms down to a manageable level without so much pain and nausea meds then I would be content and perhaps be able to get out and spend time on my horse :-)

Thanks again to each who has posted a reply. I am thankful to each of you.

Warm regards,

-Leslie

RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 4/20/2008 3:30 PM (GMT -7)   
My doc is with DHAT. It is a very good group of GI docs and surgeons. They are mostly at Baylor Downtown, but they have other offices in the city also.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


pattytx
Regular Member


Date Joined Jun 2006
Total Posts : 139
   Posted 4/20/2008 7:17 PM (GMT -7)   

Have they ever talked to you about Remicade or Humira?  I think you are wise to be open to all avenues (whatever they may be).  I have had 2 resections (one in 1991 and the other in 2007).  I lived many great years and had two children while in remission between the two surgeries.  When the Crohn's returned, I did imuran and then remicade (even doubled it) plus humira at the tail end.  I had scar tissue by then, but the remicade did make a difference.  Maybe if I would have gotten on it sooner . . . who knows?  I saw Dr. Persley after my doc (DHAT) consulted with her on my remicade dosages.  Finally, I just decided to avoid the middle man and I see her directly now.  She is very compassionate and pleasant.

I know how hard it is deal with this disease with children.  My heart goes out to you!  I hope you can find some relief soon.  Be glad you are in the Dallas area.  I think there are a lot of good physicians out there. Take care!


*lilpixistar*
Regular Member


Date Joined Sep 2004
Total Posts : 309
   Posted 4/21/2008 12:24 AM (GMT -7)   

Hi :) I've been a member here since my diagnoses but I haven't posted in a long while..I see Dr. Christopher Vesy he's at Baylor downtown dallas and is part of the TDDC. Lets see whether or not he's the best I can't tell you he's only my second GI I got handed over to him because my first one started teaching at Southwestern Medical Univ...wait I don't know if that's the right name of the school (it's the best medical school here??) I haven't slept in a VERY long time. Anyways Dr. Vesy is very easy going trusts my opinion lets me call in with issues and always calls me personally for results and questions...even on nights and weekends if I had to call his emergency number.

I didn't know there were so many people on this site from the area...i don't feel so lonely anymore lol ;)

take care let me know if u need more info


27 y/o/f D'xd Oct. 2004
SINGLE AGAIN 
Perianal fistula (hopefully healed)
Remicade, Imuran 100 mg, Pentasa 4,000 mg, Hydrocodone,and Lomotil if necessary, recent Iron infusions.


Lucillemom
Regular Member


Date Joined Apr 2005
Total Posts : 183
   Posted 2/6/2009 7:34 PM (GMT -7)   
Iknow this is a very old post, but i was wondering if anyone know a better doctor in the north dallas area, plano area.
I like my doctor in mckinney, but i am having a hard time with his staff. The nurses never call me back i leave messages after messages. i getting sick of it! he is involved with the texas digestive diseases





Hemi and Fissure surgery that developed 2 abcess deep in my left cheek, by my rectum...(oh how fun!) Medication: Asacol 12 pills a day, Immuran 200 mg, Welchol 4 pills a day for diarhea

Pregnant for my second baby that is due Nov. 1, 2007

Thank God for my adorable daughter, who makes me smile
<FONT color=red>everyday!


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 2/7/2009 5:14 AM (GMT -7)   
Word of caution on seeing a dr in DHAT. They have an unwritten rule that you cannot switch to another DHAT gi for at least one year. Four yrs ago I got stuck with one I hated for about 3 months he was worthless. I tried to switch and could not get anyone to see me because of their unwritten rule. So, I thumbed my nose at them and I see a wonderful gi in Weatherford. Worth the 60 mile drive round trip. He did for me in one visit than the other did in three months.......Susie

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