Okay, Calling All Resection Pros ...

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CrohnieToo
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   Posted 4/22/2008 3:56 PM (GMT -7)   
Here's my list of questions so far. What additional questions would you ask?
 
1] NG tube vs tube thru left side. Do NOT want NG tube. Tube thru left side worked great my 1978 resection at Mayo and I prefer that.
2] Anesthesia & Sedation fear - no control, no say in what is going on, not knowing what is going on
3] Me not showing up for the scheduled surgery
4]Test available for blood flow thru mesentery & small intestine like CTA of heart vessels ??
5] Prep for surgery ?? Will NOT do any of the Lytely products nor ANYTHING that requires a large amount of liquid w/in a short period of time. I usually do PhosphoSoda or Magnesium Citrate for my colonoscopies. And I make sure to drink adequate liquids to prevent dehydration, but take a longer period of time to get those clear liquids down.
6] Am on bi-level PAP at 8 cms EPAP and 13 cms IPAP
7] Respirator? Can I get up and walking w/respirator? Faster recovery & healing.
8] What IV "marker" was used for this CTE? First time I've EVER felt warm, flushed feeling IN THE THROAT when it was administered. And felt MORE of a warm, flushed feeling than I ever have before. Not at all objectionable or uncomfortable. Just MORE warm, all over, and that WARM IN THE THROAT that was TOTALLY new and different and the FIRST area of the flushed, warm feeling.
9] What type of anesthesia will be used?
10] What happens during surgery, and how is the surgery performed?
11] Is there a video of an actual open abdomen small bowel resection available for viewing?
12] Are internal stitches or staples used? Why staples?
13] Are external stiches or staples used? Why staples?
14] What can be done to avoid a pouchy, bulging abdomen? Muscle strengthening exercises? What? Do NOT want a bulging gut after this surgery. Never had one, don't want one!!!
15] This surgery PLEASE have someone doing the closing who takes pride in his incisions and does a neat, attractive job of closing the outer, visible layer.
 


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


chroniemomx2
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Date Joined Apr 2005
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   Posted 4/22/2008 5:40 PM (GMT -7)   
Wow! You are thinking about this aren't you?!
 
CTE---U of M told me that they push more dye and they also push it faster...that is why it was so different for me.  Or are you not talking about a ct Enterogaphy???!!!

ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 4/22/2008 5:59 PM (GMT -7)   
C2, you might like to read this - research on why it's better to have a simple enema and NO other bowel prep before surgery.

http://www.abc.net.au/rn/healthreport/stories/2006/1782697.htm
 

Post Edited By Moderator (CrohnieToo) : 4/22/2008 7:27:52 PM (GMT-6)


gachrons
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Date Joined Mar 2007
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   Posted 4/22/2008 6:10 PM (GMT -7)   
Wow so when are you performing your surgery. To tell you the truth I didn't ask a question just left it up to the Dr. I would be interested in knowing about the closure of the incision you talked about. I did the NG and hated the itchy thing they taped it with. Are oyu having to go for a resection? Wasn't too upset with my scar ,yes find out some of these things.lol gail

CrohnieToo
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Date Joined May 2003
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   Posted 4/22/2008 6:44 PM (GMT -7)   
When am "I" doing "my" surgery?? Giggle. Do I really sound THAT controlling? No incision, no closure. Just a hole in the side that the tube came out and attached to a pump to keep the abdominal cavity, etc. clean. They just pulled the tube out. No need to stitch the hole closed or anything. It sealed itself.

Ivy, THANK YOU for that article. Mayo is pretty progressive and it wouldn't surprise me one iota if they aren't already on top of this. It will be interesting to see what they have to say when they get my question.

Yup, CrohnieMom, it was the CT Enterography, BUT, no tube, no pushing the contrast down. You drink 3 bottles of the contrast sitting in the waiting room. You can have some water if you want it but they don't push you to drink any. I'd say it was about 15 minutes between bottles of contrast. Then into the room, onto the table and scan away. They do a quick blood draw to check your creatinine level to help them determine which IV contrast they are going to use. (So does PMI locally).
 
