looking for safe ways to avoid resection of terminal illeum

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nightowl
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 5/1/2008 4:44 AM (GMT -7)   
anyone have any diets or have avoided surgery with same? am worried and know worry is not good.
24cm stricture is scarred. does not respond to medication. anyone been there? thanks!

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 5/1/2008 5:30 AM (GMT -7)   
Yuck. No one likes the thought of surgery, but sometimes it has to happen. A good friend of mine put it off for years. After he finally did it, he kept saying he wished he had done it years ago. Also, once the architecture of the bowel has been changed (like a long-time stricture) it will not respond to anything--not medication, not diet.

With all of that being said, I would get a second opinion about the need for surgery. But don't be scared of it--it just might put you into remission for a few years!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/1/2008 6:42 AM (GMT -7)   
If your stricture is from scar tissue no medication is going to reduce it. If its from inflammation, then meds and diet will work. Many folks are initially diagnosed with Crohns because of obstructions and having to need emergency surgery. I would personally prefer to have had a elected surgery vs. an emergency surgery.

What kind of symptoms are you having right now? We might be better able to give you more insight if we know what symptoms you are living with.

Oh, and welcome to HealingWell.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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