Have you ever felt cheated?

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Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/23/2008 3:47 PM (GMT -7)   
I feel like I have been... I think the probiotic I bought is the wrong one... Just this probiotic, in particular... I don't know about the rest... but...
 
Some of them look like they're legitimate and have been backed by scientific study and such... That's the kind of probiotic I should be taking to see if it makes me feel better...
 
But this Primal Defense stuff... doesn't look like it'd be very good at all... It has no actual peer-reviewed scientific study backing it up... None. Any study Mr. Rubin seems to have cited does not contain sound research...
 
There is even no actual research on the safety of the soil in those little capsules... Which, I think, is very worrisome...
 
Oh... and did you know that Mr. Rubin isn't even a real doctor? All of his credentials come from non-accredited schools...
 
That's what really burns me up... I'm glad the FDA is giving him trouble... and if I can't get the $50 I spent on Primal Defense back, I'll give him trouble, too...
 
I just thought I'd let you guys know what I found out, so you could be better informed... and go out and find a probiotic that's actually been scientifically proven to help people.
 
*Again, I really feel cheated... I haven't felt this cheated since I read Mr. Trudeau's book... I hate these slimeballs...* I thought since Mr. Rubin himself suffered from our illness that he wouldn't do something like that... but...
 
There's jerks everywhere... mad
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 4/23/2008 4:31 PM (GMT -7)   
I think you have to be really careful with supplements. That is one of the reasons I decided I don't wast to try the maker's diet after I read the book if I feel like he is trying to sell you alot of stuff. Its not just the diet its the diet plus the extra's and if you want the advanced program you have nine products you are supposed to use. It just gave me a weird feeling - just my two cents - Im glad it has helped others.
Jessica 26/F On Entorcout again...
Citalopram 10 MG
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Culturelle once daily
Tried (Entorcort EC 9ml/day and Prednisone)


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 4/23/2008 5:03 PM (GMT -7)   
that's why i avoid all those holistic treatments.....anyone who is a truly outspoken proponent of any particular product, usually has a financial interest in the product they are raving about!

so, I may miss out on some potential remedies, but I don't ever feel cheated.
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/23/2008 5:28 PM (GMT -7)   
Try the primadophilus reuteri made by natures way, it's been a huge help for my crohns and IBS...VSL3 has plenty of good research behind it, it's pricy but many find it worth it.
 
Check out this link from the CCFC...
 
 


:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/24/2008 11:19 AM (GMT -7)   
Yeah... I will definitely try another probiotic (with plenty of research behind it, for sure)... but because I spent $50 on that useless one... It'll be a while before I can afford it... *It's why I feel so cheated... could've used my money on something that actually works*


Of course, I suppose I could always not buy food... I feel so awful... But... I'm not going to do that...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/24/2008 11:33 AM (GMT -7)   
I pay 29.00 (Canada) for the primadophilus reuteri for 90 caps and since only one/day is needed it lasts me 90 days, I find that reasonable especially compared to the ones that cost 30.00 but you have to take up to 4 or more a day, that gets expensive because you still only get about 60-90 caps for that price.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/24/2008 1:15 PM (GMT -7)   
I also tried the Garden of Wonders line and never noticed any difference. I did notice a slight difference with VSL#3. I think that is worth the $$ if you can spend it. I am not good about taking it, but I did order a second time, so I guess I believed enough to spend the money a second time around!

And, I agree that Patient Heal Thyself does sell a lot. But, like hana24 said, I am glad it's helped others! We all respond differently to all these drugs, diets, etc. And, at least you know you've tried it so you can always say you didn't leave that stone unturned. Maybe that will help with the cheated feel. You bought yourself knowledge...
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/24/2008 3:33 PM (GMT -7)   
Celey - did you try calling the company? Many have "satisfaction guaranteed" on them.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4101
   Posted 4/24/2008 4:18 PM (GMT -7)   
I guess every time you try something...even the pricey meds prescribed by the GI's you run the risk of it not working for you. I didn't find VSL# 3 helpful, but it has helped others...I think a lot is trial and error.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2008 12:23 PM (GMT -7)   
There's no number on the box... *There's an address... maybe I could try mailing them...* But... there's no 'satisfaction guarantee' either...
 
 
Still feel cheated... but... well... Guess it is a learning experience...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/27/2008 12:57 PM (GMT -7)   
I know what you mean Celey. I bought on line one tub of Absorb Plus, an elemental diet that was highly recommended to me by someone I met at a CCFA seminar. It cost $50 and $13 in shipping. I thought it would be a good protein and nutrient boost post-op. I need to put some weight on my bones. I whipped it up in the blender with bottled water, added some Udu's flax oil ($11.00), poured it over ice, took a sip and almost vomited. I was gagging as I was washing out the blender. I'm sticking with Ensure and Boost. That stuff was vile. Blech!! I'm not saying it's not a good product and I was taken... I just can't drink it and am now out $74.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2008 1:15 PM (GMT -7)   
Ensure is good stuff... :)... That's some stuff there I don't mind spending my money on at all... Tastes good... good for ya... sometimes, it even makes me feel kind of good, too...


Plus, I can eat pudding now! BWHAHAHAHAHAHAHAHAHA!
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

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