No Guts No Glory Diet

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

KarinB.
Regular Member


Date Joined Jan 2005
Total Posts : 43
   Posted 4/24/2008 9:38 PM (GMT -7)   
Anybody ever heard of this diet before? I'm reading Jordan Rubin's book and his story is so moving.  He has so many good tips about diet and drugs and how they relate to Crohn's disease.  If you tried his diet, did it work for you?  Let me know because I'm considering giving it a whirl.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/25/2008 6:25 AM (GMT -7)   
Please be careful with this guy, there have been many reports that he's just a schmuck. Alot of people have tried his diet and products and they don't work.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


KarinB.
Regular Member


Date Joined Jan 2005
Total Posts : 43
   Posted 4/25/2008 6:42 AM (GMT -7)   
Wow...thanks for the advice.  I don't like phonies!

Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 118
   Posted 4/25/2008 6:49 AM (GMT -7)   
I tried it, and it didn't work, I was so frustrated. Bought all the supplements, and everything. Couldn't survive on just that "broth" of his, I'm sorry, it's just not possible..and then he has you taking like 15-20 supplement pills a day.... I didn't have any strength, thought I was going to collapse, seriously. Was in a flare when I tried it out, about a month ago. Still in a flare, am trying out the SCD diet, trying it on for size so to speak.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/25/2008 7:16 AM (GMT -7)   
KarinB, plenty of people have tried The Maker's Diet and had great success, too (I don't know what the "No Guts No Glory" diet is). One thing that cannot be argued is that it IS a healthy way to eat. No sugar, no white flour, nothing refined whatsoever.

I don't doubt it is not necessarily the answer for every CDer, though.

Personally, I don't think Rubin is a phony or a schmuck, either. Maybe my point on that is buried in the link below... I can't remember, but we've discussed it at length before...

Here's a recent thread if you want to read the good with the bad:

http://www.healingwell.com/community/default.aspx?f=17&m=1053031
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/25/2008 7:52 AM (GMT -7)   
I tried this diet both IN and OUT of remission and it DID NOT WORK.

I followed both the Guts and Glory program and the makers diet (first the makers diet and then the guts and glory program) and they did not work for me. I was desperate to get better, bought most of the supplements, followed the diet with no cheating and it DID NOT WORK. What I mean by not working is it did not kick me into remission nor did it keep me in remission once I was in remission thanks to steroids.

It is a healthy diet, but please don't listen to they miraculous healing from Crohn's story...It sucks, but he is trying to run a business(Garden of Life) so it does make sense he would try and market his products as much as he can.

But again, like anything else, what works for one Crohn's patient doesn't necessarily work for another.
turboemma.blogspot.com/


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/25/2008 7:55 AM (GMT -7)   
There have also been numerous lawsuits filed against him and his company b/c originally his products claimed to heal people from different diseases/illnesses. He has since changed the claims on his supplements and things, but the bottom line is, he got called out for being somewhat fake.

His PHD is from no name internet school, etc etc

Take it for what you will, I don't trust him. His diet IS a healthy way to eat (Maker's Diet) and I DO support it for healthy folks but it has failed to put me in or keep me in remission. If you research him on the net you'll find the lawsuits etc etc
turboemma.blogspot.com/


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/28/2008 9:18 PM (GMT -7)   
DISCLAIMER -
please read the following slowly and carefully. if you choose to respond to it, please read it several times before you do. intent can be lost easily over email as emotion is lost in text and thus it is easy to misconstrue one's intent and misinterpret the opinion of the author as hostile and cruel. in no way am i calling any one out on this board and demeaning them or their intelligence in any way. if you do feel that i have come across as doing so or vindictive, please ask me for clarification before you retaliate and create a pissing contest (i wont respond to those posts). this is not a diatribe as i am not necessarily defending jordan rubin but i would like to point out some things that some of you may not know which i hope would help the less informed from jumping to conclusions from what is read on the internet which isnt always the best source of information, especially if you are getting 2nd or 3rd hand or more. please use what i have to say as education as to each story there are at least 2 sides.


this is long, but then i dont like to give just 2 cents. i like to give a handful of change and i always over tip. but this time i think i'm giving you all the money in my piggy bank (and maybe taking out a loan to boot). so here we go....