Its no longer a question of IF I will agree to the surgery, it has become a matter of WHEN I will agree to the surgery. The inevitable is just that much closer than it was. High grade partial obstruction at the old anastomosis, simple ovarian cyst now 8 cms.

NO WAY, would "I" NOT ask questions and just rely on the surgeon's choices!!! I do NOT trust ANY doctor that much. There are those I like a lot and have a lot of confidence in, but TRUST?? Its not in my vocabulary when it comes to the medical profession!!! Not even Mayo Clinic!

So, come on. What other questions should I ask? What questions would YOU ask or have you asked before surgery??


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 4/22/2008 7:47:15 PM (GMT-6)


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 4/22/2008 6:52 PM (GMT -7)   
Did you know that you could have a perfectly healthy ICV area and it might still need to be resected? Its a matter of blood flow to the area and/or disturbance of that blood flow even w/the area needing resection considerably higher up the small intestine. There is no way of knowing beforehand how the blood vessels run thru the mesentery and "feed" the various areas of the small intestine including the ICV area. There is a 3% risk of the healthy ICV area needing to be resected as well.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Dagger
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Date Joined Apr 2008
Total Posts : 1522
   Posted 4/22/2008 7:10 PM (GMT -7)   

My surgeon did an amazing job with my incision.  I had my IC valve removed.  She did the surgery laproscopically but had to make an approx 3 in. incision under my belly button to take out my guts.  The incision was closed under the skin with disolvable stitches and the surface closed with that special tape, I think it's called steri-strips.

The other small holes are way more noticable than the incision.

My surgeon went over everything step by step.  The anesthesiologist discussed the pros and cons of a spinal and went along with my decision not to have one.

My surgeon also took pictures of the parts she removed so I could see them when I woke up.

I use a product called Nutra-prep and Lo-So Prep for my bowel prep.  It includes 4 pills and 8 oz. of liquid.  I no longer even discuss my prep, I just agree to theirs and use mine anyway.  Nutra-Prep is a low residue food product, so no suffering through a liquid diet the day before your procedure.  Most GI's freak out and don't want me to use it, after the procedure I ask if I was clean and when they say yes, I tell them what I used.


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 4/22/2008 7:28 PM (GMT -7)   
Yes, I did drink the stuff before, but I also had the iv contrast on the table...that is what I was talking about them pushing. They said that it is actually pushed twice as fast as a normal ct.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/22/2008 7:39 PM (GMT -7)   
What's ICV, C2?

Glad you liked the article, C2. I think *anything* that helps us avoid bowel prep is helpful!

I'd still ask the Mayo people about it. I don't know how research translates between countries. Often they prefer to have their own studies done.

I.
Co-Moderator Crohn's Forum.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/22/2008 8:14 PM (GMT -7)   
ICV=ileocecal valve, Ivy. Oh yeah! You can BE SURE I will ask Mayo about the bowel prep!!!!! ABSOLUTELY sure! Its already added to my list of questions.

Ah, CrohnieMom, I didn't know that, they didn't mention it and of course I wouldn't think to ask when I don't know about it in the first place. Interesting.

I'm heading to bed. Hopefully, tomorrow there will be some more questions for me to add to my list. Nite all!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 4/23/2008 5:49 AM (GMT -7)   
Hi Sleep well he he .Sounds like your up to this and raring to go. lol gail

Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 4/23/2008 6:29 AM (GMT -7)   
C2 what about what type of pain control after surgery will they use. I personally prefer the PCA instead of having to wait for the stupid nurse to lollygag her way in when she gets time.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 4/23/2008 7:41 AM (GMT -7)   
Thanks for that reminder, Nanners. I didn't stop to think about pain control after surgery. Hadn't gotten that far, I guess. Whatever pain control they provided for my first resection at Mayo in 1978 was great. No problems then at all. However, that doesn't mean I should be complacent and not ask about it this time.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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