As odd as it sounds, I don't mind going for my Remicade infusions. I find it therapeutic to talk to other patients who are going through the same thing that I've been through. Since I've been on Remicade for 5-years and am doing fairly well, I can share my story with others and give them some hope, especially those who've tried everything and nothing has worked.
I'm currently only on Remicade (previously on Asacol and Prednisone).
Thank you so much to everyone for your advice and input! I talked to my dr today and am going to do it - I have been on Lialda for 2 weeks and thought I was getting a little better but I am not really. I have also developed the big red welts on my shins (erythema nodosum?) and still have a low grade fever along with the D and the fissure. Gosh, it's like a party for evil symptoms! :)
I am going to start the Remicade and feel better about it after listening to everyone's stories, so again THANK YOU. I was hesitant but am going to give it a shot. Up until this point nothing but Prednisone has worked for me.
Hi All! Can those of you who have seen the positive results of being on Remicade please encourage my hubby and I....how long did it take for you to start feeling better? Just on average, since I know everyone is different. I know that life will never be the same "normal" as it was before, but I hear people talk about how Remicade gave them back some kind of life, and I want that so badly for hubby!
He has had 2 infusions so far, and due for his next on 4/29. He is very discouraged because to him it feels like he is feeling worse than before. He also takes pentassa, percoset, and an antibiotic (he has a fistula).