Chronic pancreatitis.

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/19/2008 5:34 PM (GMT -7)   
As you may remember, I was diagnosed with CP, following 2 attacks of acute pancreatitis, after taking 6mp.

My problem is, that after going from web site, to web site to find out about this condition, I found one written by
a doctor and he gave the prognosis of only 50% of patients survive for 7 years following their Dx. I knew it was
a pretty tough disease, but wasn't really prepared to see those kind of figures. I know I'm doing all I can to reduce
the symptoms, but my own body is working against me, by producing high triglycerides, known to be detrimental
to the pancreas.

My other problem (whine) is that my family don't want to talk about it. Almost like if we ignore it, it'll go away, but
this is eating away at me. I know they all love me & they are scared, but I need to talk about the what if's. I'm scared
too.

I've already had to start taking greon ( pancreatic enzymes) to help rest my pancreas, but it seems, like it's daily now,
that the pain seems to be getting worse...

Guys I'm so sorry to sound so morbid, but I really needed to talk. Thanks as always for being there......
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 4/19/2008 5:59 PM (GMT -7)   
Vicky, I'm so sorry you are going through this. You must feel alone. We are always here for you. How are you feeling, really? Can you take a few family members with you to an appointment? You need some support. There has to be others out ther who have batteled this disease. Call your nurse and ask for information on a support group. Are you able to seek some counseling. I hate that you feel alone. How is your Crohn's going? Hopefully your not flaring, that's the last thing you need. We are here for you. Let me know how your doing. I will keep watching. Take care. HUGSSSSSSSS

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/19/2008 6:44 PM (GMT -7)   
Hi, I'm feeling bewildered & scared. My husband was with me when the doc told me I had CP. I must admit I went to pieces
in his office, and all the doctor offered was a tissue, he didn't go into any detail about the disease. At that visit, he was more
concerned with getting my Humira started. He also gave me the enzymes, telling me, they might help with the pain.

My husband tells me we will live life to the fullest, and take everyday as it comes. I know that is what I should do, let tomorrow
take care of itself, but it keeps coming into my thoughts and dreams. I do try to make light of the situation by saying stuff like
"I can't die yet, I haven't learned to ski".... But I get angry too. Like if only I hadn't taken the medicine in the first place none of
this would've happened, but I guess no one can ever know these things, and I have to face facts it has helped so many people,
I guess I was one of the unlucky ones.

Maybe I do need counseling, I guess I'll ask my primary care. I trust her to do well by me....

Thanks for being there....It does help!!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/20/2008 9:02 AM (GMT -7)   
HI Vicky,,,sorry you are going through this. I am not completely up to date on your dx. but I have been through acute pancreatitis. In fact I used the pancreatic enzymes and shut my pancreas down for a complete year. I was told I could do this for any length of time needed. I think maybe you need to get really specific with your doctor about this illness and ask the questions that you need answered. If this doctor does not ease your mind find a specialist that can answer all your questions. What I found out is doctors dont like to answer questions when they are not sure of the answer. Pancreatitis may not be your doctors field. Please find one that knows the answers. Sometimes the not knowing is far worse than the answer. Good luck to you and let us know what happens...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/20/2008 9:33 AM (GMT -7)   
Hi Vicky We"ve to have had these thoughts dealing with CD and knowing we take all the meds we take ,I feel it must be getting lonely for you do you have at least one person who will talk to you about this. I don't know much about it but keep talking to us about your needs and some help is always here. We all keep a bunch of things to ourselves at times and it seems to be part of dealing with health problems but some things are meant to be shared. Sending love and caring your way. lol gail

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 4/20/2008 5:06 PM (GMT -7)   
Vicky,

The prognosis might be much better than it seems from the article you found. After all, a lot of people who get pancreatitis are alcoholics, which you aren't. I have read that chronic pancreatitis can be an autoimmune complication of Crohn's, and that may be your situation. There are at least a few reports of people who have taken corticosteroids for Crohn's, and find that it also puts the pancreatitis in remission. The take-home message is that a therapy that controls your Crohn's disease, which I hope Humira will be for you, can also control the pancreatitis. So don't give up yet.

Feel better,

Writer

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/20/2008 8:02 PM (GMT -7)   
I would like to thank all of you for responding. As I thought you've all made me feel a little better. I will try and take
on board all you say. I'm sure it can't be all doom and gloom. I'm trying my hardest to stay upbeat. After all, I'm not
at deaths door yet, and darn it, if it has to be sooner than I would like, as long as this pain doesn't take to much control,
I'm going to try and make every day count

Strangely enough, I think this has given me a push in the right direction. As long as I'm able I'm gonna make the best
of what I have....Once again thanks guys, for being there LOL.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/21/2008 9:53 AM (GMT -7)   
I also meant to tell you, that there maybe a connection between high triglycerides & Humira. My doc is researching it.

So in my case it would matters worse and would answer my queries as to why my levels have suddenly soared......
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

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