Weight GAIN with crohn's?

New Topic Locked Topic Printable Version
63 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/23/2008 7:14 AM (GMT -7)   
I've heard about folks with crohn's becoming obese but my doctor insists it's not possible for someone with active crohns to gain a bunch of weight (barring steroid bloat). Can someone tell me the logic behind crohn's weight gain? i know I've heard before something about the system shutdown causing everything to be turned to fat, or something along these lines.
 
Myself? I have never weighed more. I'm up 21 pounds over my average weight (what I weighed for 15 years) since diagnosed in 2005 (after losing 20 for a few months). 165 for 15 years,  145 after crohns attack, 186 now.
 
I've also read that Remicade can cause weight gain but noone knows why, but my GI says it's just because it makes us healthy and we eat normally.
 
Any input? Thank you! 
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 4/23/2008 7:25 AM (GMT -7)   
I've always been an obese crohnnie.  I think it all depends on where the disease activity is.  From my research I've discovered that the small intestines is where nutrients and calories are absorbed and the colon is where moisture is absorbed.  Hence, if disease is mainly in small you lose weight, since mine was in the lower half of my colon I just had "d". 
 
I don't know if my understanding is correct but it makes sense in my case.  I sometimes think that you are correct about weight gain though.  But I think it is more of a matter of metabolism too.  I've never been a big eater and I only lose weight if I eat less the 800 calories a day.  If I eat more then 1000 I'm bound to gain weight. 
 
 
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


avonlady
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/23/2008 7:37 AM (GMT -7)   
I, also, am at my highest weight. I find it hard to lose it and it's getting really frustrating. I'm only taking Asacol, Flagyl and Carafate.
Look for the magic in every day!


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/23/2008 8:04 AM (GMT -7)   
I am not obese but, I am not a thin crohnie, but then ,I am also a diabetic. I find that even when I had crohns symptoms the worse , i did not lose lots of weigh and when I feel better, any weight lost , returns. I have ask my doctors and all say not to try and lose too much weight. Good thing because it does not happen even when I try.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 4/23/2008 8:16 AM (GMT -7)   
Hi i'm a fat crohnie i wish i could loose weight. But all those years on steroids i gained a lot of weight. Oh well what can you do. It sucks sometimes because people say it doesn't look like you got Crohn's, i feel like punching them right in the nose LOL..Just posting to let you know not everyone here is skinny. yeah
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections

Post Edited (Erik45) : 4/23/2008 9:20:26 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/23/2008 8:35 AM (GMT -7)   
I have been up to 302 lbs, consider my normal weight to be 145. But I vary back and forth with a flare, been maintaining around 250 since dx. When I am in a flare I eat more high fat foods like pb and ice cream because they are what I can eat.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 4/23/2008 9:00 AM (GMT -7)   
If your doctor doesn't believe people with Crohns can gain weight (flare or not)I suggest a new doctor with actual knowlegde of the disease...of course we can gain weight, mine is up and down all the time..with up being more dominant right now (thanks to prednisone, but even my normal weight is a bit heavier then I would like) but even without meds making me gain weight it easily can happen. There are alot of crohns patients who are obese as there are underweight, theres no specifics for this disease, we are all different of course...and definately no one can say we can't gain weight, cause thats dead wrong.
27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 4/23/2008 9:09 AM (GMT -7)   
I'm also an overwieght Crohnie. I attribute it to my thyroid slowing down because of malabsorbtion, but who knows. That doctor's comment reminds me of when I as dx in 1982 and I was under 100 lb (that was 100 lb ago) and I was told I would NEVER have problems being overweight again! Therefore, when I gained weight again and went into remission I came to the conclusion that I didn't have CD and it was a misdianosis. Wrong! But that goes to show how some docs aren't up to date with the facts.

Do you see a regular gastro or an IBD specialist? From experience, if at all possible go with an IBD specialist -- they are much more informed.
 


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 4/23/2008 9:16 AM (GMT -7)   

I am an overweight Chronie!

 

I would question a Doctor that says you cannot be overweight and have Chron’s. I would have never gotten diagnosed if my Doctor felt that way.

 

I asked my Dr how come I have been overweight and most Chron’s people are not. He said some people with Chron’s do have the opposite weight gain. He gave me an example of how my body might be trying to survive and when I get D it could be holding onto fat for fuel since it thinks I may need it because my food is moving through me so fast. (sorry I probably did not explain that as well as he did, it made sense at the time)

 

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...