makers diet:
this has worked for me. i am a believer in it. it has transformed my life for the better. but it is nothing truly new, it just has a faith based packaging. if you've read his other books (i have - all of them) it is the same diet just slightly tweaked to reach a different audience. did you know the atkins diet was around in the 1960's before it had its second coming a few years ago and spawned many other diets, like the south beach diet? but we are all unique, and thus there can never be one all encompassing diet for every one. but we can all use the same principles for our individual diet, and the maker's diet has these principles. it is an extreme way to eat and has you eating foods that for us have become danger foods, but it can still be tweaked to fit your individual needs. some people have had success like i have had. i am more surprised than any one that i can tolerate vegetables again (for the most part). i do attribute some of this to having surgery a year before i did the diet so the bulk of the diseased portion of my bowel was removed and i feel this helped facilitate my transition back on to what had been may danger foods for over a decade (however i do not tolerate broccoli or corn still). now it wont work for everyone. jordan even states it is not a panacea, so it shouldnt be thought of as that way. even the scd, which the makers diet is similar to in one fashion, doesnt work for everyone. with that being said, the only to know for certain if it will work for you is to truly give it the chance it deserves and you do that by following the directions to the letter. most people fail on their diets cos they dont do this. they say they do, but they dont. i've talked to people who said they did, but when i've pressed them they do break and admit that they did cheat on their diet. for example, my dad wants to lose weight. i know he wont do makers, but i've given him some tips and advice. he's done some and made some positive changes in his eating habits, but he cant lose weight (he's steady now) and this upsets him. he tells me what he does and it all sounds good. however he does cheat and he doesnt consider it a big deal or thinks he does it often, but he does, and does it enough that he is sabotaging himself. and i believe that is what a lot of people do when they diet. so you have to be true to yourself and give it a legit chance before you give up a week or two into it cos it is "too hard" and you have to be honest and not cheat cos then it wont work at all. i started the makers diet on phase 3 cos phases 1 and 2 were too intimidating. i saw it work though in a few days. but it wasnt until jordan had me restart the diet from phase 1 with special caveats making the book version easy that i truly saw the power of diet. by doing it properly i got the health results i wanted. so before you bad mouth it, which is easy to understand for those whom this didnt legitimately work (i know have a bitter taste in my mouth for remicade which i now feel didnt work at all, just masked symptoms), but for those of you who did cheat or didnt follow through please state so before you give others a false impression cos your words and actions do influence them.



HSO and primal defense:
jordan rubin strongly believes in his probiotic and that it was this more than anything that brought him from the brink of death to excellent health. (my personal experience, i give more credence to the diet than the probiotic). if you look at the information panel, it states what strains are in the probiotic. you want any probiotic to state this. and the strains included are the major ones you want in a probiotic. it also says it contains 5 billion cfu's. this is also good. if a probiotic does not have the cfu value listed and what strains it contains, i suggest not purchasing it. from a talk i attended through the ccfa recently on probiotics (given by a GI who really knows her stuff) this is on the low side of things, so it could be improved with a higher cfu (vsl 3 is said to have 450 billion cfu, hence imho making it a superior product). the same doctor said you want a probiotic that requires refrigeration. this means most of the ones most of us here are taking are no good. this includes primal defense. she said outside of refrigeration the colonies only last about a week. now for the HSO - she was strongly suspect on this. she said she's tried very very hard to find out just what is in the HSO but garden of life wont tell any one. it is a closely guarded secret. this has upset a lot of people and i am sure sparked a lot of the claims against him being a ****and a schiester, just out for your money. for all we know it could be dirt from his backyard, but i suspect it is not. because no one knows what his HSO is, competitors are going to do a smear campaign under the radar disguised as other companies/people to discredit the product and thus his company. the FDA does this all the time to get you to consume poison but has told you it is good for you (dont get me started on soy). i've taken his probiotic and i cannot say i felt a clinical response, but then i feel the same way about the other 2 i've tried. oh, and the GI i spoke of earlier in this paragraph, although she has a beef with jordan rubin on him not disclosing what the HSO blend is, she does recommend his probiotic to her patients and she's done her research on this stuff (in case you're wondering, she recommends vsl3). yes, primal defense is expensive, but a good probiotic (or supplement for that matter) will be. most are not covered by insurance. my rule of thumb for supplements: if it is cheap it is probably junk, if it is expensive it may not necessarily by the best, but chances are it is good, just make sure you know your stuff before you spend the big bucks to know if you are making a wise buy or not.


was jordan really sick?
if you've seen the before and after pictures in his books, how can you even debate this? a tapeworm will not do this to you. take a good long look at the before picture. you're either seriously ill or you've been tortured and malnourished by others (ie **** concentration camps). i believe he has crohns (yes has - none of us will ever be cured) and a whole host of other illnesses that were brought on by his sever condition. i believe if he immediately did the traditional medical route (prednisone, immunosuppressants, etc) he wouldnt have gotten that bad, especially that fast. but i say lucky for me he did cos then he wouldnt have found the diet and i would then be writing all my emails on this web board with a colostomy. i've had the opportunity to meet him twice. i do not know him more than a casual acquaintance, and i'm sure he wouldnt recognize me or remember my name, as we spoke for about a half an hour each time about my condition. but through those two meetings, and also talking with some of his staff members, this guy is legit. he was truly that sick and is now a pillar of health.



is he preying on the sick?
again from talking with jordan and his staff, i can honestly say my impression of the guy is that he is genuine. no joke. i am an engineer by trade and i eschewed alternative health for many many years as most of it was empty promises and outlandish claims and they all seemed like snake oil salesmen. i tried his diet on the recommendation of my acupuncturist, whom i trust (and yes, i do admit i was desperate - but who wouldnt be facing a colostomy?). his diet worked for me. i was on it for a month before i met him and i had seen it work for me so i knew there was something to this. when i met him i truly found him genuine. the second time i met him he took time out of his schedule to personally meet with me. he didnt have to do that. he also helped me for the first few months after i met him and he didnt have to do this and he doesnt do health coaching, which in essence he was doing for me. one does not do this with a multi million dollar company if they are not genuinely interested in some one's health. he is a true altruist in regards to other people's health. a similar passion has grown in me as i did this diet and learned more on health and nutrition and saw my life completely turn around by diet (this should be evident from my postings). this is something you wouldnt understand unless you experience it first hand and thus it is easy to dismiss. our society has become a negative one. we have become skeptical of everyone and everything. but how can we not when it seems our govt's are corrupt and every one is only out to make a buck and you are always hearing of scams and things like enron and worldcom etc etc. but buried in the mire are a few legitimate people. the problem is that they are few and far between and finding them is difficult, and then when you do how can you be sure the person is legit and you're not receiving lip service? very hard.


jordan's faith:
jordan grew up as and is a mesionic jew (jews that believe Jesus was the messiah yet are not technically either jews or christians - sorry for the bad definition). he has always had a strong faith growing up. in college he was considering a career in the ministry in some capacity, but that was derailed when he developed crohn's. so he did not "find God" for he already had him. his religious convictions are very strong. that is his base, so he is not exploiting the religious people with a faith based diet.


jordan's education:
he was driven by his religious convictions and the diet he did to find a school that would teach naturopathy/alternative med/etc that was bible based. these are extremely rare and hard to come by. the one he did find is defunct, yes. i dont know if it was accredited or not. so his credentials are not from ivy league schools. i bet yours are not either. are your doctors? do you know how good his med school was? i doubt it. MIT is not the engineering school it once was. most of the people who go to the ivy league schools live there (ie in-state kids) or have connections or can afford for mommy and daddy to buy their way in. it also helps if you are a woman or a minority, but that is true with any college (sorry if i stepped on some toes but face it, this is true; i'm not knocking it, only stating a fact). he sought out a particular type of school and went there. a degree gets you in the door. it is your knowledge and hard work that gets you up the ladder. imho, his stuff is sound. read his book thoroughly and check his sources to convince yourself. if you agree, that what does it matter where he went to school if he knows his stuff? i'd rather have a doctor who has experience and knows what he is doing during surgery than the guy who got an A on some exam and went to the "right" school, but that is just. he doesnt like being called "doctor". it was used on a book or two by the publisher (not his idea) in an effort to sell more books and make hims seem more legit. wouldnt you rather buy something from a doctor than from joe six pack? bottom line the guy knows his stuff. i know this from talking with him and reading his books.


