getting off Remicade

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Regular Member

Date Joined Jul 2007
Total Posts : 33
   Posted 4/25/2008 10:56 AM (GMT -6)   
I am stopping my Remicade. I cannot handle all of the infections I have had in the past year since I've been on it. I am currently in remision. Can anyone tell me what has happened to them after stopping Remicade. I just restarted my Pentasa and my Remicade wears off in 3 weeks. The only thing I'm worried about is the joint pain I've starting having near the time when my Remicade is due. Anyone get the arthralgia associated with Crohn's? I have gotten it in my knees and ankles. Thanks for any responses. Tiffany
diagnosed with Crohn's 2/2007
Pentasa, Remicade, Imuran, Protonix

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 4/25/2008 11:34 AM (GMT -6)   
nursetiff, I was on Remicade and had to stop it due to allergic reactions.  My stomach pain and joint pain (I also have arthritis due to Crohn's) got worse, but I didn't come out of remission as far as the Crohn's was concerned.  But, I was only off of Remicade for about two months before finding and starting in a clinical trial for Cimzia.  Even if I had not found the clinical trial, I would have tried Humira.  Even with the Cimzia, pain and arthritis medication, I still have arthritis pain (and have now stopped the arthritis drug due to 3 ulcers found on my endoscopy last week).  I don't think I could do it without one of the biologic drugs.  Good luck!  I hope you get off of Remicade and don't have increased problems. 
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4

Regular Member

Date Joined Feb 2004
Total Posts : 437
   Posted 4/25/2008 2:26 PM (GMT -6)   
My joint pain went away about 3 months after i got off remicade. i had severe joint pain, they dx'ed me with fibromyalgia while i was on remicade and i would walk with a cane for about 2 weeks after each treatment. i'm fine now, been off remicade for 4 years now. it put me into remission and i've been drug free and in remission for 4 years. i blame a lot of the remission on the fact that i had 2 kids in that time. seemed all my cd symptoms would completly dissapear when i was preggers.
they r going to put me on humira if i start to have troubles again. but, i've not been to the doctor in about 2 years so i don't know if cimzia will be an option for me or not. lots of new drugs out there that i haven't tried.

anyway, good luck and i hope u'r joint pain goes away like mine did.
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