Pampers
Regular Member


Date Joined May 2007
Total Posts : 76
   Posted 4/23/2008 9:23 AM (GMT -7)   
At my largest I was 205 with Crohn's - so yes, crohn's patients can be large. I lost the weight on my own via dieting and during the past 2 years have been 130 lbs, dropping to 120 only once during a bad flare. But, since starting Humira I have gained 10 despite a drastic reduction in calorie intake. I can't pretend to know why, though I have theories. So in direct response to your post - yes, crohnies can gain weight and do, just as we can lose it. But I personally think it has less to do with bad food decisions and more to do with all the chemicals we put in our bodies and the overall effect on the body and metabolism from crohn's.
DX with UC 8 years ago/Re-Diagnosed with Crohn's 6/26/2007
Canasa / 1 per day
Azathioprine / 100 MG Day
Lialda(new) 2 per day
Rowasa / 1 per day
Humira
 
Tried:
Asacol / 12 per day
Levaquin 1 per day
Flogyl 1 per day
Prednizone / 40 MG Day( finished taper!!!) 
Colazal/ 9 per day
Entocort/ 3 per day
 


Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 4/23/2008 9:40 AM (GMT -7)   
My doctor did not want to dx me because I did not lose any weight. It took them 2 years, 3colonosocpys, 2 CT scans, camera pill, removal of gallblader, 2 thyrold test, every blood & stool & pee test you can think of, different drugs ending with C-dif in hospital for 6 days 13 IV's and I did not lose any weight. Well lost with C-Dif but put it right back on with 13 IV's. At my worst going 15 - 20 times a day. With camera they found 4 leasions, and last colonoscopy they finely said it was crohn's.........And I'm not a small women......Started Mar 06 Dx June 07....



Ne Ne

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/23/2008 9:45 AM (GMT -7)   
Anyone else have the hypothyriod issue
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Jeny
Regular Member


Date Joined Feb 2004
Total Posts : 437
   Posted 4/23/2008 10:30 AM (GMT -7)   
i'm constantly being asked and checked about my thyroid, it looks abnormally large, even when i was at my skinniest, i looked like i had a large growth around my neck. but, it's always checked out fine...i've even had the scan where they inject die into you, don't know the name of it.

my doc told me that there are 2 kinds of crohn's and i have the one that makes u absorb more fat than most people. (my cd is in my illeum) i also have problems absorbing water and get dehydrated VERY easliy even tho i don't really sweat, in fact i'm always cold, even on hot days- which is weird for a fat person. i have to eat something salty everyday when drink water so my body will absorb it. does anyone else have that problem?

i'm also a fat crohnie, i'm currently at my heaviest at 300 lbs. i gained my most weight when i was on prednisone due to being allergice to remicade. plus, i eat when i am depressed and boy was i depressed when i was flaring all the time. i've been in remission for a few years and i've not lost the weight, but i've had kids and that tends make u fat too.

i have the same problem as MMMNAVY, when i flare i can only eat fatty foods like pasta, creamy soups and ice cream. so even when i flare, i just maintain or gain. when i started this whole deal i was about 185, not skinny but not as obese as i am now.

-jeny

indigosunrise
Regular Member


Date Joined Nov 2007
Total Posts : 497
   Posted 4/23/2008 1:57 PM (GMT -7)   
I have not been "officially" diagnosed with Crohn's, just suspected. Still undergoing testing.

Anyhow, they did find ulcers in my TI and I wonder if I could have it there...

Anyhow, I am also overweight and I just got off prednisone and found out I gained 10 lbs since I started it. That was depressing because I need to lose about 70 lbs now if not more, and I was starting to lose when I went on the prednisone.

Jeny, I have never really sweated either. Whenever I drink water, I end up with diarrhea so even though I probably should get more fluids, I don't drink much because of that.

