First Remicade Transfusion

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BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 4/19/2008 3:11 PM (GMT -6)   
I had my first transfusion on Thursday. Not much has changed except the abdominal pain has decreased. I slept for 4 hours this afternoon. I would like to know how others have felt after the first transfusion?

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/19/2008 3:26 PM (GMT -6)   
Hi After my fisrst Rem. I was a little tired for a few days and I am glad to hear your pain has decreased. Hope you continue to improve. I was on it for 6 months . I take it your IV went good. I had no problems with the IV's .lol gail

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/19/2008 6:55 PM (GMT -6)   
Hi there, Honestly I didn't have much relief till about 3-6 months, when they adjusted the dose and how often I was receiving treatments. I took Remicade and Methotrexate for almost 3 years. Finally it quit working and now I'm on Humira and doing great. It's cheaper and easier, however I was nervous about changing. I'm glad your Remicade went well. Did they give you Tylenol and Benedryl before the infusion??

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/19/2008 7:03 PM (GMT -6)   
It's been a few years for me, but if I remember... I didn't have any side effects and started noticing a little difference by the 3-4 day. but, it was the third infusion before I really felt better and it took a while longer to heal. Enjoy the less pain part! Every little step counts!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 4/19/2008 7:03 PM (GMT -6)   

I too had my first Remicade infusion (April 8th).  Wednesday, the 16th, I woke up feeling really good.  I thought well maybe I'm having a good day, but I've felt really well since then. No abdominal pain and increased energy.  I almost can't believe the difference!  I go back for my second infusion on Tuesday.  I've heard people say they've felt relief anywhere from a day after the infusion to a few weeks. Good luck and I hope you start feeling the affects soon!

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