Crohn's AND Celiac????

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nursetiff
Regular Member


Date Joined Jul 2007
Total Posts : 33
   Posted 4/25/2008 8:23 PM (GMT -7)   
I had a bunch more labwork done recently because of my elevated liver enzymes and my celiac test was elevated, but only at a 10 (normal range 0-9). I hope this is a false positive because I cannot imagine having both Crohn's and Celiac dz. I love my carbs tooooo much. Has anyone else ran into this??? we are doing more labwork in a couple of months.
diagnosed with Crohn's 2/2007. Small bowel resection 4/2007 d/t abcess, perforation.
Currently on Remicade, Pentasa 1000mg 3xday.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 4/26/2008 1:41 AM (GMT -7)   
Actually, some find their CD gets a lot less intense once they stop eating gluten... I am gluten sensitive ("non-Celiac Gluten Sensitivity"), but I also have one of the genes that predisposes to the development of Celiac, so decided to try a gluten-free diet for awhile. Turns out the gluten gives me terrible cramps & migraines during my monthly cycle, and after starting a gluten-free diet, I also get a heavy feeling in my stomach and immedate diarrhea when I eat anything with gluten in it (even a small communion wafer!). Whether or not I have CD is still up in the air, but I do know how gluten affects me and I choose not to consume it (at least, not knowingly) now because of how the gluten makes me feel.

Good luck,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/26/2008 7:36 AM (GMT -7)   
I tested negative for celiac, but a naturopath's tests showed a high intolerance, so I stopped 4 months ago and am a completely new person! I thought I would starve without bread and the like, but I can now eat all the stuff I couldn't eat before, like salad, so it is a nice trade. mostly, having an appetite, energy, and looking good again is worth the restrictions. pain is light, bms are normal, life is fabulous! I have no interest in eating gluten, diagnosis or not.
email me if you want to hear more; I am also on a nice celiac forum (which THEY call CD, so at first I thought they were all talking about crohns!)
yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


weedlewub
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 4/26/2008 5:51 PM (GMT -7)   
I haven't been tested for Celiac's but am thinking about doing it soon. My aunt has it, so it runs in the family. I have also found that Gluten can upset my touchy GI tract, I am basically eating a gluten free diet right now and doing very well.
Crohn's Colitis
Currently taking Asacol and Prednisone
Recently started the Maker's Diet


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 4/27/2008 3:01 AM (GMT -7)   
Getting tested (bloodwork) after starting a gluten-free diet may give false-negative results. However, there is a stool test that can be done that is more sensitive than the blood tests for Celiac Disease / Gluten Sensitivity and which gives fairly accurate results up to a full year after starting a gluten-free diet. Check out www.enterolab.com. I have no financial interest in this company, I simply am a satisfied customer.

Good luck,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.

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