It is so frustrating! Some people do not believe I could even have Crohn's because I weigh too much and I look too "healthy." That is frustrating!

cheergems
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 4/23/2008 7:46 PM (GMT -7)   
Oh my Jeny!! My history is just like yours. My tyroid is huge. And I have gained more weight since being diagnosed. I hope after surgery I can switch to being a skinny- crohnnie. this weight sucks.
Nicole_ 35yo, married mom of 2boys 1 girl,diagnosed in Aug 2000
Former meds- pentase,asacol, imuran, remicade, predisone, entocort
currrently on humira, bowel resection apr. 2008
Trying to live hard, love hard and laugh harder


edwina77
New Member


Date Joined Sep 2007
Total Posts : 15
   Posted 4/23/2008 8:20 PM (GMT -7)   
I too am overweight with crohns. The first few years I was underweight at  5'9" 125lbs. Then I was put on steriods and gained about 30 lbs. I then started mediations for Bi-polar in addition to the crohns meds. At that point I went from 145lbs to 300lbs. I was absolutely miserable. I was able to drop down to 220lbs, since stopping the steriods and most bi-polar meds.
It is awful to be overweight with the crohns. As finding a diet that works with the foods I am able to eat.
 
Crohn's
Bi-polar
Post Trauma Stress


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/23/2008 8:21 PM (GMT -7)   
A study published a couple months ago showed significant increase in BMI in patients taking Remicade for psoriasis. Not the same disease, but the same medication. I'm on my laptop and don't have the links to the study on hand. When I get to my other computer, I will get you all the info so you all can print it out and hand it to your disbelieving doctors.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


nsgrimm
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 4/23/2008 8:26 PM (GMT -7)   
I too have put on quite a bit of weight.  I am not on any meds as I haven't been offically diagnosed yet (April 8th is my lower GI and colon) but in the past 5 years I have been up and down, up and down.  It's very frustrating!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/23/2008 8:50 PM (GMT -7)   
Snappy, is it possible that your metabolism is adjusted to your athleticism, in other words, that your body is used to needing and burning large amounts of energy?

If you weren't well enough to exercise the way you once did, is it possible that your body would pile on weight instead?

Just a guess; it could be completely wrong.

It's nice to see you again!

I.
Co-Moderator Crohn's Forum.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/23/2008 9:10 PM (GMT -7)   
Makes sense Ivy, I am a former marathoner.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/24/2008 4:45 AM (GMT -7)   
Hi Ivy!
 
Well, I'm sure my metabolism is screwed up. I used to run 40  miles per week for years. But I think I've adjusted my diet a whole lot so that I don't eat near as much. But maybe I'm wrong... I do eat healthy sancks all day but maybe it's just too much. Just doesn't seem like too much because of what I was used to.
 
On the plus side (no pun intended) I am lifting weights and it's easier than ever now! maybe big gains, bulking up.
 
Thanks!
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 4/24/2008 2:18 PM (GMT -7)   
Good Luck with the weights, I think they are great, and get ready for your new body.

tongue

Don't let the first month get to you with all the soreness, remember it gets much much easier.

Hang in there
CD dx @ 13 (1987)
Prednisone 15mg every other day
Imuran 100mg day
Celexa 20mg day
Pain Meds
Vitamins + B12 Injections Once Per Week


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/24/2008 4:11 PM (GMT -7)   

Here are links to the studies showing Remicade can cause weight gain. The studies were done on patients receiving Remicade for Ankylosing Spondylitis and Psoriasis. Hope this helps...

Prospective Assessment of Body Weight, Body Composition, and Bone Density Changes in Patients with Spondyloarthropathy Receiving Anti-Tumor Necrosis Factor-alpha Treatment.

"CONCLUSION: This 2-year prospective study showed a significant increase in body weight at 1 year and 2 years, mostly due to a gain in fat mass and a significant increase in BMD, in patients with SpA receiving anti-TNF-alpha treatment."

Anti-tumour necrosis factor-alpha therapy increases body weight in patients with chronic plaque psoriasis: a retrospective cohort study.


Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/28/2008 8:23 AM (GMT -7)   
Remicade...the new sports enhancement drug? Ha!!!!

Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 4/28/2008 9:32 AM (GMT -7)   

Here's an article that dealt with Crohn's patients.

ACG: (American College of Gastroenterology) Weight Gain with Infliximab in Crohn's Disease Confirmed but Not Explained

http://www.medpagetoday.com/MeetingCoverage/ACG/tb/6976

Print out the article and show it to your GI doc.

Good luck!

Jan

New Topic Locked Topic Printable Version
63 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Friday, December 02, 2016 1:20 PM (GMT -7)
There are a total of 2,731,737 posts in 300,955 threads.
View Active Threads


Who's Online
This forum has 151128 registered members. Please welcome our newest member, Diane82256.
292 Guest(s), 8 Registered Member(s) are currently online.  Details
Artist Mark, Tirzah, Mrs. Brady, Girlie, Hilander64, Mustard Seed, Myself 09, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer