skinny crohnie wanting support.

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dorri
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Date Joined Feb 2003
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   Posted 4/22/2008 11:15 AM (GMT -7)   
Will you help, I haven't been eating as I should for quite awhile.  Some days consist of toast in the morning and a bowl of soup for supper along with tea all day long.   I want you guys to help me by keeping this post open for a bit so I can report what I eat daily.  I think if I know you are watching it will give me the incentive to try harder and eat better.  Will you help, even if it's for a week or so to get me back into the pattern of eating normally. 


Post Edited (dorri) : 4/22/2008 12:26:08 PM (GMT-6)


Sarita
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Date Joined Mar 2005
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   Posted 4/22/2008 11:48 AM (GMT -7)   
Hi Dorri,
I'd love to help encourage you. Sometimes I think keeping a good food diary really helps us in tackling the ever-present food issue. Obviously, toast and soup are not enough to sustain you. I've been down that road before as well...even if solid food is troubling you (physically or emotionally), you should be able to supplement with some Ensure that will help ensure you are getting enough vitamins and minerals.

Have you seen a nutritionist, by any chance?

How's it going so far today?

Hang in there, lady...and keep up the good work. Simply identifying the issue is a big step.
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


dorri
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Date Joined Feb 2003
Total Posts : 1876
   Posted 4/22/2008 12:01 PM (GMT -7)   
Thanks. As usual I had my toast in the morning. I just had a half of a salmon sandwich. I have used ensure in the past and I don't feel well after taking it. I am knowledgeable on what I should be eating, but lately my apetite has gone south. This isn't uncommon, I've been like this before and came out of it, but I find if I don't sync myself up to try, the desire to eat just disappears and weight loss follows. I haven't stood on the scale for months, a little afraid to.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/22/2008 12:07 PM (GMT -7)   
I with you too Dorri.  I agree with Sarita, a nutritionist might be a good idea for you.  Toast and soup are definetly not enough nutrition for you.

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 4/22/2008 12:29 PM (GMT -7)   
I went through a period of time a year ago, when I was losing weight way too fast. On the days that I could eat, I would do anything to increase my calorie intake. I would have a slice of turkey and smear it with mayo instead of just the turkey. I would dip pretzels in veggie dip. A smear of butter on a cracker, just anything to increase the calorie count of each bite so that even if I wasn't eating much, I was not losing as fast.

Good luck and keep us posted.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/22/2008 1:03 PM (GMT -7)   
Hi Dorri Boost is great and taste great .Would loove to help way to go on the salmon.What do you put on toast? I couldn't eat it for awhile without honey or jelly. Try to find something that helps build up your taste for food the above I wrote about helps. So what's for supper? I love mashed potatoes what do you love? lol gail

Hondamum
New Member


Date Joined Apr 2008
Total Posts : 8
   Posted 4/22/2008 1:56 PM (GMT -7)   
Hi , i am new to all of this and from the UK, but i can very much relate to your situation.
 
I too struggle with my diet and dread being weighed by my consultant, i am currently around 170 meters tall and currently just under 125 pounds....although not quite sure about that.
 
I think that mentally you have to get a grip on this disease, when you have done that, the physical i have found becomes much easier to bear.  I have "safe" foods which i am generally ok with, mostly very bland, plain and boring food, however you cannot always fight against the physical effects of it and you sometimes may have to accept inability to do certain things.
 
take things slowly, do things when you are comfortable with t

mcleaver1969
Regular Member


Date Joined Jun 2006
Total Posts : 267
   Posted 4/22/2008 1:56 PM (GMT -7)   

Dorri,

I think your idea of letting us know what you're eating daily is a great idea, good for you and good for the rest of us in the forum too. Keep up your spirits Dorri, increase your eating a bit at a time and eat several small things all throughout the day. You can do it...you're doing great so far!


"Difficult things take a long time,
impossible things a little longer. " ~Author Unknown
Marci, 38 years young, Rockledge, FL
Dx with Crohn's disease March 2006
Currently on bi-weekly Humira, daily 6mg Entocort, daily 2-3x 5mg hydrocodone (for pain), and daily 75mg Effexor,
plus 2x per day heavy iron supplements for anemia,
calcium supplement, daily multi-vitamin,
 


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 4/22/2008 6:46 PM (GMT -7)   
I'm here for you too!! I don't know what foods are good w/ your belly but I really like rice with my soup when I am reintroducing foods. I also make home made smoothies with protein powder and slim fast powder when I know I am not getting enough nutrients. I use the slim fast powder because I am lactose intollerant and I blend my smoothies with soy milk. For tomorrow why don't you try to eat a yogurt with your toast and a small bowl of rice with your soup? Keep us posted!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 4/22/2008 8:24 PM (GMT -7)   
Thanx for all your suggestions and encouragement.. My husband brought home pizza for supper today and I had a piece but my tummy feels a bit bloated. I know it wasn't the best of food choices. I will remember to add something other than margerine to my toast tomorrow morning. And that is a great idea adding extra rice to my soup.
I will have to buy some yogurt.

It's funny; I have the control to cook anything I want, but find it hard to think of cooking and eating when I don't have an appetite. I usually make something for hubbie but eat very little of it myself. Anyone else feel that way when they go through their down spells?

I'm glad you are all here to push me a little...


dorri
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Date Joined Feb 2003
Total Posts : 1876
   Posted 4/23/2008 7:56 AM (GMT -7)   
Good morning all. I took your advice and put something on my toast... peanut butter.


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 4/23/2008 11:09 AM (GMT -7)   
yay!
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 4/23/2008 12:02 PM (GMT -7)   

Awesome, Dorri.  Natural peanut butter, in moderate amounts, is a super-food! 

Baby steps, baby steps!


Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


heavly
Regular Member


Date Joined Nov 2007
Total Posts : 83
   Posted 4/23/2008 12:23 PM (GMT -7)   
I'm with you on being underweight - recently I started going to the gym to help gain and I've found that it greatly increased my appetite. I've managed to gain 3 lbs! (steady at 100 now!) and keep them for the past 2 weeks. I've been going to the gym about a month, twice a week for at most an hour. I spend minimal time on anything cardio and work on core muscle, balance and gaining muscle - which I think is why I find myself hungry more often. Do you think trying to include some exercise is an option? Even if it's just a 10 min walk around your neighborhood!

I have friends who check on me to make sure I've eaten throughout the day and I think it's a great idea that you've asked our help!

Mashed potatoes are great and I eat a lot of trail mix, oatmeal - try having juice instead of tea as it has extra calories. Just be careful to get juice that doesn't have a lot of sugar! Keep up the good work <3
25 yrs - female : diagnosed with Crohn's 11/29/07

"i believe - you can keep going long after you can't"


jamief
Regular Member


Date Joined Feb 2005
Total Posts : 200
   Posted 4/23/2008 1:15 PM (GMT -7)   
I'm in the same boat you're in right now! Sherbert is something I like to eat and snack on after supper. Supper usually consists of rice and soup! heh Also I try to eat some thin sliced turkey breast and mashed potatoes ( I don't know how your belly works but I have to stay away from the gravy :( ). My grandmother told me that mashed sweet potatoes would be better for a person than just mashed potatoes.. but I have yet to test this theory on my belly. I didn't take too well to ensure either, boost is kinda easier for me to handle. Dunno why, guess it's just how some people are made :). I hope you start feeling better soon :)

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/23/2008 2:13 PM (GMT -7)   
I don't check the boards too much... *I get really busy with college and all* But I will certainly try! It's good that you're trying really hard to eat... Gotta get those nutrients in your body... :)
 
Oh... Helpful tip... Have you tried Ensure? *Or its generic brand... the generic brand is a lot cheaper and it has the same ingredients* It's lactose-free... and it's packed full of nutrients... This way, even if you don't feel hungry, you'll at least be getting some nutrition...
 
I hope you feel better soon...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 4/23/2008 3:48 PM (GMT -7)   
Hi That's a start adding little goodies that taste good' Pizza is good I just eat is with the pepperoni and no other toppings I pick off the other things or just but pp.and cheese. French toast and jam is great for calories . Cain't wait to see how you do tomorrow. lol gail

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/23/2008 5:45 PM (GMT -7)   
keep it up! i know how it feels to be afraid to eat.....

