Welcome to the board! I am a "newbie" to the board too, but a long time Crohn's sufferer (30 years). I have been unsuccessful with many treatments over the years, until now. I was taking Pentasa 4 pills / 4 times per day, which did nothing for me. (Yes the “beads in the stool” are normal, as you now know). The only good thing about
it is that I experienced no side effects. (I would guess that it would be a rare occasion for Pentasa to cause the side effects that you describe).
The only treatment that I’ve tried that really works is called Low Dose Naltrexone (LDN). Please read info about
it and my posts on Crohn’s Disease Forum – "Penn State University and Crohn’s Disease" ....if you want to learn more visit www.lowdosenaltrexone.org.
As with everything, what works for one may not work for others but LDN has proven to be very beneficial.
LDN is not FDA approved and some docs will not prescribe it (off-label) even though it is “legal and ethical” to do so. Many of them overlook it as a treatment “option” and end up turning to the “most common” biologic treatments like Remicade and Humira. I feared the extreme side effects of those treatments and did some research. I found LDN and persuaded my GI to let me give it a try. So far (7 weeks on LDN) I have experienced tremendous relief of symptoms - from day one. (I was having diarrhea 10 - 20 times a day and a lot of pain before LDN and now I have it about
2 - 3 times a day and very slight discomfort - no pain). Each day seems to get better and better!
The great thing about
LDN is that there are: minimal to NO side effects, 1 pill at bedtime, it is inexpensive, and it WORKS!
I am sharing my experience with you for information purposes only and want to encourage you to do all you can do to improve your quality of life.
I wish you well!
Patti (a/k/a there~ishope)
*dx Crohn's - June 1978
*surgery - Dec. 2002 - Ileocolectomy/resection
*dx Crohn's/Colitis/Acid Reflux - Feb. 2005 (2006)
*Low Dose Naltrexone (LDN) user since March 11, 2008 - FINALLY FOUND A TREATMENT THAT WORKS!