garden of life supplements:
yes, i use these products. jordan uses them too. he made this company so he could make products he wanted to use that satisfied his strict requirements regarding ingredients and manufacturing. i consider us lucky that he is sharing them with us. yes he makes money when we buy his product, but it IS a good product. is he supposed to give them away to us cos we also have crohns? if you dont like the idea of him getting your money, give it to some one else cos there are many many other people ready to take it and will sell you an inferior product. i use his digestive enzymes and cod liver oil. i highly recommend both products. carlson labs makes a great cod liver oil too. his perfect food green drink supplement is quality. however i find the taste not to be too appeasing, so i now use greens plus and vitamineral greens solely based on taste. GOL makes many good products. before you knock them, research them and try them and compare them to the many other brands available. if you do so i think you'll agree that they are quality products. but there are many quality products on the market - good luck finding them.


marketing claims and the FDA:
it is illegal to make a statement that any product other than a prescription medicine can cure or treat a disease. read any health book or the label on any supplement and you'll see this disclaimer. it is required by law so these people who make the books and products will not get sued. seriously. it is a CYA thing. perhaps jordan didnt have this disclaimer on his product or left himself open some how somewhere for the FDA to come in and sue him in an attempt to put him out of business. maybe he made a claim that was a too far fetched and got called out on it. i am not familiar with this so i cant legitimately comment on it. but the internet is full of naysayers and bashers so take everything with a grain of salt. i am not doubting this happened, i am just suggesting that it can be sensationalized by his detractors. i dont know about him having to change the name of his product, but he has a second version, primal defense ultra, which has an additional probiotic strain. GOL has grown to be a good size company and is worth it for the FDA to pursue at the expense of your tax dollar to put out of business cos they are competing with the govt monopoly - medicines. the little guy aint worth the money, time or effort. but the medium to big size companies are potentially taking away patients whom doctors can put on drugs for an indefinite amount of time. feel free to call me a conspiracy nut, but this is true. (side note: if the US goes to universal health care, we're all screwed (and so is canada) so this alone is reason enough for me to vote republican just to hopefully thwart or stall a democrat push for universal health care - it will be a total disaster.)


geophagy:
ancient practice of eating clay. people did this, but only a certain clay, for the minerals. minerals are inorganic compounds your body cannot make and thus must be obtained solely via diet as minerals are necessary to absorb, fix, and assimilate vitamins. you can order minerals in this clay form on the internet. try puritans pride as i've been told they make a good one. it isnt practiced in the "modern" world cos we have access to supplements. oh, and did you know clay is an ingredient in mcdonald's french fries? no, they are not a nutritional supplement but instead is used as a stabilizer/binder or something, not to provide nutritional value.


MY opinion on kevin trudeau:
i read his first natural cure book, which i borrowed from a friend. an interesting read. he had some good points. however it was one giant rant more or less. he made a lot of claims which he said he couldnt back up cos he'd be sued, but if you subscribed to his website for like $20/mo he'll tell you and you'll have access to all kinds of doctors and his staff. he said he was very sick but doesnt say what. he was convicted of some white collar crime and did time (i think, some one double check this before it turns into an unsubstantiated rumor). so he's got a criminal past, but he's upfront with saying this and i like to believe that people can change and grow and learn from their mistakes. but imho, his book was one giant sales pitch to sign up at his website and he says this over and over again. however some parts are worth reading. i recommend borrowing a copy or checking it out from the library if you can. dont buy it though. imho it isnt worth the price (they say it is free but s/h is like $20). and i believe this guy is out for the money cos why else would he make a "natural debt cures" book.....




well, you're at the end of my post. i sincerely thank you for reading the entire thing. i know it was long (just think how long it took me to compose it!) i hope this was informative for you.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/28/2008 10:33 PM (GMT -7)   
I think if Jordan Rubin really cared about people being healthy... then, he'd actually have REAL scientific research backing up his Primal Defense product (which may not even be safe... because as you said yourself, nobody knows what the heck is in that soil... plus, I also read something concerning the bacteria that's used in Primal Defense... Bacillus subtilis, for instance... I heard that this bacteria isn't even naturally in the digestive system... and that it can cause problems...)

And regarding, Rubin's education.... I don't expect doctors to come from Ivy League schools or anything like that. Truly don't care... As long as they are educated at a school that has been reviewed and accredited for teaching the things its suppose to teach...

None of the schools Rubin went to were accredited (you can verify this yourself, it's all over the internet). Which means he could have been learning about space junk, for all we know.

Also, please remember that photos can be faked (Photoshop, anyone?). I don't know if Rubin really had/has Crohn's disease or not... He might very well have. But you must also remember that just because someone goes through terrible illness doesn't mean they can't be a horrible person.


And don't you dare get me started on Kevin Trudeau. I've never disliked a person more intensely than that guy. He's a con, pure and simple.... *He isn't truly upfront about his crime... He makes it sounds like it wasn't a big deal... and that he was young... experimenting or whatever.... If I remember right, he stole hundreds of people's credit card numbers... or something like that... He's really an awful, awful man... And I wouldn't recommend anything he says...*


I don't mean to seem like I'm attacking you or anything... It's just... this topic upsets me because I'm tired of people using illness to take advantage of other people...


And the sad thing is... Not many people end up standing up to those idiots out there (unless something really dangerous occurs) because they're too ashamed to admit that they have been taken advantage of.

It's the worst feeling in the world.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/29/2008 3:02 PM (GMT -7)   
Also... regarding your meeting with Jordan Rubin.... I highly doubt he would give off the impression of being aloof or uncaring about health if he's trying to sell his product. In fact, most con men (and salespeople), in general, appear to be pleasant, charismatic people. It's their job. They couldn't sell anything if they were aloof and unfriendly.

And... just a few months with you... and you spend $50 (or more) on his products each month... for the rest of your life.... That's a ton of money he's getting from you. And you're just one person. And of course, you are going to tell everyone about your meeting with Mr. Rubin and how compassionate he seemed... Which means even more business for him. It was a smart thing to do... He didn't have to do it, but it's definitely good for business.


And I still can't help but feel that that is all that matters to Mr. Rubin. Business. Again, if he really cared about people's health... He'd have actual scientific research backing up his products... Scientific research that NOT ONLY proves TO THE PUBLIC that the products are SAFE for the HEALTHY and the UNHEALTHY alike, BUT ALSO that they actually DO what they CLAIM TO DO.


If Mr. Rubin's products truly are as great as he claims them to be... Then, what would he have to lose by having his products backed up by scientific research?
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/29/2008 7:47 PM (GMT -7)   
I always trust a friend's opinion on someone's character over ANYTHING I might read in the media or on the internet. I trust CrazyHarry's opinion on Rubin.

Additionally, I personally fail to see how the money factor for supplements is any different than for drugs. By that I mean that when it comes to Crohn's, you're likely on some kind of medication for the rest of your life--at least that's exactly what our GI told us. Soooo... supplements or drugs? Which to spend $$ on? For us, this is just another choice, and I thank God for it. Drugs have their nasty side effects, questionable effectiveness, low percentage of actual remission achieved, recalls, etc., etc. There just are no guarantees because they don't know yet exactly what causes CD.

And of course, there's no corruption in our drug industry...

I'm done here...

KarinB.
Regular Member


Date Joined Jan 2005
Total Posts : 43
   Posted 4/29/2008 9:54 PM (GMT -7)   
Thanks everyone for the amazing information regarding your thoughts on the No Guts No Glory Diet and Jordan Rubin.  Wow!  Crazy Harry, you've been through so...much with your crohn's I feel like bowing to you.  Sounds silly, but I have a mild case and when I read your story and others, I'm so moved.  Because of you, I have a better understanding of what is legit, what works, what doesn't.  What you're saying is for the most part, the diet has worked for you and that's all that matters!  I've had crohn's for over 20 years and throughout, I've discovered weird stuff such as I'm intolerant to cow's milk, which makes me have mucus and bloody stools.  I'm intolerant to apples and bananas.  I also get severe stomach cramps from rice wine vinegar.  Even stranger, I can ingest any other type of vinegar and have no adverse symptoms.  Does any of this make sense?  Would anybody else have the exact same problem?  I doubt it!  Through trial and error and a food blood test, I've figured these things out on my own.  The one thread that seems to connect everyone's case is that DIET has a HUGE impact on crohn's disease.  If I were to decide to eat deep dish pizza every day, chances are I'd have to get a section of my colon removed.  I simply can't digest cow's milk properly.  Therefore, I avoid dairy at all costs.  My GI really didn't believe that diet had such a strong effect on my crohn's until I had a colonoscopy.  I went from having inflammation and blood to nothing all  because I changed my diet. 
 
