pain in hands and feet with flare, enthesitis?

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poobah
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Date Joined Dec 2006
Total Posts : 136
   Posted 4/23/2008 4:05 PM (GMT -7)   
anyone here get enthesitis when they flare?
 
wsnt sure what is was until i looked it up today. it describes me perfectly. its pain around joints where tendons insert. I have it in my hands and feet like crazy right now, holy smokes. I read it happens in IBD when colon is involved, or in ankylosing spondylitis.
 
it hurts to move around the house and even type this! i dont want to take nsaids for obvious reasons, anyone have similar problem and what do you do for it?

bluemeanies
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Date Joined Jun 2004
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   Posted 4/23/2008 7:21 PM (GMT -7)   
I have the same problem. The tendins in my wrists, palms, and fingers hurt the worst, it can take your breath away at times. I also have achelies tendinitis which has caused a very painful bone spur on my heel. So far nothing helps it and nsaids are a no no. I do not have ankylosing spondylitis but believe I have a form of spondyloarthritis. I have seen a rheumatologist for it and recommend you see one too. My next step drug wise is Remicade or Humira and I don't know if these will help this problem too. Right now I am unemployed and uninsured so no new drugs for me yet. I do have an interview tomorrow and hope it goes well.
 


Ides
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Date Joined Nov 2003
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   Posted 4/23/2008 8:14 PM (GMT -7)   
I have enthesitis big time. Remicade and then Humira helped for a while. Due to an adverse reaction, I am no longer on either. My rheumy is treating my enthesitis by drawing off the fluid and injecting cortisone. The problem is that in small areas like fingers, to be effective, the injections must be done after or during ultrasound. Fortunately, he one of few to do this. My GI and rheumy are also experimenting with different NSAIDs. At my last GI visit, he said my quality of life was too important and that if the NSAIDs flared my CD, he'd fix it. My guts have been in remission for almost 2 years. I know many others are not as fortunate as me. Because of my gut remission and the severity and how wide spread the enthesitis is, I am willing to experiment with the NSAIDs. Biggest problem so far is not the gut but leg swelling. The docs think my kidneys are not handling these meds well. It's all a crap-shoot.....
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Pancoaifo
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Date Joined Apr 2008
Total Posts : 19
   Posted 4/23/2008 8:25 PM (GMT -7)   
Still waiting to see the rheumy doc to get the official dx but I've been told unofficially it's just RA.
I can say, however, that when I was on it, Remicade worked wonders for the pain in my joints. (Too bad the bureaucracy got in the way and I went off it a few months ago... Hoping I can get the same results
on Humira now)

Does yours come out of the clear blue and affect just one side at a time?

It's always either my left OR my right, never both at the same time, but it can switch from side to side for no apparent reason. Anyway, just think it's really weird how I can go to bed feeling on top of the world and wake up not being able to stand because of the pain. And it gets tiresome explaining why my cane switches from side to side, all of the sudden my boss becomes a medical investigator ... lol
____________________________

Scott Mumble-Mumble, SSgt, USAF (med ret)
DX April 2007, Suffered symptoms for many years longer
Taking Asacol (2400mg), 6MP (75mg), Flagyl (750mg), Cipro (1000mg), Relafen (1000mg) daily. about to restart Remicade or Humira depending whether or not I've developed antibodies to Remi.

Money isn't the root of all evil, Prednisone is the root of all evil...


poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/23/2008 9:43 PM (GMT -7)   
mine seems to be hands and feet at the same time, both sides.

ides and blue meanies, do you guys have colonic involvement? does it affect all your joints at the same time or just some?

do your symptoms come on only with flares or are they always there?

poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/23/2008 9:47 PM (GMT -7)   
does it seem to get better or worse as time goes by?

have any of you been diagnosed with or have symptoms od ankylosing spondylitis?

potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 4/23/2008 10:30 PM (GMT -7)   
When I have gotten this, it would effect both parts at the same time. For example, both ankles or both shoulders would hurt. It would come and go. I might have pain in both my wrists for a month or two and then it would go away for a little bit of time. Then I'd get it in my knees or a few weeks and then it would also gradually go away. It went on like that for years and years. My Crohn's is in my colon. Now I am on Humira and I rarely get that kind of pain. If I do, it lasts only a couple of days.

poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/23/2008 11:03 PM (GMT -7)   
potatoqwn,
 
is yours arthritis (peripepheral arthritis,in the joints themselves) or inflammation of the tendons (enthasitis)?
 

tinglebell
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Date Joined Apr 2007
Total Posts : 531
   Posted 4/23/2008 11:09 PM (GMT -7)   
I too, have had this pain and swelling. It began about 16 months ago in some of my finger joints, advanced to wrists, ankles, back and neck.  I went on prednisone for "arthritis" or spondylitis and that helped after a week or so, but was on 40 mg. I then started remicade, (now on humira), have weaned down on pred to 5 mg and am having some slight joint pain and swelling at this dose. I am holding out on increasing my pred again. I think the humira and remi helped the condition to subside whatever it is. They ruled out RA with the blood test. Try to keep a log of sx/treatment, I almost forgot about the neck pain and that was the worst of all. I also was having a flare at the time. Good luck.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 4/24/2008 6:05 AM (GMT -7)   
Couldn't help but to eavesdrop.. lol I am currently in a flare for Colitis. Over the last few weeks I have experienced soreness in my ankles, wrists, back and behind my knees. It is terrible !! I recently seen my doctor and he says it is certainly related to the flare. I just started taking Sulfasalazine and Prednisone. He thinks both will help get me back into remission and the Sulfa should certinaly help with the arthritis type pains. I have never had joint pain until this flare.
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG 4 times per day
Prednisone 5MG 3 per day for next 10 days
Daily Vitamin for Women and Folic Acid


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 4/24/2008 7:05 AM (GMT -7)   
I have AS and I am on remicade , but even that does not stop the pain all the time. I still take motrin from time to time, when its really bad. I dont take them a lot but sometimes you just have to do what you have to do.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 4/24/2008 7:20 AM (GMT -7)   
You know, the doctors never told me what exactly it was called. They just said it was related to the Crohn's - the arthritis that is related, but not true arthritis. I went to a rheumatologist and she scared the heck out of me. Told me I had Lupus and Fibromalgia. I got a second opinion and was told that I din't have either. I get pain in both my joints and tendons. I take Advil when it gets bad. As Sniper wrote, sometimes you just have to, and it is worth it for me.

ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 4/24/2008 7:36 AM (GMT -7)   

sad  OMG...i have been in sooo much pain for a little bit over a month, I have pain in my shoulders, and knees..my Ortho doctor gave me injections, then sent me for an MRI & CT SCAN, thinks its possibly osteoarthritis, wants me to get a DEXA SCAN and see a rheumatologist...not sure if this is just part of a flare up or what is going on?? I have been on Humira since Dec 07, but sometimes I just don't think its working good enough...I just want to feel normal again, even if its just for a few days.....

kelly

 

 


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 4/24/2008 8:22 AM (GMT -7)   
Sounds like the IBD arthritis, unless it is tendons. I had wicked arthritis in my ankles, knees, hips, wrists, last fall. Its more likely this, since its a very common complication of our DD.

Matthew

bluemeanies
Veteran Member


Date Joined Jun 2004
Total Posts : 1372
   Posted 4/24/2008 4:19 PM (GMT -7)   
The enthesis can occur when the crohn's is not so active. Not all my joints are affected. Usually it's just a few spots at a time. Like when I go to turn a door knob it hurts. I have noticed that it's really bad a few days then eases up for a few days and then goes away for awhile. Mine is definatly a tendin problem, not a joint problem.
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/24/2008 5:12 PM (GMT -7)   
I was dx with fibromyalgia after complaining of pain similar to yours. The rhuemy prescribed me muscle relaxers, and
physical therapy. The therapy hasn't worked so well, but I still take Soma (muscle relaxers) they give some relief.

I have also been considering the new drug Lyrica, it seems to have been receiving some good reviews.

Whatever your problem turns out to be, I wish you the best....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/24/2008 5:13 PM (GMT -7)   
poo - I have Ankylosing Spondylitis. I am HLA-B27 positive, have sacroiliitis, and enthesitis. [One can have AS without being HLA-B27 positive.] My joint and tendon problems are NOT related to my flares of Crohn's. As I said in my first response, my guts are in remission yet I am still flaring with the enthesitis. My CD was located only in my terminal ileum, no colon involvement. Not all of my tendons flare at the same time. I tend to have it either on one side of the body or the other.

My enthesitis has caused extensive calcification of several of my tendons. This causes lots of pain and movement problems. I have significantly calcified Achilles tendons, quadricep tendons and bicep tendons to name a few. My current "hot spots" are my fingers and knees and to a lesser extent, my elbows.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/24/2008 8:54 PM (GMT -7)   
thanks ides. i appreciate your response.
 
seeing rheum md next week.

poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/25/2008 9:09 PM (GMT -7)   
so ides,
 
did your enthesitis onset coincide with a flare? do they get worse with flares (i kno AS can take on a life of its own with respect the CD)
 
for me its affecting literally every joint in my entire body right now at the same time, it is unbelievable, though the pain is only mild-modest right now. anybody part i use much becomes affected. I thought it was only hands and feet at first, but its everywhere.
 
i've never had symptoms like this before, or other typical sx of AS (that im aware of). i have chronic low back pain and stiffness from a prior lumbar surgery, so cant tell if thats a symptom or not.
 
you seem to know alot about the sponylidities - what do you think?
 
 
 
 

poobah
Regular Member


Date Joined Dec 2006
Total Posts : 136
   Posted 4/25/2008 9:14 PM (GMT -7)   
one more question ides,
 
i know you're supposed to exercise with AS, but does that make the enthesitis worse?
 
stertching and exercising just seems to egg mine on!
 
 
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