So do I have Crohns or not?????Seriously?

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Regular Member

Date Joined Feb 2007
Total Posts : 88
   Posted 4/21/2008 10:15 AM (GMT -6)   
OK so I have now been UNdiagnosed for the 3rd time. I had an MRI and an Ultrasound last week as well as a CT scan because I had a mass in my abdomen, and now for the 3rd time I have been told it is impossible for me to have Crohn's. I have no symptoms other than occasional abdominal pain and constipation. I was dx'd back in Feb of 2007 when I moved to Britain and came down will the flu which later turned into severe abdominal pain and after a colonoscopy was given the Crohn's DX. The problem with this in the beginning was that i never had any crohns symptoms ever. So I have seen 3 specialists since. The first one said that it wasn't crohns and that it was probably post infective syndrom, the second said it was IBS, and the third...last week said it wasnt crohns and that it was more than likely IBS. the only person that thought it was Crohns was the surgeon who did the 1st scope(military doctor) SO now after all the steriods and all the meds what do I do?
Granted I would love for it to be IBS and not crohns, so I guess I have to believe the 3 specialist right?

25 yr old female. Diagnosed with Crohn's on Feb 14th 2007 confined to the terminal ilieum, Asacol, Levsin, Nexium 40mg, Percocet, darvocet, phenergren.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/21/2008 10:29 AM (GMT -6)   
I think it comes down to how do you feel and if you feel this is correct? If not then go to a different doc (I am on my 7th right now) and figure out what is going on from there.
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All suggestions/options/opinions are caveated with please consult with your local health care provider...

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 4/21/2008 12:57 PM (GMT -6)   
I wish you the best of luck, Red!  This is such a frustrating position to be in!  Sounds like you are having a hard time getting diagnosed as well, Navy. 
I have seen an Internist, a GI, and a Rheumatologist and I get to have a small bowel follow through done tomorrow and see a different GI for a second opinion.  That does not include all the eye doctors I have seen for the past year for eye inflammation that will not go away and stay away.
Despite me having ulcers in my TI and inflammation in my colon, my current GI is looking for hard core proof I have Crohn's.  Honestly, I don't know if the additional tests will show anything or if a new GI will think any differently.  On the one hand, I want an answer but on the other, I would love to believe that nothing is wrong. 
Hang in there and keep us posted!

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 4/21/2008 1:16 PM (GMT -6)   
I would get a capsule endoscopy done if I were you. At first I was misdiagnosed with ulcerative colitis, but then after a second colonoscopy became suspect for Crohn's. My doc had other tests done and all showed I didn't have Crohn's, but he went ahead and did a capsule endoscopy and that showed that I had Crohn's. Get a capsule endoscopy done! Take Care and hope you find out soon!

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 4/21/2008 2:04 PM (GMT -6)   
Guess this is why the dotors call it a ,,, Practice... I'm with lilturbo, the capsule endo is what found mine. Before that I was in limbo. Good luck to you..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

New Member

Date Joined Apr 2008
Total Posts : 19
   Posted 4/21/2008 6:39 PM (GMT -6)   

It's really hard to say, in hindsight, my med records are filled with the signs of CD.

I never particularly experienced abdominal pains and to this day, I eat pretty much whatever I want with no fear. It wasn't until I went into have a possible fissure looked at that the surgeon recognized Crohn's which lead to a c-scope and the discovery of multiple fistula involving virtually my entire exhaust pipe from ileum on down...

In my case, the impact of Crohn's on my life is little more than frequent, sometimes urgent bathroom trips and occasional, though severe, bouts of arthritis.

In any case, the colonoscopy is what allowed the doc to make a conclusive determination in my case.

Scott Mumble-Mumble, SSgt, USAF (med ret)
DX April 2007, Suffered symptoms for many years longer
Taking Asacol (2400mg), 6MP (75mg), Flagyl (750mg), Cipro (1000mg), Relafen (1000mg) daily. about to restart Remicade or Humira depending whether or not I've developed antibodies to Remi.

Money isn't the root of all evil, Prednisone is the root of all evil...

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