So what I've learned is that crohn's has a diverse effect on people and you can't really pigeonhole the disease.  You can only do what works for you.  Amen! 

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/30/2008 6:39 AM (GMT -7)   
I still have to agree with Celey on this one...I've tried all of his "diets" and products and they have made no impact on my Crohn's.

I'm not disputing the fact that the diet itself is a healthy one...but not great enough to "cure" one from Crohn's...

It didn't even put or keep me in remission...
turboemma.blogspot.com/


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/30/2008 5:06 PM (GMT -7)   
i wholeheartedly do not believe that there is a cure for crohns. this is a genetic disorder so until they can do some sci fi gene therapy i know i'll always have it. i see diet as medicine - a way to keep symptoms at bay and hopefully the disease in remission or under control. so far this is working for me, but who is to say next week or 10 years from now?

there is not one diet to lose weight that works for everyone, so makes sense to me that there is not one diet that will help you with crohn's. some people may see results in a few days (like me) on a specific diet while others may not respond to it at all while still others may be so advanced in the disease that it may take a long long time to see results.

so since this disease seems to come from all kinds of angles, all one can do is try the options available, be they medicinal, alternative, surgical, or diet, until something or some combination seems to work.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/30/2008 8:43 PM (GMT -7)   
I never said there wasn't any corruption in the drug industry. I know there is. However, at least with the drug industry, I can be assured that they're actually testing their products... and know what the side effects are.

(So-called natural remedies also have side effects... some even worse than the ones that pharmaceutical drugs have. And I've always found it funny that some people say one such natural remedy is more natural than a pharmaceutical... because some pharmaceuticals actually come from nature. I think aspirin might be one, but don't quote me on that... (Some kind of plant in a rain forest... ehh... yeah, I can't remember.)


I'd much rather spend my money on something that has scientific, peer-reviewed research backing it up than on something someone says, "Oh, look! It works! This is the way ancient people did it" or "My friend uses it, and it works for him, so, it's gotta be good!"
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 4/30/2008 10:07 PM (GMT -7)   
I agree with you Celey, 100% there's nothing better than peer-reviewed research for my money. I just never find myself trusting that supplements and natureopathy stuff works as well as they say it does, especially when there's no one there to monitor the things they're saying and the claims they're making. That's not to say that I wont take some stuff (especially if my Doc says it won't hurt) like flax and omega but I can't say I believe in the stuff enough to stop my real meds. Better living through chemistry, I say.

And ditto the Kevin Trudeau thing. That guy's a nut. A coworker gave me a copy of his audiobook after learning about my crohn's and my desire to eat better. I listened to it and spent the entire 6hour drive I was on literally yelling at my car radio because of how awfully stupid, biased, and totally unfounded the crap he was espousing was. UGH.

These people are criminals and they exploit the sick and it's disgusting.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/1/2008 8:42 AM (GMT -7)   
That's the way I feel. I'm certainly willing to give natural therapies a shot... (Especially right now since I've been feeling awful.) But they have to be researched... I bought the Primal Defense stuff out of desperation... and now I'm out $50 (And I'm low-income and living on my own... It's not good to be out $50...) And I still feel bad...

And it makes me feel worse that I jumped into something so quickly without looking deeper into it... :(... If what I'm reading is right... that Primal Defense stuff might actually be bad for my health... (Because of some of the bacteria that's in it... Some of it is the bad kind...)... Of course, no saying for sure how bad it could be... because it doesn't have any research backing it up... (Just seems really scary to me... at least with pharmaceutical drugs, you know what to expect...)


