Hello all. I am new to this forum. Hoping for feedback! I have 2 strictures, one high grade near the splenic flexure and the other involves a slight thickening of the colon wall near the Cecum in the ascending colon. I have had Crohn's for almost 40 years and did not know it until 2000 but have not had any abdominal symptoms until about a year ago. Before that it was mostly joint inflammation. I have been taking Pentasa, Entocort and most recently Humira. The current symptoms include gas pain, an inflamed feeling along the transverse colon and lots of noisy bowel. The symptoms are mostly at night. The barium enema and a colonoscopy clearly show the stricture at the splenic flexure but the doctor could not get the scope past that stricture to examine the rest of the bowel. He said the CT did not clearly indicate the condition of the smaller stricture but he feels he needs to take them both out including all the colon in between and past the bend at the splenic flexure. He says that I could leave the smaller stricture but because he can't see it internally he recommends removing it.
My concern is how much difference is it going to make if I have one foot or two to three feet of colon removed? Will I be forever tied to the toilet if more is removed? I was thinking with new medications becoming available such as Humira I might be able to keep the inflammation down and keep the smaller stricture from growing. I did seem to feel better on Humira and the doctor wants me to take it after surgery anyway. I am scheduled for surgery on May 5.
Sorry for the long post but the thing is I don't feel all that bad and it's hard to submit myself to surgery especially when I am not sure of how far I should take it. If anyone has a similar situation I would really appreciate hearing about it. Thanks all!