Update with questions.

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gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/28/2008 5:45 PM (GMT -7)   
Hi Everyone seen my GI and we decided to go no meds for another month to see how things go. For those of you that had resections are you  going to continue on meds? I am talking Hum. here or pred. for maintenance .I kind of hate to go the Hum or pred, route .Sideeffects aren't always the greatest.I also don't want more surgery or to get really sick. What have you done in this situation? I am still having the nasty sweats at night and body aching. BM's are not too bad. I keep running this over in my head but guess I"ll enjoy no med freedom for now. lol gail

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/28/2008 6:12 PM (GMT -7)   
Gail, I'm going to take medication post resection - either Pentasa or Imuran. I'm leaning toward Pentasa, even though there are some studies that say it's not effective for the treatment of Crohn's. Unfortunately, Crohn's can recur whether you're on medication or not, so my thinking is to go with the medication with the least side effects. I don't believe there are any studies yet regarding the efficacy of Humira post-resection. I haven't heard of taking Prednisone as a maintenance medication. I wouldn't go that route. What's up with the sweats at night and body aching? What does your doctor say about that? Good luck with your decision.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/29/2008 4:22 AM (GMT -7)   
Hi Ski I don't know what's up with the sweats, I am over 50 and have had a year now menapausal had stopped them for about 6 months after a double Rem. IV. but there back and i really mind them, Dr. don't say anything about them.My bloodwork is good and have a paper for more to get done to keep it checked. I had to go off the Imuran because of a rash. The body aching comes when I do something extra have been doing painting and some yard work but I get achy and have to give it a bit of time to stop. I guess it's a see how things go thing. Glad you are home ,how are you feeling now? Was amazed you got out so soon. How are your BM's now? Did you start the probiotics? Hope the Pentasa works for you. My Dr. only gave me the 2 opionions I did ask him about other meds. They have clinical studies in Halifax but that is a way's off for me to travel and my daughter's car is old like 92.Thanks for replying somtimes it helps to talk things out. lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/29/2008 6:20 AM (GMT -7)   
Gail I take probiotics and the only Crohns med I use for maintenance is Asacol and it works well for me. I think you should be taking something, otherwise its just in there ticking away and doing damage again.

Good Luck,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 4/29/2008 6:42 AM (GMT -7)   
Gail, you're right, the sweats are probably menopausal related. I'm doing OK. I felt great on the outside right away, had no trouble walking, the pain wasn't bad and I was happy to be discharged home so quickly. The guts are another matter. I'm disappointed and a bit discouraged with the cramping and diarrhea and the resulting sore tusch. I've moved things back a notch, eating pretty much what I was eating before the surgery (bland, soft, boring). I hope I didn't replace one set of problems with another. I'm trying to be patient. I did start taking probiotics.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/29/2008 5:30 PM (GMT -7)   
Hi Thanks Nanners your right about not wanting things to tick away but I don't like pred. and a bit not wanting the hum. too much .As far as Asacol for me I am worried about stomach problems the gerd and heartburn thing.Nanners how is your knee doing been wondering about how you were doing.

Hi Ski Give the bowels a bit more time the probiotcs gave me cramps before so I stayed away from them. Low roughage might help you as you say for awhile. I did have the D for the first week or so and passing gas was a little painful at first but things got really alot better. I am managing not too bad but been eating too much chocolate lately.Infrazinc cream is good for the sore butt. Were you having D before the operation? lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/30/2008 6:42 AM (GMT -7)   
Gail I too take Prilosec for the gerd/heartburn. The Asacol doesn't upset that cart at all.

As for the knee, its doing pretty good. Not back to 100% yet, but slowly getting better. Been riding my stationary bike faithfully everyday and I have my 2nd PT session this afternoon. Thanks for asking.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 4/30/2008 7:19 AM (GMT -7)   
wish i had some advice for you gail but i am glad to hear you are feeling well at the moment! and i don't blame you from staying away from the evil pred. i won't go back on it, it helped while i was on it but who the heck wants something that makes you feel better and to know that when you get off of it, your problems return and you went through all those side effects and then you have to go back on it and it's just a vicious circle. that's how i feel at least!
.: stephanie :.
32 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/30/2008 6:00 PM (GMT -7)   
Hi Stephanie Yes I know it can be hard I feel the pred. is only for when a person isn't responding or for quick intervention. I was not the most impressive person on pred. kind of weird for me and disliked the other things that we all have issues with. Thanks for your reply hope your doing good. lol gail
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