I still really want to try a probiotic... Because it looks like there are some good ones out there... and if it'll help, it would be so wonderful....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 5/1/2008 10:22 PM (GMT -7)   
Celey, don't feel bad! Unfortunately, you're probably not the only one whose pain was exploited for this guy's Swiss Account. From what I'm reading as well, I would say to avoid the stuff (I'm so not a doctor, though!) because if it really does have bacteria that don't belong in the body in it, it could go very badly.

I have been looking at the probiotics, but really, I haven't heard a lot of stuff to back up their really working. I think it's a fab idea, but I dunno, it makes me leery. I hate that we have to feel so desperate for relief... totally lame!

Hang in there, kiddo! (I say that hoping it doesn't immediately cause you to vomit and/or picture a cat in a tree) I'm around if you ever wanna talk.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/2/2008 12:46 AM (GMT -7)   
What exactly is the No Guts No Glory diet? Can someone please provide a brief outline for those of us who have never heard of it?

Thanks,

Ivy, curious.
Co-Moderator Crohn's Forum.


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 5/2/2008 6:05 AM (GMT -7)   
The fact that Maker's Diet did not work for some people does not mean it is meritless or that Jordan Rubin is a fake. Personally I am skeptical of anyone that tries to sell a product in what is meant to be a self-help book. But all the above stories prove is that the diet works for some--and not for others. The same is true for many of the pharmaceuticals prescribed for Crohn's.
 
While you may feel better about using something a doctor gives you, consider that not all prescription Crohn's therapies actually work. Rigorous peer-reviewed studies have shown that in the long-term, 5-ASA's like Pentasa are no better than a placebo at maintaining remission, yet doctors prescribe them and patients pay a lot of money for them--for years.
 
Peer-reviewed research is good, but not good enough, to make me feel safe. Most studies last a very short time and don't enroll enough people, so you don't see the unintended consequences of using these drugs long-term. The potential of biologics to cause cancer, fatal pneumonia, etc. could make today's Crohn's wonder drugs to be tomorrow's Vioxx as they are more widely prescribed (some doctors are now pushing a top-down approach) and the population that uses them advances in age.
 
Sadly there just isn't really another alternative right now. To make it worse most drug companies don't seem interested in exploring other ways to treat the disease, and there is not enough money for basic research in academia.


July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying...
Enteral Nutrition, SCD, Omega-3 (Fish and Flax Oil), Folic Acid, Probiotics, Vitamin E, Psyllium

Post Edited (Illini) : 5/2/2008 9:46:33 AM (GMT-6)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/2/2008 9:11 AM (GMT -7)   
Thanks for the support, not creative. (I'm really hoping I get to feeling better soon... I feeling the way I've been feeling...)
 
 
(On a note, I never said anything about the Maker's Diet or the No Guts No Glory not working for some people as proof that Mr. Rubin is fake. What makes Mr. Rubin a fake is his credentials *or rather considerable lack of*, the fact that he is having legal trouble, and that his products aren't as top-quality as he claims them to be)
 

Everything you said, though, Illini is completely true... Sad but true... (Though, on a note... You've completely backed up one of my points regarding peer-reviewed research. If research hadn't been done, then no one would know that Pentasa is often no better than a placebo regarding Crohn's disease)
 
And what you said about the companies... very true, as well. :(... It seems very unlikely that a cure will ever be discovered for our disease... or any other autoimmune disease. I'm hoping... and I'm even hoping I'll get a chance to contribute towards finding a cure... But... the way things are now... It seems so unlikely.
 
:(... And one of the reasons is definitely because there isn't enough research money going around...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 5/2/2008 3:46 PM (GMT -7)   
There isn't enough money and it pisses me off. We're spending so much money on killing people in this stupid war (for those countries involved in the mid east, I'm trying not to be ethnocentric here) and aren't spending enough on important things, like academia and research. It makes me very mad.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/2/2008 4:01 PM (GMT -7)   
Careful not to get too political...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 5/2/2008 10:33 PM (GMT -7)   
You know, I just don't even care. It affects my life in relation to my disease and healthcare, I should be allowed to say something stinks.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 7:30 AM (GMT -7)
There are a total of 2,732,493 posts in 301,027 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
284 Guest(s), 6 Registered Member(s) are currently online.  Details
John_TX, Carioke65, Huddie, Buzzlymeyear, franko63, afiya4health


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer