10 day countdown till surgery

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cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/21/2008 7:46 AM (GMT -7)   
Since I have been overly stressed about my upcoming resection, I have decided to create a top ten reasons to look forward to the surgery. Here's number 1:
 
The pain pump!!!!
 
This may make me sound like an addict but after 8 years of constant excruciating pain I look forward to just pressing a button to get rid of pain for however long that last. Hopefully it won't cause constipation, but hey I hope to be so in lala land that I don't feel it anyway!!! yeah
 
Turn in tomorrow for #2
 
Nicole

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/21/2008 9:53 AM (GMT -7)   
Well, you "could" ask them to save that piece they remove to let you see it and how sick it looks. Then allow you the PLEASURE of tossing it in the trash. *wicked grin*
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 4/21/2008 2:16 PM (GMT -7)   

What a great outlook you have!!!

I hope if/when I have surgery I can stay positive.

looking forward to #2

Good luck,

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/22/2008 12:13 PM (GMT -7)   

So here the #2 reason:

HOSPITAL STAFF- Although it gets  annoying sometimes with vital signs every 15 minutes, being able to press a button for someone to bring me apple juice, ice cream, a blanket or anything becomes very addictive. When I go back home I try to get my family to do it but they quickly remind me that I am home and not in the hospital. They love me but people taking care of me in the hospital is the closet I will every get to feeling like royalty or J.Lo.

tune in tomorrow for #3


Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/22/2008 6:47 PM (GMT -7)   
Oh the blankets. I went to the ER a couple months ago and I was so cold. They brought a thin blanket right out of the dryer to put on me. It was so comfy.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/23/2008 1:18 PM (GMT -7)   
# 3

Hospital ice cream- for some reason the ice cream in the hospital taste soooo much better!!! Maybe its because it comes after days of broth and Jello, lol. But I look forward to it everytime...
Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/23/2008 4:27 PM (GMT -7)   
My teen took good care of me when I came home hope you get some help too. It is comforting though to have someone help at the hos. the back washes were great. lol gail

cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/23/2008 7:38 PM (GMT -7)   
I do have a great family. My husband will go to the end of the earth for anything I needed and my kids, 15y/o girl 7 and 12 y/o boys, are o use to taking care of mom. But I feel bad always running them ragged. I live 8 hours away from family and my mom,sister and 2 aunts will be here next week to help me during the surgery. So I am blessed.

BUT I STILL LOVE HOSPITAL ICE-CREAM!!!!!!
Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/24/2008 6:31 AM (GMT -7)   

#4

First of all thanks for all the support..I wish I had found this site years ago...but now that I have I hope I can help someone else going thru the ups and downs

 

Now back to the countdown #4

THE ADJUSTABLE BEDS!!!!!!

As someone who has a lot of joint pain related to the disease sometimes finding a way to sleep can be hard..that is if I can sleep at all. But in the hospital I can raise my legs or head to the perfect position..LOVE IT!!!! I also take my own body pillow and queen size fleece blanket so it is just heaven. I brought a Woolrich brand blanket from target about 2 years ago and with my anemia it is my best friend. All the staff loves it. Sometimes when I go for test I pray that it is still there when I return. So far so good...maybe I should install a Lo-Jack on it just is case.

I can't afford to buy an adjustable bed for home so I just enjoy while I can during admits. Talk to you guys later.


Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


CatMan
Regular Member


Date Joined Jun 2006
Total Posts : 289
   Posted 4/24/2008 7:15 AM (GMT -7)   
Good luck Nicole with your surgery! It's great that you've got an up-beat attitude. That is definitely in your favor. Keep your spirits up and know that we'll be pulling for you.
Current Medications:

Pentssa, 1000 mg qid
Vitamin B Complex
Trader Joe's Probiotic
Folic Acid
Remicade infusion; every 8 weeks
Klonopin
Ambien, PRN
Seasilver Whole Food Liquid Nutrition


cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/25/2008 11:37 AM (GMT -7)   

#5

New Pajamas- my mother is from the old school, so she won't let me be in the hospital with old pajamas. Due to my frequent admits I now have more pajamas then regular clothes. But its always nice to get new stuff. tongue


Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/25/2008 1:34 PM (GMT -7)   
Nicole I pray your surgery goes well and you are able to enjoy a long long remission afterwards. Love your positive outlook. I too have a wonderful husband who babies me too, its so nice isn't it. The kids, oh well, what can you say.....gotta love em
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/25/2008 5:53 PM (GMT -7)   
Hi I have collected 5 new pairs of pj's and a housecoat from 2 operations . Some are so soft and warm I too love comfort. lol gail

cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/26/2008 5:31 AM (GMT -7)   

#6

Well wishes from family and friends-- we all lead hectic, busy lives but when I go in the hospital sometimes I speak to loved ones I haven't talked to in a while. Just reminds me that I am never alone in this crazy world. I was in the hospital for 21 days Jan/Feb 2007 and in just one day I got 22 phones calls, all from different people. The operator finally called my room to say I had broken a record, she was so impressed. Even more so because 90% of the calls were long distance.

Due to recuperating from the surgery this time all phones calls will go to my husbands cell instead. But I look forward to the messages. tongue


Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/26/2008 11:44 AM (GMT -7)   
Hi Cheergems. You might want to bring your cell phone and turn off the hospital phone. The hospital line has a very loud ring, but your cell phone you can put on silence and then return the calls when you feel up to it. Good luck with your surgery!
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira and Entocort.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 4/26/2008 4:34 PM (GMT -7)   
cell phones generally must beturned off in the hospital

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/26/2008 5:07 PM (GMT -7)   
I was able to use my cell phone during my hospital stay. I asked the nurse to make sure it was OK and she said there was no restrictions on cell phone use, at least on the surgical floor.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira and Entocort.


cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/27/2008 5:36 AM (GMT -7)   

#7

BEAUTIFUL FRESH FLOWERS- I don't usually have flowers around the house 9hard enough to keep 3 kids, a husband and 1 dog alive), so I love the flower deliveries. They make the room smell good and I love passing them on to other patients on my way out.

I have been having the worse stomach pains lately. The percocets are not working. Hoping it is just anxiety about the surgery.

Ski Bum- happy to see you are recovering well. Thanks for the phone advise. My hospital does allow cell phones on the floor. In the past they were wary of new technology but now they say it is fine. Get better soon.


Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder

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