I figured out what to do, since i live in California, where voters have approved the use of a natural remedy, that eases overall discomfort and increases the appetite. when I get that way, I sometimes try that approach. just a thought.... and I only post this to be sincere, so please don't go post/edit happy my dear mods....

Hope everyone has a good day!
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


Ava Marie
New Member


Date Joined Apr 2008
Total Posts : 9
   Posted 4/23/2008 8:22 PM (GMT -7)   
Hi Dorri! Good luck improving your diet! I know positive peer pressure usually helps me too.

Ensure used to make my stomach hurt too, but I discovered I just couldn't drink it all at once because I guess it has too much protein packed in it. Sometimes I open one in the morning, or when I get home from work, and put it in the fridge and just sip on it throughout the rest of the day. That might help you too, but don't risk it if you think it could do more harm than good :)

Are there any fresh fruits or veggies that you're able to enjoy? Also, Fitzy's yogurt suggestion is good.
Diagnosed with Crohn's in March 2006.  Currently in a sort of unstable remission and still freaked out by random new symptoms.


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 4/23/2008 9:40 PM (GMT -7)   
Thanks again. I missed lunch but for supper had some rice with my chicken noodle soup. Also had a cornbeef sandwich.

I got to get back to eating full meals, well atleast one good meal for the day.

I never thought to take Boost in sips through out the day but will try and see if I can tolerate it that way.

There are some great replies here, so I hope anyone that is in the same boat as me will take some of this good advice as well.

about the exercise, in the past I've done toning with light weights. Having crohn's and FM, I do them for awhile and quit when my muscles feel totally drained.

A few days ago, I looked at my arms in disgust. the skin was loose and looked like the muscle underneath had disappeared. this is what is prompting me to eat better. I don't want to wither away.  Also I know I need to build myself up nutritionally before I can even start to lift weights fpr strength and to tone so I don't look so skinny. .
I still do some walking.


Post Edited (dorri) : 4/23/2008 10:50:29 PM (GMT-6)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 4/24/2008 2:33 AM (GMT -7)   
Hi dorri, It is very important to eat a good diet. Try not to miss meals. It is very important to your health. We all care about you.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


heavly
Regular Member


Date Joined Nov 2007
Total Posts : 83
   Posted 4/24/2008 6:21 AM (GMT -7)   
Every little bit helps! Keep it up! <3
25 yrs - female : diagnosed with Crohn's 11/29/07

"i believe - you can keep going long after you can't"


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/24/2008 2:25 PM (GMT -7)   
Hi Dorri sounds like supper was good for calorie intake. I used to like lasagne, jello and puddings are good .Protien is what's needed to build up those mulcles. I used to weight lift years ago it was very relaxing.Keep up the goog eating . I used to alternate between fish and ham for sandwiches for dinner .lol gail

ajz
Regular Member


Date Joined Apr 2008
Total Posts : 21
   Posted 4/24/2008 2:52 PM (GMT -7)   
 
 
Hi Dorri,
 
Sounds like you are moving in the right direction. I saw somebody mentioned Boost. That stuff is great. Taste is awesome and they have a high protein version which you will need. I really enjoy it.  One of my tricks is to add peanut butter to things when possible, like toast. Easy way to add calories and protein to anything.  Also, if you can tolerate dairy, good cheese goes a long way. High energy and low volume. Try snacking on a slice / peice here and there throughout the day. Before you know it, you will have a couple hundred extra calories.  Pudding, as others have mentioned, is also a big winner. I have a great recipe for an awesome pudding dessert that is simple but yummy.  Keep up the good work.
 
ajz 

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 4/24/2008 9:20 PM (GMT -7)   
Breakfast: toast with peanut butter
Lunch: none
Supper: fish, diced carrots, rice and salad.

Sorry guys, I know I have to quit missing lunch..the thought of having lunch is too much. I am never hungry at this time.

I will leave myself a note, and try to have a Boost for lunch tomorrow. Right now, I can't stomach the thought, I think I can stomach nibbling..I like cheddar..

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